Validity and Reliability of the Korean Version of the Parkinson’s Disease Questionnaire–Carer
2
조회
0
다운로드
0
인용
0
참고문헌
키워드
초록
Background and Purpose The importance of the quality of life (QOL) of carers has been increasingly recognized as it has a wide range of effects on the psychological, emotional, and social outcomes of patients with Parkinson’s disease (PD). Understanding their QOL is important as it reflects their unique characteristics; however, there have been few studies on this in Korea. This study aimed to translate and validate the Korean version of the Parkinson’s Disease Questionnaire–Carer (PDQ-Carer). Methods This was a methodological study that included a translation process and a crosssectional investigation. The Korean version of the scale was developed using back translation, semantic adjustment, and pretests. The final version was self-administered by 125 Korean family carers. Cronbach’s alpha values were used to assess the internal consistency of the PDQ-Carer. Exploratory and confirmatory factor analyses were used to validate the translated scale. Results Exploratory factor analysis identified four factors that accounted for 64.51% of the variance. A modified model using modification indices was found to fit the data well in the confirmatory factor analysis. That factor analysis supported the structure of the original four factors with relocation of several items that reflected Korean culture. Cronbach’s alpha values were 0.96 for the total scale, 0.93 for personal and social activities, 0.89 for strain, 0.85 for anxiety and depression, and 0.85 for self-care. Conclusions This study verified that the Korean version of the PDQ-Carer can be used to acquire important information about the multidimensional aspects of the QOL of Korean carers for patients with PD.
Abstract
Background and Purpose The importance of the quality of life (QOL) of carers has been increasingly recognized as it has a wide range of effects on the psychological, emotional, and social outcomes of patients with Parkinson’s disease (PD). Understanding their QOL is important as it reflects their unique characteristics; however, there have been few studies on this in Korea. This study aimed to translate and validate the Korean version of the Parkinson’s Disease Questionnaire–Carer (PDQ-Carer). Methods This was a methodological study that included a translation process and a crosssectional investigation. The Korean version of the scale was developed using back translation, semantic adjustment, and pretests. The final version was self-administered by 125 Korean family carers. Cronbach’s alpha values were used to assess the internal consistency of the PDQ-Carer. Exploratory and confirmatory factor analyses were used to validate the translated scale. Results Exploratory factor analysis identified four factors that accounted for 64.51% of the variance. A modified model using modification indices was found to fit the data well in the confirmatory factor analysis. That factor analysis supported the structure of the original four factors with relocation of several items that reflected Korean culture. Cronbach’s alpha values were 0.96 for the total scale, 0.93 for personal and social activities, 0.89 for strain, 0.85 for anxiety and depression, and 0.85 for self-care. Conclusions This study verified that the Korean version of the PDQ-Carer can be used to acquire important information about the multidimensional aspects of the QOL of Korean carers for patients with PD.
참고문헌 (46)
- Ascherio A, "The epidemiology of Parkinson’s disease : risk factors and prevention", Lancet Neurol, 15, pp.1257~1272 (2016)
- Wolff JL, "Family caregivers of older adults, 1999-2015 : trends in characteristics, circumstances, and role-related appraisal", Gerontologist, 58, pp.1021~1032 (2018)
- Zhong M, "The relationship between specific cognitive defects and burden of care in Parkinson’s disease", Int Psychogeriatr, 28, pp.275~281 (2016)
- Page TE, "Instruments measuring the disease-specific quality of life of family carers of people with neurodegenerative diseases : a systematic review", BMJ Open, 7, pp.e013611~ (2017)
- The Pittsburgh regional caregivers survey, "The University of Pittsburgh", University Center for Social & Urban Research at the University of Pittsburgh, ~ (2017)
- Miyawaki CE, "A review of ethnicity, culture, and acculturation among Asian caregivers of older adults(2000-2012)", Sage Open, 5, pp.1~29 (2015)
- 윤수경, "혈액투석환자 가족의 부담감, 사회적 지지 및 삶의 질", 임상간호연구, 20(3), pp.395~405 (2014), 병원간호사회
- 조연실, "재가 와상 환자를 돌보는 노인배우자의 경험", 성인간호학회지, 29(1), pp.63~75 (2017), 한국성인간호학회[DOI]
- 이순미, "남성노인의 배우자 돌봄에 대한 연구: 부부가구 노인의 생애서사 분석을 중심으로", 가족과 문화, 21(4), pp.63~94 (2009), 한국가족학회[DOI]
