자폐스펙트럼장애 자녀를 둔 어머니의 응용행동분석 기반 중재 경험에 관한 내러티브 탐구
Narrative Inquiry Study on Mothers’ Experiences of Applied Behavior Analysis Based Intervention for Their Children with Autism Spectrum Disorder
0
조회
0
다운로드
8
인용
0
참고문헌
키워드
초록
현재 자폐스펙트럼장애인을 대상으로 한 ABA 기반 중재의 긍정적인 효과는 세계적으로 인정되고 있으나 한편으로는 그와 상충되는 연구 결과들도 제시되고 있다. 본 연구는 이와 같은 상이한 연구 결과들을 심도 있게 이해하며 아울러 ABA 기반 중재가 우리나라의 생태학적 체계 내에서 적용되기 위해 어떠한 면이 고려되어야 하는가를 이해하고자 탈실증주의적 접근의 연구 방법을 선택하여 접근하고자 하였다. 우리나라에서는 아직 ABA 기반 중재에 대한 공적 시행이 이루어지지 않은 점을 고려하여 현재 미국에 거주하면서 응용행동분석 기반 중재를 2년 이상 자폐스펙트럼장애 자녀에게 실시한 경험이 있는 4명의 어머니들을 대상으로 면담을 실시하였으며, 응용행동분석 기반 중재가 자폐스펙트럼장애 개인이나 가족의 삶에서 어떤 의미를 지니는지, 구체적으로 아동이나 가족의 삶의 질에 어떠한 변화가 있었는지, 또한 중재 실시의 어려운 점은 어떠한 것인지 등에 대한 이야기를 듣고자 하였다. 결론적으로 연구참여자들은 ABA 기반 중재 초기 혹은 과정 중에서 적응적 및 관계적 ‘어려움’을 직면하였으나 점차 중재를 통해 자녀, 자신, 가족의 ‘삶의 변화’를 경험하게 되었다. 연구자는 연구참여자들의 경험을 통해 ABA 기반 중재 적용의 어려움에도 불구하고 긍정적인 효과를 얻을 수 있게 된 ‘효과적인 중재 실행 요인 6가지’를 도출하였으며, 본 연구를 통해 얻게 된 주요 연구결과에 대한 논의를 통해 임상가들과 ABA 기반 중재자 및 정책입안자들을 위한 시사점들을 제시하였다.
Abstract
Applied Behavior Analysis(ABA) based programs are endorsed as a gold standard for treatment of children with Autism Spectrum Disorder(ASD) in North America. This is unusual in South Korea, where instead a non-specified eclectic approach is commonly adopted. I explored the social validity of ABA-based interventions with 4 Korean families who have lived over 6 years in the USA and experienced ABA-based programs for their own children with ASD at home, school, or regional center. Even though they had faced various difficulties while adapting to ABA based intervention, they had experienced the a lot of positive changes in their lives. I could find 6 kinds of effective factors that had an impact on the results of ABA-based intervention. I discussed these results in depth on the basis of lots of researches on ABA-based intervention on individuals with Autism Spectrum Disorder and suggested some implications for the national policies in Korea on ASD, ABA-related professions, and ABA-related profession training institutions in Korea.
