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학령기 경직성 뇌성마비 아동 부모의 삶의 질과 아동의 삶의 질 및 기능과 일상생활활동 수행 수준의 관련성

Relationship Among Parents’ Quality of Life, Functional Level, Performance in the Activities of Daily Living, and the Quality of Life in School-aged Children With Spastic Cerebral Palsy

오덕원|이예슬
한국전문물리치료학회 (Korean Research Society of Physical Therapy)|2017.02|한국전문물리치료학회지 (Physical Therapy Korea)|제24권 제1호|pp. 51-60|DOI https://doi.org/10.12674/ptk.2017.24.1.051

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참고문헌

키워드

FunctionQuality of lifeActivities of daily livingSchool-aged cerebral palsy
주제분류물리치료학

초록

Background: In cerebral palsy (CP), parents’ quality of life and rearing attitude are considered possible factors that influence patients’ quality of life, function level, and performance in daily activities. Despite these facts, little attention has been given to demonstrate a relation between these factors. Objects: This study aimed to demonstrate the relationship between parents’ quality of life, functional level, and performance in daily activities, the quality of life of school-aged children with spastic CP. Methods: This study included 24 parents of school-aged children with spastic CP. The KIDSCREEN-52 and World Health Organization quality of life (WHOQOL)-BREF questionnaires (including physical, psychological, social, and environmental domains) were used as research tools to assess the quality-of-life profiles of the children with spastic CP and those of their parents, respectively. In addition, the function levels and performance in daily activities of the children with CP were assessed by using the gross motor function measure (GMFM) and modified Barthel index (MBI). Correlation and multiple regression analyses were performed to clarify the determinants of the quality of life of the children with CP. Results: The KIDSCREEN-52 score correlated with the total score (r=.735, p<.01) and all domains of the WHOQOL-BREF questionnaire (physical: r=.542, p<.01; psychological: r=.690, p<.01; social: r=.568, p<.01; and environmental: r=.783, p<.01). In addition, significant correlation was found between the KIDSCREEN-52 and MBI scores (r=.411, p<.05), and between the MBI and GMFM scores (r=.427, p<.05). After controlling for age, gender, paralytic type, GMFM, and MBI, the WHOQOL-BREF score (R2=.621), particularly in the environmental domain (R2=.699), remained independently related to the quality of life of the children. Conclusion: These findings suggest that the quality of life of school-aged children with spastic CP can be influenced by the quality of life of their parents. This study provides useful information for future studies to investigate the quality of life of children with CP.

Abstract

Background: In cerebral palsy (CP), parents’ quality of life and rearing attitude are considered possible factors that influence patients’ quality of life, function level, and performance in daily activities. Despite these facts, little attention has been given to demonstrate a relation between these factors. Objects: This study aimed to demonstrate the relationship between parents’ quality of life, functional level, and performance in daily activities, the quality of life of school-aged children with spastic CP. Methods: This study included 24 parents of school-aged children with spastic CP. The KIDSCREEN-52 and World Health Organization quality of life (WHOQOL)-BREF questionnaires (including physical, psychological, social, and environmental domains) were used as research tools to assess the quality-of-life profiles of the children with spastic CP and those of their parents, respectively. In addition, the function levels and performance in daily activities of the children with CP were assessed by using the gross motor function measure (GMFM) and modified Barthel index (MBI). Correlation and multiple regression analyses were performed to clarify the determinants of the quality of life of the children with CP. Results: The KIDSCREEN-52 score correlated with the total score (r=.735, p<.01) and all domains of the WHOQOL-BREF questionnaire (physical: r=.542, p<.01; psychological: r=.690, p<.01; social: r=.568, p<.01; and environmental: r=.783, p<.01). In addition, significant correlation was found between the KIDSCREEN-52 and MBI scores (r=.411, p<.05), and between the MBI and GMFM scores (r=.427, p<.05). After controlling for age, gender, paralytic type, GMFM, and MBI, the WHOQOL-BREF score (R2=.621), particularly in the environmental domain (R2=.699), remained independently related to the quality of life of the children. Conclusion: These findings suggest that the quality of life of school-aged children with spastic CP can be influenced by the quality of life of their parents. This study provides useful information for future studies to investigate the quality of life of children with CP.

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관련 논문AI추천

Effect of gross motor function level and age on parents’ life satisfaction and stress in children with cerebral palsy성윤희, 하선영한국운동재활복지협회 · 운동재활·복지2024 · 제5권 제2호중증뇌성마비 아동의 건강관련 삶의 질고주연, 김민영, 이병희대한재활의학회 · Annals of Rehabilitation Medicine2009 · 제33권 제4호학령기 뇌성마비 아동의 삶의 질에 대한 연구이병희, 이재원, 정은정특수교육재활과학연구소 · 특수교육재활과학연구2013 · 제52권 제2호뇌성마비 환아 중증도별 시각화척도, 시간교환법, EQ-5D-Y Proxy를 이용한 삶의 질 측정김남권, 김정훈, 왕혜민, 윤영주, 이고은, 이동효대한한방신경정신과학회 · 동의신경정신과학회지2017 · 제28권 제2호뇌성마비 아동의 기능 수준, 어머니의 양육스트레스, 가족 환경 간의 관계에 대한 경로 분석박은영한국지체·중복·건강장애교육학회 · 지체.중복.건강장애연구2012 · 제55권 제3호Factors affecting the health-related quality of life of children with cerebral palsy in Indonesia: a cross-sectional studyAde Febrina Lestari, Firda Ridhayani, Mei Neni Sitaresmi, Retno Sutomo한국아동간호학회 · Child Health Nursing Research2024 · 제30권 제1호

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