뇌성마비 환아 중증도별 시각화척도, 시간교환법, EQ-5D-Y Proxy를 이용한 삶의 질 측정
Measuring Quality of Life in Cerebral Palsy Children According to the Severity Using the Visual Analogue Scale, Time Trade-Off, and EQ-5D-Y Proxy
1
조회
0
다운로드
0
인용
0
참고문헌
키워드
초록
Objectives: To measure the quality of life in patients according to virtual cerebral palsy severity by us-ing the Korean version of EQ-5D-Y proxy, Visual Analogue Scale (VAS), and Time Trade-Off method (TTO).Methods: The study was conducted in parents of children and adolescents aged 4 to 15 years in Seoul. We analyzed the difference in the utility value according to five levels of cerebral palsy severity in the Gross Motor Function Classification System (GMFCS) and test-retest reliability.Results: 1. There were significant differences in VAS, TTO, and EQ-5D-Y proxy according to the cerebral palsy severity (p＜.001). 2. VAS was significantly different according to the respondent's visit to the medical institution, the presence of disease in the respondent, a visit to the child's medical institution, the age of the child, and the sex of the child. The value of TTO was significantly different according to the respondent's visit to the medical institution, respondent's sex, and the age of the child. Also, EQ-5D-Y proxy was significantly different according to the age of the child. 3. Intraclass correlation coefficient values were more than 0.6 for both VAS and TTO at all stages. But for the EQ-5D-Y proxy, the value was less than 0.6 at all stages.Conclusions: The quality of life assessment using EQ-5D-Y proxy showed significant differences in the severity of cerebral palsy. However, large-scale studies using EQ-5D-Y proxy are needed because of low test-retest reliability.
Abstract
Objectives: To measure the quality of life in patients according to virtual cerebral palsy severity by us-ing the Korean version of EQ-5D-Y proxy, Visual Analogue Scale (VAS), and Time Trade-Off method (TTO).Methods: The study was conducted in parents of children and adolescents aged 4 to 15 years in Seoul. We analyzed the difference in the utility value according to five levels of cerebral palsy severity in the Gross Motor Function Classification System (GMFCS) and test-retest reliability.Results: 1. There were significant differences in VAS, TTO, and EQ-5D-Y proxy according to the cerebral palsy severity (p＜.001). 2. VAS was significantly different according to the respondent's visit to the medical institution, the presence of disease in the respondent, a visit to the child's medical institution, the age of the child, and the sex of the child. The value of TTO was significantly different according to the respondent's visit to the medical institution, respondent's sex, and the age of the child. Also, EQ-5D-Y proxy was significantly different according to the age of the child. 3. Intraclass correlation coefficient values were more than 0.6 for both VAS and TTO at all stages. But for the EQ-5D-Y proxy, the value was less than 0.6 at all stages.Conclusions: The quality of life assessment using EQ-5D-Y proxy showed significant differences in the severity of cerebral palsy. However, large-scale studies using EQ-5D-Y proxy are needed because of low test-retest reliability.