참고문헌 (63)
- 권지성, "사회복지 연구와 연구 참여자 권리보호", 한국사회복지학회 창립 50주년 기념 세계학술대회 자료집 (2007)
- 김건희, "미국 행동분석가의 자격기준 체계와 활동 현황", 정서·행동장애연구, 30(3), pp.247~272 (2014), 한국정서·행동장애아교육학회
- 김영천, "질적연구방법론 I" (2006), 문음사
- 박계신, "학교차원 긍정적 행동지원 적용 자문 경험에 대한 자문화기술지", 정서·행동장애연구, 29(4), pp.361~397 (2013), 한국정서·행동장애아교육학회
- 박계신, "국내 행동치료관련 인력 양성 체제 분석 및 국가자격화를 위한 방안 모색", 특수교육재활과학연구, 53(2), pp.39~68 (2014), 특수교육재활과학연구소[DOI]
- 박계신, "국내 행동치료관련 인력 양성, 배치 및 서비스 제공 현황", 정서·행동장애연구, 30(2), pp.1~27 (2014), 한국정서·행동장애아교육학회
- 박정미, "장애인가족의 탄력성 증진을 위한 가족지원 프로그램 연구", 석사, 평생교육전공, pp.2014
- 염지숙, "교육 연구에서 내러티브 탐구(Narrative Inquiry)의 개념, 절차, 그리고 딜레마", 교육인류학연구, 6(1), pp.119~140 (2003)
- 이상복, "행동치료의 역사적 고찰과 국·내외 관련 자격 현황 분석에 따른 전망과 과제", 정서·행동장애연구, 24(2), pp.175~193 (2008), 한국정서·행동장애아교육학회
- 이상훈, "행동치료 전문가 양성에 관한 고찰", 정서·행동장애연구, 24(1), pp.65~86 (2008), 한국정서·행동장애아교육학회
- 조영달, "제도공간의 질적 연구 방법론" (2005), 교육과학사
- 조윤경, "아시아계 다문화 가정의 장애 유아 어머니의 어려움과 지원요구 분석", 유아특수교육연구, 15(3), pp.127~155 (2015), 한국유아특수교육학회
- 홍현미라, "사회복지 질적 연구방법론의 실제" (2008), 학지사
- Barton, E. E., "자폐스펙트럼장애 유아 교육의 이론과 실제" (2015), 시그마프레스
- Bimbrauer, J. S., "The murdoch early intervention program after two years", Behaviour Change, 10(2), pp.63~74 (1993)
- Cattell-Gordon, D., "The development of an effective applied behavioral analysis program for a young child with autism : A parent’s perspective", Infants and Young Children, 10(3), pp.79~85 (1998)
- Chasson, G. S., "Cost comparison of early intensive behavioral intervention and special education for children with autism", Journal of Child and Family Studies, 16(3), pp.401~413 (2007)
- Chiesa, M., "Applied behaviour analysis and autism: Building a future together", pp.255~240 (2005), Jessica Kingsley
- Clandinin, D. J., "내러티브 탐구: 교육에서의 질적 연구의 경험과 사례" (2007), 교육과학사
- Cole, K. N., "Individual differences in language delayed children’s responses to direct and interactive preschool instruction. Topics in Early childhood", Special Education, 11(1), pp.99~124 (1991)
- Dillenburger, K., "The emperor’s new clothes : Eclecticism in autism treatment", Research in Autism Spectrum Disorders, 5(3), pp.1119~1128 (2011)
- Dillenburger, K., "ABA-Based programs for children diagnosed with autism spectrum disorder : Parental and professional experiences at school and at home", Children & Family Behavior Therapy, 34(2), pp.111~129 (2012)
- Eikeseth, S., "Intensive behavioral treatment at school for 4-to 7-year-old children with autism : A 1-year comparison controlled study", Behavior Modification, 26(1), pp.49~68 (2002)
- Filcheck, H., "Using a whole-class token economy and coaching of teacher skills in a preschool classroom to manage disruptive behavior", Psychology in the Schools, 41(3), pp.351~361 (2004)
- Fixsen, D. L., "Implementation research: A synthesis of the literature" (2005), University of South Florida, Louis de la Parte Florida Mental Health Institute, the National Implementation Research Network
- Gabriels, R. L., "Predictors of treatment outcome in young children with autism : A retrospective study", Autism : The International Journal of Research and Practice, 5(4), pp.407~429 (2001)
- Green, G., "Behavioral intervention for young children with autism: A manual for parents and professionals", pp.29~45 (1996), Pro-Ed
- Grindle, C. F., "Parents’ experiences of home-based applied behavior analysis programs for young children with autism", Journal of Autism and Developmental Disorders, 39(1), pp.42~56 (2008)
- Hastings, R. P., "Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism", Journal of Autism and Developmental Disorders, 31(3), pp.327~336 (2001)
- Heflin. L. J., "자폐 범주성 장애 아동 교육의 실제" (2010), 시그마 프레스
- Hollander, E., "A dimensional approach to the autism spectrum", CNS Spectrums, 3(3), pp.22~39 (1998)
- Horn, E. M., "가족 기반의 실제" (2011), 학지사
- Howard, J. S., "A comparison of intensive behavior analytic and eclectic treatments for young children with autism", Research in Developmental Disabilities, 26(4), pp.359~383 (2005)
- Hung, D. W., "Cost and effectiveness of an educational program for autistic children using a systems approach", Education and Treatment of Children, 6(1), pp.47~68 (1983)
- Iovannone, R., "Effective educational practices for students with autism spectrum disorders", Focus on Autism and Other Developmental Disabilities, 18(3), pp.150~165 (2003)