- Chen ML, "The growing costs and burden of family caregiving of older adults : a review of paid sick leave and family leave policies", Gerontologist, 56, pp.391~396 (2016)
- Jacobs JC, "Caregiving intensity and retirement status in Canada", Soc Sci Med, 102, pp.74~82 (2014)
- Thrush A, "The neglected burden of caregiving in low-and middle-income countries", Disabil Health J, 7, pp.262~272 (2014)
- Cifu DX, "Caregiver distress in parkinsonism", J Rehabil Res Dev, 43, pp.499~508 (2006)
- The Whoqol Group, "The World Health Organization quality of life assessment(WHOQOL) : development and general psychometric properties", Soc Sci Med, 46, pp.1569~1585 (1998)
- Pillas M, "Development and validation of a carers quality-of-life questionnaire for parkinsonism(PQoL carers)", Qual Life Res, 25, pp.81~88 (2016)
- Jenkinson C, "The development and validation of a quality of life measure for the carers of people with Parkinson’s disease(the PDQ-carer)", Parkinsonism Relat Disord, 18, pp.483~487 (2012)
- Ferrer-Cascales R, "Spanish version of the Parkinson’s disease questionnaire-carer(PDQ-Carer)", Health Qual Life Outcomes, 14, pp.154~ (2016)
- Lageman SK, "Caregiver-identified needs and barriers to care in Parkinson’s disease", Geriatr Nurs, 36, pp.197~201 (2015)
- Hannink K, "A randomized controlled efficacy study of the Medido medication dispenser in Parkinson’s disease", BMC Geriatr, 19, pp.273~ (2019)
- Brislin RW, "Back-translation for cross-cultural research", J Cross Cult Psychol, 1, pp.185~216 (1970)
- Maneesriwongul W, "Instrument translation process : a methods review", J Adv Nurs, 48, pp.175~186 (2004)
- Castro AR, ""Informal caregiver"in nursing : an evolutionary concept analysis", ANS Adv Nurs Sci, 46, pp.E29~E42 (2023)
- Sullivan AB, "Who is taking care of the caregiver?", J Patient Exp, 2, pp.7~12 (2015)
- Abendroth M, "Psychometric testing and modification of the Parkinson’s disease caregiver strain risk screen", J Nurs Meas, 24, pp.281~295 (2016)
- Family caregiving in the U.S.: findings from a national survey, "National Alliance for Caregiving", National Alliance for Caregiving, ~ (1997)
- Van Houtven CH, "An organizing framework for informal caregiver interventions : detailing caregiving activities and caregiver and care recipient outcomes to optimize evaluation efforts", BMC Geriatr, 11, pp.77~ (2011)
- Hair JF, "Multivariate data analysis: a global perspective" (2010), Pearson Education
- Tak JK, "Psychological testing: an understanding of development and evaluation method" (2007), Hakjisa
- Tabachnick BG, "Using multivariate statistics", pp.2007, Pearson
- Polit DF, "Nursing research: principles and methods" (2004), Lippincott Williams & Wilkins
- Cronbach LJ, "Coefficient alpha and the internal structure of tests", Psychometrika, 16, pp.297~334 (1951)
- Van Prooijen JW, "Confirmatory analysis of exploratively obtained factor structures", Educ Psychol Meas, 61, pp.777~792 (2001)
- Kline RB, "The SAGE Handbook of Innovation in Social Research Methods", pp.562~ (2011), SAGE Publications Ltd
- Hair JF, "Multivariate data analysis" (1998), Prentice Hall
- Lee H, "Self-efficacy for coping with cancer : psychometric properties of the cancer behavior inventory version 3. 0 – Korean", Eur J Oncol Nurs, 52, pp.101957~ (2021)
- Tsuchiya-Ito R, "The revised index for social engagement(RISE)in long-term care facilities : reliability and validity in Japan", Psychogeriatrics, 22, pp.122~131 (2022)
- Wongpakaran T, "Confirmatory factor analysis of the revised version of the Thai multidimensional scale of perceived social support among the elderly with depression", Aging Ment Health, 22, pp.1143~1148 (2018)
- Engelhard Jr G, "Goodness of model-data fit and invariant measurement", Measurement, 11, pp.112~116 (2013)
- Wang S, "Factors associated with caregiving appraisal of informal caregivers : a systematic review", J Clin Nurs, 29, pp.3201~3221 (2020)
- Lee J, "Korean version of the revised caregiving appraisal scale : a translation and validation study", J Adv Nurs, 59, pp.407~415 (2007)
- 권희경, "중환자실에서 일반병동으로 전실하는 환자 가족 돌봄제공자의 역할 적응 과정: 희망과 두려움 속에서 반(半)간호사 되어가기", 성인간호학회지, 26(6), pp.603~613 (2014), 한국성인간호학회[DOI]
- 진주혜, "입원한 암 환자 가족 돌봄제공자의 디스트레스 경험", 성인간호학회지, 29(5), pp.451~462 (2017), 한국성인간호학회[DOI]
- Braithwaite V, "Caregiving burden : making the concept scientifically useful and policy relevant", Res Aging, 14, pp.3~27 (1992)
- Sabo K, "Self-care needs and practices for the older adult caregiver : an integrative review", Geriatr Nurs, 42, pp.570~581 (2021)
- Choi-Kwon S, "Comparing perceived burden for Korean and American informal caregivers of stroke survivors", Rehabil Nurs, 34, pp.141~150 (2009)
- 김은정, "한국 요양시설 노인의 주 돌봄자 부담감에 대한 통합적 고찰", 디지털융복합연구, 17(6), pp.267~277 (2019), 한국디지털정책학회[DOI]