소아암 환아 어머니의 암재발 체험
Lived Experience of Cancer Recurrence in Mothers Caring a Pediatric Cancer Child
2
조회
0
다운로드
0
인용
0
참고문헌
키워드
초록
Purpose: This hermeneutic phenomenological study aimed to understand the meaning and essence of the experience of mothers who took care of a child with recurred cancer. Methods: Data were collected from in-depth interviews with five mothers caring a child who had gotten cancer recurrence during November, 2015. Data were analyzed by van Manen’s phenomenological methodology. Results: Six essential themes were emerged: ‘overwhelmed by despair for cancer therapy to start again’, ‘seeking for better therapy at the end of the conflict’, ‘continuing the hard-to-get treatment inevitably and repeatedly’, ‘living as a child carer instead of the disease manager’, ‘realizing the family to take care of with a sick child’, ‘thank for today my family can be with an alive child with cancer’. Conclusion: Based on these results, nurses could approach mothers experiencing their children’s pediatric cancer recurrence, who play a role as a helper for primary care. Also children patients could be intervened as direct-care objects and wholistic human beings.
Abstract
Purpose: This hermeneutic phenomenological study aimed to understand the meaning and essence of the experience of mothers who took care of a child with recurred cancer. Methods: Data were collected from in-depth interviews with five mothers caring a child who had gotten cancer recurrence during November, 2015. Data were analyzed by van Manen’s phenomenological methodology. Results: Six essential themes were emerged: ‘overwhelmed by despair for cancer therapy to start again’, ‘seeking for better therapy at the end of the conflict’, ‘continuing the hard-to-get treatment inevitably and repeatedly’, ‘living as a child carer instead of the disease manager’, ‘realizing the family to take care of with a sick child’, ‘thank for today my family can be with an alive child with cancer’. Conclusion: Based on these results, nurses could approach mothers experiencing their children’s pediatric cancer recurrence, who play a role as a helper for primary care. Also children patients could be intervened as direct-care objects and wholistic human beings.
참고문헌 (32)
- Cho, Y. S., "The experience of parents whose child is dying with cancer", Journal of Korean Academy of Nursing, 22(4), pp.491~505 (1992)
- 최권호, "소아암 가족의 심리사회적 서비스 요구- 환아 부모의 경험을 중심으로 -", 한국가족복지학, (45), pp.171~197 (2014), 한국가족사회복지학회[DOI]
- Guba, E. G., "Effective evaluation : Improving the usefulness of evaluation results through responsive and naturalistic approaches" (1981), Jossey-Bass
- "Pediatric cancer, unlike adult, high proportion of leukemia" (2015)[URL]
- Heo, M. H., "The relationship between stress and quality of life in mother of children with cancer", master's, pp.2009
- Hong, C. H., "Pediatrics" (2012), Korea Test Book Corporation
- Jeon, H. W., "Hermeneutic phenomenological understanding on psychological experience about a mother's caring for her child suffering from pediatric cancer", Journal of Qualitative Research, 3(2), pp.10~27 (2002)
- 전지은, "소아암 환아 어머니의 희망, 자기효능감이 외상 후 성장에 미치는 영향", 임상간호연구, 22(2), pp.142~151 (2016), 병원간호사회
- Jung, S. Y., "Lived experience of relapsed leukemia after hematopoietic stem cells transplantation", master's, pp.2004
- Kang, K. A., "A comparison of needs for hospice care between families of children and adult with cancer", The Korean Journal of Hospice and Palliative Care, 8(2), pp.216~223 (2005)
- Kenne, S. E., "Making sense of living under the shadow of death : Adjusting to a recurrent breast cancer", Qualitative Health Research, 19(8), pp.1116~1130 (2009)
- 김민정, "소아암 환아 어머니들의 수용전념치료 참여 경험에 대한 질적 사례연구", 한국심리학회지:여성, 23(3), pp.469~498 (2018), 한국여성심리학회[DOI]
- 김랑순, "일 대학병원 암환아 어머니의 스트레스와 대처", Asian Oncology Nursing, 6(1), pp.66~75 (2006), 대한종양간호학회
- 김성희, "소아암 재발 환아 어머니의 심리 경험에 관한 일상생활 기술적 연구", Asian Oncology Nursing, 15(2), pp.75~88 (2015), 대한종양간호학회
- 김영주, "입원 치료중인 유방암 재발 환자의 삶의 경험", Journal of Korean Academy of Nursing, 41(2), pp.214~224 (2011), 한국간호과학회
- Ko, Y. S., "Phenomenological study on psychological experiences of parents with pediatric cancer", doctoral, pp.2007
- 공병혜, "간호연구에서의 현상학", 현상학과 현대철학, (23), pp.151~178 (2004), 한국현상학회
- Lackner, H., "Prospective evaluation of late effects after child hood cancer therapy with a follow-up over 9 years", European Journal of Pediatrics, 159(10), pp.750~758 (2000)
- 이상혁, "소아암 환아 부모의 스트레스와 삶의 질", 정신신체의학, 11(2), pp.159~169 (2003), 한국정신신체의학회
- Moon, H. W., "A study on the use of the complementary and alternative therapy in female cancer patients", master's, pp.2003
- Recurrence and treatment of pediatric cancer, "Park, H. J.", Korean Association for Children with Leukemia and Cancer (KACLC), 48~72 (2012)
- 박혜숙, "뮤코다당증 환아 부모의 경험", 질적연구, 14(1), pp.1~12 (2013), 질적연구학회[DOI]
- Saiki-Craighill, S., "The personal development of mothers of terminal cancer patients : How Japanese women change through the experience of caring for and losing their children to cancer", Qualitative Health Research, 12(6), pp.769~779 (2002)
- Seo, J. S., "Social support and burden of the mothers of leukemia children", master's, pp.1993
- 서유진, "소아암 환아 어머니의 삶의 의미가 회복탄력성에 미치는 영향: 사회적 지지의 조절효과를 중심으로", 한국심리학회지:여성, 23(2), pp.127~148 (2018), 한국여성심리학회[DOI]
- Shin, K. R., "Qualitative research methodology" (2004), Ewha Womans University Press
- 심미경, "소아암 환아 가족의 적응에 영향을 미치는 회복력요인", Child Health Nursing Research, 10(4), pp.383~394 (2004), 한국아동간호학회
- 신혜원, "암환아와 어머니의 회복력에 관한 상관관계 연구", Asian Oncology Nursing, 8(1), pp.24~31 (2008), 대한종양간호학회
- 손소영, "TV광고에 나타난 한국여성의 모성역할이미지에 관한 연구", 박사, 디자인·공예학과 시각디자인전공, pp.2013
- 송주연, "소아암 환아 어머니의 희망이 외상 후 성장에 미치는 영향: 삶의 의미를 매개로", 상담학연구, 11(4), pp.1501~1517 (2010), 한국상담학회[DOI]
- van Manen, M., "Researching lived experience" (2000), Hyunmoonsa
- Yun, E. Y., "Medical social work needs assessment for caregivers of childhood cancer patients via focus group interview", Korean Journal of Clinical Social Work, 8(3), pp.19~49 (2011)