- Kazdin, A. E., "Replication and extension of behavioral treatment of autistic disorder", American Journal on Mental Retardation, 97(4), pp.377~379 (1993)
- Meeting the needs of families living with children diagnosed with autism spectrum disorder, "Keenan, M.", University of Ulster, 184~, pp.Final Report (2007)
- Keenan, M. ., "Science for sale in a free market economy : but at what price? ABA and the treatment of autism in Europe", Behavior and Social Issues, 19, pp.124~141 (2010)
- Kretlow, A. G., "Using coaching to improve the fidelity of evidence-based practices : A review of studies", Teacher Education and Special Education, 33(4), pp.279~299 (2010)
- Kretlow, A. G., "Using in-service and coaching to increase Kindergarten teachers’ accurate delivery of group instructional units", Journal of Special Education, 44(4), pp.234~246 (2011)
- Larsson, E., "Applied behavior analysis and autism: Building a future together", pp.255~288 (2005), Jessica Kingsley
- Lord, C., "Autism spectrum disorders", Neuron, 28(2), pp.355~363 (2000)
- Lord, C., "The autism diagnostic observation schedule-generic : A standard measure of social and communication deficits associated with the spectrum of autism", Journal of Autism and Developmental Disorders, 30(3), pp.205~223 (2000)
- Lovaas, O. I., "Behavioral treatment and normal educational and intellectual functioning in young autistic children", Journal of Consulting and Clinical Psychology, 55(1), pp.3~9 (1987)
- Lovaas, O. I., "Behavioral intervention for young children with autism: A manual for parents and professionals", pp.241~248 (1996), Pro-Ed
- Matson, J. L., "Behavioral treatment of autistic persons : a review of research from 1980 to the present", Research in Developmental Disabilities, 17(6), pp.433~465 (1996)
- Maurice, C., "Behavioral interventions for young children with autism: A manual for parents and professionals" (1996), PRO-ED
- McPhilemy, C., "Parent’s experiences of applied behavior analysis(ABA)-based interventions for children diagnosed with autistic spectrum disorder", British Journal of Special Education, 40(4), pp.154~161 (2013)
- Morris, E. K., "A case study in the misrepresentation of applied behavior analysis in autism : The Gernsbacher lectures", The Behavior Analyst, 32(1), pp.205~240 (2009)
- Motiwala, S. S., "The cost-effectiveness of expanding intensive behavioural intervention to all autistic children in Ontario", Healthc Policy, 1(2), pp.135~151 (2006)
- "National standards project" (2009)[URL]
- Padgett, D. K., "사회복지 질적 연구방법론" (2001), 나남
- Perry, A., "Evidence-based practices for children and adolescents with autism spectrum disorders: Review of the literature and practice guide" (2003), Children’s Mental Health Ontario
- Rapin, I., "Developmental dysphasia and autism in preschool children: characteristics and subtypes", Proceedings of the first international symposium on specific speech and language disorders in children, pp.20~35 (1987), AFASIC
- Remington, B., "Early intensive behavioral intervention : Outcomes for children with autism and their parents after two years", American Journal on Mental Retardation, 112(6), pp.418~438 (2007)
- Ridge, K., "Irish clinicians’ views of interventions for children with autistic spectrum disorders", Autism : The National Autistic Society, 15(2), pp.239~252 (2011)
- Sallows, G. O., "Intensive behavioral treatment for children with autism : Four-year outcome and predictors", American Journal on Mental Retardation, 110(6), pp.417~438 (2005)
- Savin-Baden, M., "Narrative inquiry : Theory and practice", Journal of Geography in Higher Education, 31(3), pp.459~472 (2007)
- "Autism edition: Training tool for parents and professionals" (2012)[URL]
- Smith, T., "Randomized trial of intensive early intervention for children with pervasive developmental disorder", American Journal of Mental Retardation, 105(4), pp.269~285 (2000)
- Solity, J., "An overview of behavioral approaches to teaching children with learning difficulties and the national curriculum", Educational Psychology, 11(2), pp.151~167 (1991)
- Swanson, H. L., "A meta-analysis of single-subject-design intervention research for students with LD", Journal of Learning Disabilities, 33(2), pp.114~136 (2000)
- Zachor, D. A., "Change in autism core symptoms with intervention", Research in Autism Spectrum Disorders, 1(4), pp.304~317 (2007)