참고문헌 (28)
- Park CI, "Rehabilitation Medicine", pp.936~ (2007), Hanmi medicine
- Peter R, "A report: the definition and classification of cerebral palsy April. 2006", Dev Med Child Neurol, 109, pp.8~14 (2007)
- Else O, "The epidemiology of cerebral palsy: incidence, impairments and risk factors", Disability and rehabilitation, 28(4), pp.183~191 (2006)
- Maryam O, "An update on the prevalence of cerebral palsy: a systematic review and meta‐analysis", Developmental Medicine & Child Neurology, 55(6), pp.509~519 (2013)
- Geraldine S, "Children with cerebral palsy: severity and trends over time", Paediatric and perinatal epidemiology, 23(6), pp.513~521 (2009)
- Novak, I, "Evidence-based diagnosis, health care, and rehabilitation for children with cerebral palsy", Journal of child neurology, 29(8), pp.1141~1156 (2014)
- David S, "Survival in cerebral palsy in the last 20 years: signs of improvement?", Developmental Medicine & Child Neurology, 49(2), pp.86~92 (2007)
- Reading, R, "Survival at 19 years of age in a total population of children and young people with cerebral palsy", Child: care, health and development, 38(2), pp.300~301 (2012)
- Antonio T, "Multidisciplinary rehabilitation for patients with cerebral palsy: im -proving long-term care", Journal of Multidisciplinary Healthcare, 9, pp.455~ (2016)
- 윤영주, "뇌성마비로 인한 발달지연 아동의 한방치료 3례", 대한한방소아과학회지, 31(1), pp.82~91 (2017), 대한한방소아과학회
- 유선애, "강직성 뇌성마비의 침자치료에 대한 문헌고찰 - 최근 중의잡지를 중심으로 -", 대한한방소아과학회지, 29(4), pp.108~118 (2015), 대한한방소아과학회
- 정민정, "양방치료를 받고 있는 신경계질환아동에서 한방치료 및 기타 병행치료 이용실태에 관한 조사", 대한한방소아과학회지, 26(2), pp.72~84 (2012), 대한한방소아과학회
- Michael H L, "Quality of life among adolescents with cerebral palsy: what does the literature tell us?", Developmental Medicine & Child Neurology, 49(3), pp.225~231 (2007)
- Elise D, "Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents", Developmental Medicine & Child Neurology, 51(3), pp.193~199 (2009)
- 조성미, "부모의 보고에 의한 강직성 뇌성마비 아동의 신체적 기능수준에 따른 삶의 질 비교", 대한작업치료학회지, 17(1), pp.29~37 (2009), 대한작업치료학회
- 이병희, "학령기 중증 뇌성마비아동의 건강관련 삶의 질에 관한 연구", 코칭능력개발지, 9(1), pp.207~217 (2007), 한국코칭능력개발원
- Nancy J D, "EQ-5D and the EuroQol Group:Past, Present and Future", Applied Health Economics and Health Policy, pp.1~11 (2017)
- Nora W, "Development of the EQ-5D-Y: a child-friendly version of the EQ-5D", Quality of Life Research, 19(6), pp.875~886 (2010)
- Robert J P, "Validation of a model of gross motor function for children with cerebral palsy", Physical therapy, 80(10), pp.974~ (2000)
- Ellen W, "The gross motor function classification system for cerebral palsy: a study of reliability and stability over time", Developmental Medicine & Child Neurology, 42(05), pp.292~296 (2000)
- 임승지, "시간교환법과 시각화척도 방법을 이용한 폐경 후 에스트로겐 결핍증에 대한 효용 측정", 보건행정학회지, 17(4), pp.113~133 (2007), 한국보건행정학회
- 이재원, "학령기 뇌성마비 아동의 삶의 질에 대한 연구", 특수교육재활과학연구, 52(2), pp.281~296 (2013), 특수교육재활과학연구소
- 조성미, "학령기 뇌성마비 아동의 삶의 질과 일상활동참여도에 관한 연구", 대한작업치료학회지, 18(2), pp.95~106 (2010), 대한작업치료학회
- 이병희, "정신지체아동 및 뇌성마비아동의 건강관련 삶의 질에 미치는 영향 요인 탐색", 특수교육재활과학연구, 49(2), pp.105~126 (2010), 특수교육재활과학연구소
- Bjornson, KF, "The measurement of healthrelated quality of life (HRQL) in children with cerebral palsy", European Journal of Neurology, 8(s5), pp.183~193 (2001)
- Saroj S, "Parental perspectives of the health status and health-related quality of life of teen-aged children who were extremely low birth weight and term controls", Pediatrics, 105(3), pp.569~574 (2000)
- James W V, "Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children", Developmental Medicine & Child Neurology, 47(09), pp.592~597 (2005)
- Davis, E, "Parent proxy-reported quality of life for children with cerebral palsy: is it related to parental psychosocial distress?", Child: care, health and development, 38(4), pp.553~560 (2012)