자폐스펙트럼장애를 가진 학령기 아동 어머니의 자녀양육경험
Child Rearing Experience of Mothers of School-Age Children with Autism Spectrum Disorders
0
조회
0
다운로드
6
인용
0
참고문헌
키워드
초록
본 연구의 결과는 국내 학령기 자폐스펙트럼장애아동 어머니들이 자녀를 학교와 학교 밖 세상으로 내보내기 위해 치열하게 준비하며 살아가는 모습을 보여준다. 또, 이 어머니들의 양육 상의 어려움은 그들의 긍정적인 의지만으로 해결될 수 있는 것이 아니며, 학교 현장이나 지역사회의 지원을 통한 신체적 심리적 재정적 시간적 자원의 확보 및 자녀의 평생교육과 독립을 위한 재활프로그램으로의 연계 등과 같이 보다 실제적인 대책이 마련되어야 할 근거를 제시해준다. 본 연구의 결과는 장애아동과 그 어머니의 개별적 욕구에 따른 전인간호를 제공하기 위한 근거자료로 사용될 수 있을 것이다.
Abstract
Purpose: The purpose of this study was to describe the child rearing experience of mothers of school-age children with autism spectrum disorders in Korea. Methods: Seven mothers were interviewed from October 2015 to January 2016. Interviews were transcribed verbatim and analyzed using Giorgi’s phenomenological method. Results: The study results showed that the child rearing experience of mothers of school-age children with autism spectrum disorders consists of six major themes: “facing unexpected situations”, “trying to accept children with disabilities”, “having considerably adjusted to the difficulties associated with the children’s school life”, “experiencing frustrations”, “maintaining a child-centered life style”, and “being grateful for the present and looking forward to a better future”. Conclusion: The findings from this study show the need to provide more practically individualized and holistic services in the community for this population including their children such as lifetime education programs for the children and more financial aid for their therapies. In addition, the results reveal that mothers need physical, emotional, informational, financial, and social support to continue their life with children who have autism spectrum disorders.
참고문헌 (24)
- Allik H, "Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism", Health and Qual Life Outcomes, 4, pp.1~ (2006)
- American Psychiatric Association, "Diagnostic and statistical manual of mental disorders" (2013), Author
- 배혜영, "자폐범주성장애아동 어머니의 스트레스 요인과 해결방안에 대한 연구", 특수교육저널:이론과 실천, 10(1), pp.137~157 (2009), 한국특수교육문제연구소
- 배내윤, "중증 자폐성 장애 청소년의 성인기 전환에 대한 가족지원 요구 분석", 특수교육, 12(1), pp.31~59 (2013), 특수교육연구소
- Benson P, "Maternal involvement in the education of young children with autism spectrum disorders", Autism, 12(1), pp.47~63 (2008)
- Carr T, "Longitudinal study of perceived negative impact in African American and Caucasian mothers of children with autism spectrum disorder", Autism, 17(4), pp.405~417 (2013)
- Hyang-In Cho Chung, "Child Rearing Experiences of Foreign Wives Married to Korean Husbands", Asian Nursing Research, 4(2), pp.75~89 (2010), 한국간호과학회
- Epstein T, "Associated features of Asperger syndrome and their relationship to parenting stress", Child Care Health Dev, 34(4), pp.503~511 (2008)
- Giallo R, "Fatigue, wellbeing and parental self-efficacy in mothers of children with an autism spectrum disorder", Autism, 17(4), pp.465~480 (2013)
- Gill J, "Being the mother of a child with Asperger's syndrome : women's experiences of stigma", Health Care Women Int, 32(8), pp.708~722 (2011)
- Giorgi A, "Phenomenology and psychological research", pp.8~22 (1985), Duquesne University Press
- Gray DE, "Gender and coping: the parents of children with high functioning autism", Soc Sci Med, 56(3), pp.631~642 (2003)
- Griffith GM, "We are all there silently coping. The hidden experiencees of parents of adults with Asperger syndrome", J Intellect Dev Disabil, 37(3), pp.237~247 (2012)
- Joosten AV, "Management strategies of mothers of school-age children with autism: implications for practice", Aust Occup Ther J, 61(4), pp.249~258 (2014)
- 장성하, "장애자녀의 일반 초등학교 입학 초기에 어머니가 느끼는 스트레스 요인", 유아특수교육연구, 10(4), pp.19~43 (2010), 한국유아특수교육학회
- Kuusikko-Gauffin S, "Social anxiety in parents of high-functioning children with autism and Asperger syndrome", J Autism Dev Disord, 43(3), pp.521~529 (2013)
- Lincoln YS, "Naturalistic inquiry" (1985), Sage Publications
- Little L, "Differences in stress and coping for mothers and fathers of children with Asperger's syndrome and nonverbal learning disorders", Pediatr Nurs, 28(6), pp.565~570 (2002)
- Mugno D, "Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder", Health Qual Life Outcomes, 5, pp.22~ (2007)
- OH SEUNG MIN, "취학 전 자폐적 성향을 보이는 발달지체 아동 어머니의 양육경험에 대한 연구", 미래유아교육학회지, 20(2), pp.375~402 (2013), 미래유아교육학회
- Samadi SA, "The impact on Iranian mothers and fathers who have children with an autism spectrum disorder", J Intellect Disabil Res, 58(3), pp.243~254 (2014)
- 양희택, "발달장애인의 생애주기에 따른 어머니의 양육경험에 관한 해석학적 연구", 한국장애인복지학, (21), pp.43~68 (2013), 한국장애인복지학회
- 윤세은, "자폐스펙트럼장애 자녀를 둔 어머니의 정신건강 영향요인", 정서·행동장애연구, 28(3), pp.339~364 (2012), 한국정서행동장애학회
- Zablotsky B, "The association between mental health, stress, and coping supports in mothers of children with autism spectrum disorders", J Autism Dev Disord, 43(6), pp.1380~1393 (2013)