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장애부모를 돌보는 가족돌봄청년(young carer)의 돌봄부담과 우울 간 관계* 부모의 장애로 인한 삶의 부정적 변화 인식의 매개효과에 주목하여

The Relationship between Subjective Care Burden and Depression of Young Carers with Parents with Disabilities Focusing on the Mediating Effect of the Perceptions on the Negative Life Changes Caused by Parental Disabilities

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초록

Objective: This study aimed to explore how subjective care burden affects depression of young carers of parents with disabilities, focusing on the mediating role of perceptions of young carers on the negative life changes caused by parental disabilities. Methods: This study used 212 cas es of young carers of parents with disabilities, derived from 3rd wave data of Disability and Life Dynamics Panel by Korea Disabled people’s Development Institute. Descriptive statistics, corre lation analysis, and structural equation modeling were employed; bootstrapping method was used to test the significance of indirect effect. Results: The subjective burden of young carers did not directly affect depression; however, it had a significant indirect effect on depression through perceptions on the negative life changes caused by parental disabilities. Conclusions: Based on the results, this study discussed the implications of this study by suggesting the importance of support systems for mental health of young carers, and services to lessen the care burden of young carers which consider developmental features and tasks of young carers. This study con cluded with limitations of the current study and suggestions for future studies.

Abstract

Objective: This study aimed to explore how subjective care burden affects depression of young carers of parents with disabilities, focusing on the mediating role of perceptions of young carers on the negative life changes caused by parental disabilities. Methods: This study used 212 cas es of young carers of parents with disabilities, derived from 3rd wave data of Disability and Life Dynamics Panel by Korea Disabled people’s Development Institute. Descriptive statistics, corre lation analysis, and structural equation modeling were employed; bootstrapping method was used to test the significance of indirect effect. Results: The subjective burden of young carers did not directly affect depression; however, it had a significant indirect effect on depression through perceptions on the negative life changes caused by parental disabilities. Conclusions: Based on the results, this study discussed the implications of this study by suggesting the importance of support systems for mental health of young carers, and services to lessen the care burden of young carers which consider developmental features and tasks of young carers. This study con cluded with limitations of the current study and suggestions for future studies.

참고문헌 (48)

