소아암 재발 환아 어머니의 심리 경험에 관한 일상생활 기술적 연구
An Ethnographic Research on Psychological Experiences of Mothers Caring for their Children with Recurent Cancer
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Purpose: This study was done to explore and have a deeper understanding of psychological experiences of mothers caring for their children with recurrent cancer. Methods: This paper applied an ethnographic research method. Using maximum variation sampling, the participants consisted of 7 mothers who were caring for their children with recurrent cancer. Data were collected through in-depth informal interviews, participant observation and telephone interviews, and analyzed following Spradley’s methodology. Results: The mothers’ psychological experiences were organized into one cultural theme, three categories and nine properties. The cultural theme was ‘inner growth through adversity’. The three categories were ‘daily life dancing on a tightrope’, ‘seizing hold of the string of hope’, and ‘being matured in life through the child’s pain’. Conclusion: Supportive and effective nursing intervention must be provided on the basis of a deeper understanding of mothers’ experiences caring for their children with recurrent cancer, so that it could strengthen their inner growth through adversity, and ultimately improve the mothers’ quality of life.
Abstract
Purpose: This study was done to explore and have a deeper understanding of psychological experiences of mothers caring for their children with recurrent cancer. Methods: This paper applied an ethnographic research method. Using maximum variation sampling, the participants consisted of 7 mothers who were caring for their children with recurrent cancer. Data were collected through in-depth informal interviews, participant observation and telephone interviews, and analyzed following Spradley’s methodology. Results: The mothers’ psychological experiences were organized into one cultural theme, three categories and nine properties. The cultural theme was ‘inner growth through adversity’. The three categories were ‘daily life dancing on a tightrope’, ‘seizing hold of the string of hope’, and ‘being matured in life through the child’s pain’. Conclusion: Supportive and effective nursing intervention must be provided on the basis of a deeper understanding of mothers’ experiences caring for their children with recurrent cancer, so that it could strengthen their inner growth through adversity, and ultimately improve the mothers’ quality of life.
참고문헌 (30)
- "‘pediatric cancer’, unlike adult, high proportion of ‘leukemia’"[URL]
- An HS, "Hong Changeui Pediatrics", pp.814~873 (2012), Mirae-N
- Ekwall E, "Recurrence of ovarian cancer-living in limbo", Cancer Nurs, 30(4), pp.270~277 (2007)
- 김영주, "입원 치료중인 유방암 재발 환자의 삶의 경험", Journal of Korean Academy of Nursing, 41(2), pp.214~224 (2011), 한국간호과학회
- Shortman RI, "The experience of mothers caring for a child with a brain tumor", Child Care Health Dev, 39(5), pp.743~749 (2013)
- 조헌하, "소아암 아동과 가족에 관한 국내 연구 동향", Child Health Nursing Research, 16(1), pp.73~83 (2010), 한국아동간호학회
- Yoo JH, "A study on the parent-child relation, familism, and hyo", Parent Education Research, 4(2), pp.81~94 (2007)
- Son SY, "A study on maternal role image of Korean women in TV commercial ads", pp.2013
- Anderson BL, "Psychological response to cancer recurrence", Cancer, 104(7), pp.1540~1547 (2005)
- Yang HC, "Surviving recurrence : psychological and quality of life recovery", Cancer, 112(5), pp.1178~1187 (2008)
- 강경아, "말기 암 환아 부모가 경험하는 어려움", Child Health Nursing Research, 11(2), pp.229~239 (2005), 한국아동간호학회
- Kenne Sarenmalm E, "Making sense of living under the shadow of death : adjusting to a recurrent breast cancer", Qual Health Res, 19(8), pp.1116~1130 (2009)
- Chae YH, "Experiences on cancer recurrence of leukemic patients", pp.2004
- Ward-Smith PKS, "Having a child diagnoses with cancer : an assessment of values from the mother’s viewpoint", J Pediatr Oncol Nurs, 22(6), pp.320~327 (2005)
- Spradley JP, "Participant observation" (2009), Cengage Learning
- Yoo EK, "Ethnography and ethnographic research method. In: Kim KB, eds. Qualitative research methodology", pp.223~272 (2005), Hyunmoonsa
- Ko YS, "Phenomenological study on psychological experiences of parents with pediatric cancer", pp.2008
- Jeon HW, "Hermeneutic phenomenological understanding on psychological experience about a mother's caring for her child suffering from pediatric cancer", J of Qualitative Research, 3(2), pp.16~34 (2002)
- Uncertainty in parents of children with cancer, "Oh WO", Korean Studies Information, ~ (2006)
- Kim HS, "Theoretical study on the bereavement process of terminal cancer patient’s family", Korean Journal of Care Management, 2, pp.97~125 (2009)
- Young B, "Parenting in a crisis : conceptualising mothers of children with cancer", Social & Medicine, 55, pp.1835~1847 (2005)
- Dolgin MJ, "Trajectories of adjustment in mothers of children with newly diagnosed cancer : a natural history investigation", J Pediatr Psychol, 32(7), pp.771~782 (2007)
- Milberg A, "Protection against perceptions of powerlessness and helplessness during palliative care : the family members' perspective", Palliat Support Care, 9(3), pp.251~262 (2011)
- Holtslander LF, "The experience of hope for informal caregivers of palliative patients", J Palliat Care, 21(4), pp.285~291 (2005)
- Tedeschi RG, "Posttraumatic growth : conceptual foundations and empirical evidence", Psychol Inq, 15(1), pp.1~18 (2004)
- Mcillmurray MB, "The psychosocial needs of cancer patients : finding from an observational study", Eur J Cancer, 10, pp.261~269 (2001)
- "Ministry of Health and Welfare information system"[URL]
- 이희경, "소아암 환아 어머니의 희망이 외상 후 성장에 미치는 영향: 삶의 의미를 매개로", 상담학연구, 11(4), pp.1501~1517 (2010), 한국상담학회[DOI]
- Barakar LP, "Posttraumatic growth in adolescent survivors of cancer and their mothers and fathers", J Pediatr Psychol, 31(4), pp.413~419 (2006)
- Zoellner T, "Posttraumatic growth in clinical psychology-A critical review and introduction of a two component model", Clin Psychol Rev, 26(5), pp.626~653 (2006)