헬스케어 AI의 환자·시민참여: 과학기술학의 관점
Patient and Public Involvement in Healthcare AI: Perspectives from Science and Technology Studies
0
조회
0
다운로드
0
인용
0
참고문헌
키워드
초록
This commentary argues that the active participation of patients and the public is essential for developing a more ethical and scientifically robust healthcare AI, one that transforms patients’ everyday knowledge into scientific insights. It begins by introducing conceptual tools and case studies from the field of Science and Technology Studies (STS) that facilitate patient and public involvement in healthcare AI. Using Jeanette Pols’ study of a community of patients with Chronic Obstructive Pulmonary Disease (COPD) as a focal example, this commentary highlights the crucial role STS can play in integrating patients’ knowledge and expertise into the development and application of AI.
Abstract
This commentary argues that the active participation of patients and the public is essential for developing a more ethical and scientifically robust healthcare AI, one that transforms patients’ everyday knowledge into scientific insights. It begins by introducing conceptual tools and case studies from the field of Science and Technology Studies (STS) that facilitate patient and public involvement in healthcare AI. Using Jeanette Pols’ study of a community of patients with Chronic Obstructive Pulmonary Disease (COPD) as a focal example, this commentary highlights the crucial role STS can play in integrating patients’ knowledge and expertise into the development and application of AI.
참고문헌 (12)
- Hyun JH, "Scientific governance through public participation : historical epistemology of divergent positions in the participatory turn of STS", J Sci Technol Stud, 12(2), pp.33~79 (2012)
- Collins HM, "The third wave of science studies : studies of expertise and experience", Soc Stud Sci, 32(2), pp.235~296 (2002)[DOI]
- Wynne B, "Sheepfarming after Chernobyl : a case study in communicating scientific information", Environ Sci Policy Sustain Dev, 31(2), pp.10~39 (1989)[DOI]
- Epstein S, "The construction of lay expertise : AIDS activism and the forging of credibility in the reform of clinical trials", Sci Technol Human Values, 20(4), pp.408~437 (1995)[DOI]
- "The promise of digital health: then, now, and the future" (2022)[URL]
- Cha H, "The ethical approach to health data donation and sharing : from the process of human tissue donation", Bio Ethics Policy, 6(2), pp.101~137 (2022)[DOI]
- "Patienthood and participation in the digital era" (2019)[URL]
- Pols J, "Knowing patients : turning patient knowledge into science", Sci Technol Hum Values, 39(1), pp.73~97 (2013)[DOI]
- Mol A, "The logic of care : health and the problem of patient choice" (2008), Routledge
- Martin GP, "‘Ordinary people only’ : knowledge, representativeness, and the publics of public participation in healthcare", Sociol Health Illness, 30(1), pp.35~54 (2007)[DOI]
- Chang H, "The construction of ‘atypical children’: networks of sensing, diagnosis, treatment of autism in Korea", pp.2020
- Cha MK, "‘Get undone science done’ and challenges to expertism in research : the case of Korean Type 1 Diabetes Association", J Sci Technol Stud, 23(1), pp.1~39 (2023)[DOI]