암 환자 가족 돌봄 제공자의 암 재발 두려움 경험
Family Caregivers’ Experiences Related to Fear of Cancer Recurrence in Caring for Cancer Survivors
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Purpose: Cancer survivors and family caregivers may experience a vague sense of fear or worry about the possibility of recurrence. The family caregivers of cancer survivors experience numerous psychological hardships because, depending on the patient’s state, they must play various roles and accompany the patient through a series of events. Accordingly, this study aimed to investigate the nature and structure of the experiences of family caregivers of cancer survivors in relation to the fear of cancer recurrence. Additionally, it sought to obtain the central meanings associated with these experiences. Methods: We recruited four adult family caregivers of patients who were diagnosed with cancer between February and October 2020. The caregiver participants voluntarily agreed to participate in the study. To analyze their experiences regarding fear of cancer recurrence, we collected data using the qualitative case study and by conducting individual in-depth interviews. Results: Family caregivers’ experiences comprised four themes (“Standing at the edge of a cliff,” “Ambushed by worries,” “Anxiety I never want to experience again,” and “Making efforts to relieve anxiety”) and 11 subthemes. Conclusion: Family caregivers of cancer survivors experience daily psychological hardships owing to fear of cancer recurrence. It is important to identify the unmet needs of family caregivers and provide practical and professional nursing interventions.
Abstract
Purpose: Cancer survivors and family caregivers may experience a vague sense of fear or worry about the possibility of recurrence. The family caregivers of cancer survivors experience numerous psychological hardships because, depending on the patient’s state, they must play various roles and accompany the patient through a series of events. Accordingly, this study aimed to investigate the nature and structure of the experiences of family caregivers of cancer survivors in relation to the fear of cancer recurrence. Additionally, it sought to obtain the central meanings associated with these experiences. Methods: We recruited four adult family caregivers of patients who were diagnosed with cancer between February and October 2020. The caregiver participants voluntarily agreed to participate in the study. To analyze their experiences regarding fear of cancer recurrence, we collected data using the qualitative case study and by conducting individual in-depth interviews. Results: Family caregivers’ experiences comprised four themes (“Standing at the edge of a cliff,” “Ambushed by worries,” “Anxiety I never want to experience again,” and “Making efforts to relieve anxiety”) and 11 subthemes. Conclusion: Family caregivers of cancer survivors experience daily psychological hardships owing to fear of cancer recurrence. It is important to identify the unmet needs of family caregivers and provide practical and professional nursing interventions.
참고문헌 (30)
- 최예숙, "암환자 가족의 고통체험 - Parse의 인간되어감 연구방법 -", Journal of Hospice and Palliative Care, 19(2), pp.127~135 (2016), 한국호스피스완화의료학회[DOI]
- Kim YK, "The family support and policy implications on support environment changes", Health Welf Policy Forum, 235, pp.62~79 (2016)
- 김경희, "가족보호자의 재가 암 환자 돌봄 반응이 심리적 안녕에 미치는 영향", 성인간호학회지, 29(6), pp.647~656 (2017), 한국성인간호학회[DOI]
- 차지은, "암환자 가족 돌봄제공자의 긍정적 적응 관련 요인", 보건정보통계학회지, 45(3), pp.247~254 (2020), 한국보건정보통계학회[DOI]
- Coyne E, "Acknowledging cancer as a family disease: a systematic review of family care in the cancer setting", Eur J Oncol Nurs, 49, pp.101841~ (2020)
- Lebel S, "From normal response to clinical problem : definition and clinical features of fear of cancer recurrence", Support Care Cancer, 24, pp.3265~3268 (2016)
- Simard S, "Fear of cancer recurrence in adult cancer survivors : a systematic review of quantitative studies", J Cancer Surviv, 7, pp.300~322 (2013)
- Lin CR, "Fear of cancer recurrence and its impacts on quality of life in family caregivers of patients with head and neck cancers", J Nurs Res, 24, pp.240~248 (2016)
- Boehmer U, "Fear of cancer recurrence in survivor and caregiver dyads : differences by sexual orientation and how dyad members influence each other", J Cancer Surviv, 10, pp.802~813 (2016)
- Kim Y, "Dyadic effects of fear of recurrence on the quality of life of cancer survivors and their caregivers", Qual Life Res, 21, pp.517~525 (2012)
- O’Rourke L, "Factors associated with fear of cancer recurrence in family caregivers of cancer survivors : a systematic review", Front Psychol, 12, pp.625654~ (2021)
- Alfano CM, "Equitably improving outcomes for cancer survivors and supporting caregivers : a blueprint for care delivery, research, education, and policy", CA Cancer J Clin, 69, pp.35~49 (2019)
- Webb K, "Toward the development of a model of caregiver-specific fear of cancer recurrence : a systematic review", J Psychosoc Oncol Res Pract, 4, pp.3~ (2022)
- Shin J, "Influence of time lapse after cancer diagnosis on the association between unmet needs and quality of life in family caregivers of Korean cancer patients", Eur J Cancer Care(Engl), 28, pp.e13089~ (2019)
- Kim H, "Unmet needs and quality of life of family caregivers of cancer patients in South Korea", Asia Pac J Oncol Nurs, 2, pp.152~159 (2015)
- 이영신, "혈액암환자 배우자의 돌봄 경험: 끝이 없는 터널에서 나오는 길 찾기", Asian Oncology Nursing, 16(1), pp.46~57 (2016), 대한종양간호학회
- Creswell JW, "Qualitative inquiry and research design: choosing among five approaches" (2018), Sage Publications
- Kim YC, "Qualitative methodology V: data analysis" (2017), Academy Press
- Lincoln YS, "Naturalistic inquiry" (1985), Sage Publications
- 임정원, "암 생존자와 가족의 의사소통과 심리적 디스트레스 간의 관계: 행위자-상대자 상호의존 모형 적용", 보건사회연구, 43(1), pp.226~245 (2023), 한국보건사회연구원[DOI]
- Lim JW, "Physical and psychological symptoms and psychological distress among the spouses of cancer survivors: the mediating effect of family communication and coping", Eur J Cancer Care(Engl), 28, pp.e13115~ (2019)
- Manne SL, "Protective buffering and psychological distress among couples coping with breast cancer: the moderating role of relationship satisfaction", J Fam Psychol, 21, pp.380~388 (2007)
- Lim JW, "The dyadic effects of family cohesion and communication on health-related quality of life: the moderating role of sex", Cancer Nurs, 41, pp.156~165 (2018)
- 최보라, "암 환자 가족돌봄자의 희망과 외상 후 성장과의 관계: 가족기능의 매개효과를 중심으로", 가족과 가족치료, 26(2), pp.253~277 (2018), 한국가족치료학회[DOI]
- Banks H, "A qualitative exploration of fear of cancer recurrence in caregivers", Psychooncology (2023)
- "Fear of cancer recurrence"[URL]
- "Worrying about cancer coming back"[URL]
- 최경숙, "가족력을 지닌 대장암 환자와 가족의 암 염려 경험", Asian Oncology Nursing, 13(4), pp.313~321 (2013), 대한종양간호학회
- Smith AB, "A systematic mixed studies review of fear of cancer recurrence in families and caregivers of adults diagnosed with cancer", J Cancer Surviv, 16, pp.1184~1219 (2022)
- "Caregivers and family"[URL]