  1. 강승원, "지적장애 부모를 둔 비장애 청소년의 삶에 관한 질적 사례연구", 한국사회복지학, 68(3), pp.73~103 (2016)
  2. 김미희, "장애인 부모를 가진 자녀의 경험에 관한 사례 연구", 질적연구, 4(1), pp.76~87 (2003)
  3. 김서영, "가족돌봄청년의 돌봄 경험과 가족역동", 석사, pp.2023
  4. 김소진, "지체장애 부모를 가진 비장애 자녀의 경험에 대한 연구 – 청년기 자녀를 중심으로", 한국장애인복지학, 19, pp.23~44 (2012)
  5. 김소진, "장애부모가족을 위한 지원 방안 연구", 인문사회21, 13(3), pp.675~690 (2022)
  6. 김소진, "부모의 장애가 비장애자녀의 아동기 발달에 미치는 영향", 한국장애인복지학, 21, pp.129~146 (2013)
  7. 김수영, "구조방정식 모형의 기본과 확장" (2016), 학지사
  8. 김아롱, "영 케어러의 가족 돌봄 경험", 한국가족복지학, 70(1), pp.77~105 (2023)
  9. 김은지, "장애 부모를 둔 비장애 자녀의 삶의 만족 유형화와 관련 요인 탐색 –잠재프로파일분석(LPA)을 활용하여-", 사회복지정책, 50(2), pp.131~160 (2023)
  10. 노혜진, "가족돌봄청년의 돌봄 실태 및 심리정서 상태의 영향요인", 한국가족복지학, 70(4), pp.181~213 (2023)
  11. 문산희, "성인 지적장애 자녀와 함께 사는 장애 부모의 양육 경험에 관한 연구", 한국지역사회복지학, 73, pp.177~203 (2020)
  12. 보건복지부, "‘복지 사각지대에 놓인 청년 발굴 지원’ 가족돌봄⋅고립은둔청년 전담지원 시범사업 공모", 보도자료, ~ (2024)
  13. "2024 일상돌봄 서비스 사업 안내(지침)" (2024), 보건복지부[URL]
  14. 부경희, "성인 발달장애 자녀를 돌보는 어머니의 돌봄 부담과 삶의 질의 관계 –우울의 매개효과와 조절효과를 중심으로-", 발달장애연구, 25(3), pp.249~271 (2021)
  15. "서울특별시 가족돌봄청년 지원에 관한 조례", 서울특별시조례 제9054호, ~ (2023)
  16. 선미정, "가족돌봄청년(영 케어러 : Young Carer)의 일상생활에 관한 질적 사례연구", 미래사회복지연구, 13(3), pp.33~67 (2022)
  17. 양지형, "발달장애인 형제를 둔 성인 비장애 형제자매의 정서적 경험과 지원요구에 대한연구", 특수교육학연구, 55(2), pp.31~60 (2020)
  18. 이민경, "장애인 가족 돌봄부담의 우울과 자살생각의 관계 연구 – 돌봄지원의 조절매개효과를 중심으로", 한국장애인복지학, 44, pp.121~148 (2019)
  19. 이희선, "가족 돌봄을 제공하는 청년과 우울에 대한 연관성 분석", 석사, pp.2023
  20. "돌봄의 부담···가족돌봄청년, 여전히 복지 사각" (2023)[URL]
  21. 임정기, "가족돌봄자의 돌봄반응이 삶의 만족도에 미치는 영향", 사회복지정책, 48(3), pp.239~263 (2021)
  22. 조수민, "장애 형제자매가 있는 성인 비장애 형제자매의 삶의 경험", 특수아동교육연구, 22(4), pp.165~191 (2020)
  23. 최윤진, "영 케어러(Young Carer)의 돌봄 경험에 대한 탐색", 청소년학연구, 29(11), pp.155~184 (2022)
  24. 장애인삶 패널조사 이용자 안내서(1차-4차), "한국장애인개발원", 한국장애인개발원, ~, pp.정책23-03 (2023)
  25. 함선유, "가족돌봄 청(소)년 현황과 정책 과제", 보건복지포럼, 319, pp.34~46 (2023)
  26. Alfonzo, L. F., "Mental health of young informal carers : a systematic review", Social Psychiatry and Psychiatric Epidemiology, 57, pp.2345~2358 (2022)
  27. Becker, F., "Young Adult Carers in the UK: Experiences, Needs and Services for Carers aged", pp.16~24 (2008), The Princess Royal Trust for Carers
  28. Becker, S., "Young Adult Carers : The Impact of Caring on Health and Education", Children & Society, 33(4), pp.377~386 (2019)
  29. Blake-Holmes, K., "Young adult carer: making choices and managing relationships with a parent with a mental illness", Advances in Mental Health, 18(3), pp.230~240 (2020)
  30. Dharampal, R., "The emotional and mental health needs of young carers : what psychiatry can do", BJPsych bulletin, 44(3), pp.112~120 (2020)
  31. Frank, J., "Making it Work: Good Practice with Young Carers and Their Families" (2002), Children’s Society, Princess Royal Trust for Carers
  32. Hu, L., "Cutoff criteria for fit indexes in covariance structure analysis : Conventional criteria versus new alternatives", Structural Equation Modeling : A Multidisciplinary Journal, 6(1), pp.1~55 (1999)
  33. "Measuring model fit" (2014)[URL]
  34. King, T. L., "Use of Parental Disability Trajectories to Identify Adolescents Who are Young Carers", Journal of Youth and Adolescence, 52, pp.449~460 (2023)
  35. Kline, R. B., "Principles and Practice of Structural Equation Modeling" (2011), Guilford Press
  36. Kohout, F. J., "Two shorter forms of the CES-D depression symptoms index", Journal of Aging and Health, 5(2), pp.179~193 (1993)
  37. Lacey, R. E., "The mental and physical health of young carers:a systematic review", The Lancet Public Health, 7(9), pp.e787~e796 (2022)
  38. Lackey, N. R., "Adults’ recollections of their experiences as young caregivers of family members with chronic physical illnesses", Journal of Advanced Nursing, 34(3), pp.320~328 (2001)
  39. Lakdawala, L. K., "The relationship between parental disability and child outcomes: Evidence from veteran Families", PloS one, 17(11), pp.e0275468~ (2022)
  40. Leu, A., "The 2021 cross-national and comparative classification of in-country awareness and policy responses to ‘young carers’", Journal of Youth Studies, 26(5), pp.619~636 (2021)
  41. Pakenham, K. I., "The psychosocial impact of caregiving on young people who have a parent with an illness or disability : Comparisons between young caregivers and noncaregivers", Rehabilitation Psychology, 51(2), pp.113~126 (2006)
  42. Robison, O. M. E. F., "The health, well-being and future opportunities of young carers : a population approach", Public Health, 185, pp.139~143 (2020)
  43. Sahoo, R., "Do Young Carers Deserve Justice? Young Caring in the Context of Illness", Psychology and Developing Societies, 21(1), pp.133~150 (2009)
  44. Sempik, J., "Young adult carers and employment" (2014), Care Trust
  45. Skovdal, M., "Young carers as social actors : Coping strategies of children caring for ailing or ageing guardians in Western Kenya", Social Science & Medicine, 69(4), pp.587~595 (2009)
  46. Thomas, N., "Your friends don’t understand’ : Invisibility and unmet need in the lives of ‘young carers’", Child & Family Social Work, 8(1), pp.35~46 (2003)
  47. Townsend, A., "Longitudinal impact of interhousehold caregiving on adult children’s mental health", Psychology and Aging, 4(4), pp.393~401 (1989)
  48. Wepf, H., "Pathways to Mental Well-Being in Young Carers : The Role of Benefit Finding, Coping, Helplessness, and Caring Tasks", Journal of Youth and Adolescence, 50, pp.1911~1924 (2021)

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