장애부모를 둔 비장애 아동의 행복한 삶에 대한 현상학적 연구
A Phenomenological Study on the Happy Life of Non-disabled Children
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본 연구는 복지관을 이용하는 장애부모를 둔 비장애 아동들을 대상으로 현상학적 연구방법을 통해 장애부모를 둔 비장애 아동의 행복한 삶의 본질적 의미를 밝히고자 시도되었다. 그 결과 행복한 삶과 관련된 76개 의미 있는 진술, 20개의 주제 8개의 범주가 도출 되었으며 아동이 행복한 삶의 본질적인 의미로는 ‘부모님이 행복해 하는 삶’,‘ 부모가 인정받는 삶’, ‘부모님이 건강한 삶’ ‘다른 가족과 다를 것이 없는 삶’ 4개의 범주로 나타났고, 아동이 행복한 삶을 살기 조건으로는 ‘경제적으로 안정된 삶’, ‘장애에 대한 인식이 긍정적인 사람과의 만남의 삶’ ‘함께 여행하는 삶’,‘‘아동으로 인정받는 삶’ 으로 나타났다. 이를 통해 볼 때 아동들에게는 이 시기가 중요한 만큼 더욱더 행복한 삶을 느낄 수 있는 개입방안과 장애인을 바라보는 인식개선 및 옹호자의 역할이 절실히 필요하다고 본다.
Abstract
This study attempted to reveal the essential meaning of happy life for non-disabled children with disabled parents through a phenomenological research method for non-disabled children with disabled parents using welfare centers. As a result, 76 meaningful statements related to a happy life, eight categories of 20 topics have been drawn up, and the essential meaning of a happy life for a child is 'a happy life for parents', 'a life where parents are recognized' and 'a life where parents are no different from other families,' and 'a life where a child is living happily' as an 'economically stable life' and 'a life with disabilities' As such, I believe that since this period is important for children, there is a pressing need for ways to intervene and improve awareness of the disabled and the role of life.
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