중증뇌성마비 아동의 건강관련 삶의 질
Health-related Quality of Life in Children with Severe Cerebral Palsy
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초록
Objective: To describe the motor development and quality of life in children with severe cerebral palsy (CP) stratified by gross motor function classification system (GMFCS), and to investigate various factors that affect quality of life in these subjects. Method: Ninety eight children with severe cerebral palsy, mean age 5.8y, were included. The assessment consisted of a clinical evaluation of gross motor function measure (GMFM), a semi-structured interview for child health questionnaire (CHQ), and a review of medical records. Results: CP in GMFCS level V showed lower mean score of GMFM and CHQ than level IV (p＜0.05). Scores that present physical quality of life were lower than scores of psychosocial quality of life (p＜0.05). Motor distribution and sex were found to be significant factors that affect quality of life in children with severe CP (p＜0.05). In particular, as the father’s education level is higher, the physical quality of life in CP is better (p＜0.05). Conclusion: In this study, we report general life quality status of children with severe CP in Korea. Some factors such as severity and distribution of paralysis of the CP, sex, parental factor were found to affect their quality of life. We suggest that it is necessary to consider not only motor function, but also quality of life for children with severe CP.
Abstract
Objective: To describe the motor development and quality of life in children with severe cerebral palsy (CP) stratified by gross motor function classification system (GMFCS), and to investigate various factors that affect quality of life in these subjects. Method: Ninety eight children with severe cerebral palsy, mean age 5.8y, were included. The assessment consisted of a clinical evaluation of gross motor function measure (GMFM), a semi-structured interview for child health questionnaire (CHQ), and a review of medical records. Results: CP in GMFCS level V showed lower mean score of GMFM and CHQ than level IV (p＜0.05). Scores that present physical quality of life were lower than scores of psychosocial quality of life (p＜0.05). Motor distribution and sex were found to be significant factors that affect quality of life in children with severe CP (p＜0.05). In particular, as the father’s education level is higher, the physical quality of life in CP is better (p＜0.05). Conclusion: In this study, we report general life quality status of children with severe CP in Korea. Some factors such as severity and distribution of paralysis of the CP, sex, parental factor were found to affect their quality of life. We suggest that it is necessary to consider not only motor function, but also quality of life for children with severe CP.
참고문헌 (21)
- Krigger KW, "Cerebral palsy: an overview", Am Fam Physician, 73, pp.91~100 (2006)
- Vargus-Adams J, "Health-related quality of life in childhood cerebral palsy", Arch Phys Med Rehabil, 86, pp.940~945 (2005)
- Bjornson KF, "The measurement of health related quality of life in children with cerebral palsy", Eur J Neurol, 8, pp.183~193 (2001)
- Waters E, "Development of a condition-specific quality of life scale for children with cerebral palsy: empirical thematic data reported by parents and child", Child Care Health Dev, 31, pp.127~135 (2005)
- McCarthy ML, "Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy", Dev Med Child Neurol, 44, pp.468~476 (2002)
- Schneider JW, "Health related quality of life and functional outcome measures for children with cerebral palsy", Dev Med Child Neurol, 43, pp.601~608 (2001)
- Sullivan PB, "Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy", Dev Med Child Neurol, 46, pp.796~800 (2004)
- Mclaughlin JF, "Selective dorsal rhizotomy: efficacy and safety in an investigator-masked randomized clinical trial", Dev Med Child Neurol, 40, pp.220~232 (1998)
- Fawke J, "Neurological outcomes following preterm birth", Sem Fetal Neonatal Med, 12, pp.374~382 (2007)
- Palisano R, "Development and reliability of a system to classify gross motor function in children with cerebral palsy", Dev Med Child Neurol, 39, pp.214~223 (1997)
- Landgraf JM, "Child health questionnaire (CHQ): A user's manual, Boston: Health Institute, 1st ed", pp.27~30 (1999), New England Medical Center
- Russell DJ, "Gross motor function measure manual", pp.7~ (1993), McMaster University
- O’Boyle CA, "Individual quality of life inpatients undergoing hip replacement", Lancet, 339, pp.1088~1091 (1992)
- Wake M, "Health status of Australian children with mild to severe cerebral palsy: cross- sectional survey using the Child Health Questionnaire", Dev Med Child Neurol, 45, pp.194~199 (2003)
- Shelly A, "The relationship between quality of life and functioning for children with cerebral palsy", Dev Med Child Neurol, 50, pp.199~203 (2008)
- Voorman JM, "Activities and participation of 9-to 13- year-old children with cerebral palsy", Clin Rehabil, 20, pp.937~948 (2006)
- Kennes J, "Health status of school-aged children with cerebral palsy: information from a population-based sample", Dev Med Child Neurol, 44, pp.240~247 (2002)
- Wilson BN, "Reliability and validity of a parent questionnaire on childhood motor skills", Am J Occup Ther, 54, pp.484~493 (2000)
- de Geeter KI, "Parents as experts: the position of parents of children with profound multiple disabilities", Child Care Health Dev, 28, pp.443~453 (2002)
- Arnaud C, "Parent-report quality of life of children with cerebral palsy in Europe", Pediatrics, 121, pp.54~64 (2008)
- Beardslee WR, "Preventive intervention with the children of depressed parents. A case study", Psychoanal Study Child, 48, pp.249~276 (1993)