본문 바로가기
KERD
논문KCI 등재

장애학생의 지적장애 어머니를 위한 가정기반 양육지원이 어머니의 양육스트레스와 양육효능감에 미치는 영향에 관한 사례연구

A Case Study on Benefits of a Home-based Parenting Support Program for Mothers with Intellectual Disabilities of Students with Disabilities on Mothers’ Parenting Stress and Parental Efficacy

0

조회

0

다운로드

13

인용

0

참고문헌

키워드

초록

지적장애 부모는 자녀 양육에 필요한 지식이나 기술의 부족으로 양육에 있어 어려움을 경험하는 경우가 많으며 자녀 또한 장애가 있는 경우 양육에 대한 부담과 스트레스가 가중된다. 본 사례연구는 장애학생의 지적장애 어머니를 위한 가정기반 양육지원이 어머니의 양육스트레스와 양육효능감에 미치는 영향을 살펴보고자 수행되었다. 연구 참여자는 장애자녀를 양육하고 있는 지적장애 어머니 3명으로, 각 어머니의 특성 및 가정별 상황, 자녀의 장애를 고려하여 개별화된 가정기반 양육지원을 10회기에 걸쳐 실시하였다. 사전 ․ 사후검사결과 및 필드노트 내용을 바탕으로 어머니의 변화를 살펴본 결과, 3명의 어머니 모두 양육스트레스와 양육효능감에서 긍정적인 변화를 보였다. 본 연구는 어머니와 자녀 모두 장애를 가진 가정에 적용 가능한 가정기반 양육지원의 모델을 제시하고 그 효과를 검증하여 이들을 위한 지원체계 및 서비스 개발의 단초를 제공하였다는 점에 그 의의가 있다.

Abstract

Parents who have intellectual disabilities have a tendency to experience difficulties in raising their children due to insufficient knowledge and skills required for parenting. Especially when their children also have disabilities, their burden and stress are heightened. The purpose of this case study is to examine the benefits of a home-based parenting support program for mothers with intellectual disabilities of students with disabilities on their parenting stress and parental efficacy. Three mothers with intellectual disabilities who raise students with disabilities participated in this study. Based on mothers' characteristics, family situation, and children's needs, a home-based parenting support program was developed and implemented for 10 sessions for each mother. A dependent t-test was used to compare pre and post test and field notes were analyzed to complement the quantitative data. The results showed that three mothers showed positive changes both in parenting stress and parental efficacy. This study contributes to the existing study in that it suggested a model to support families where both parents and children have disabilities and demonstrated the positive outcomes of the model.

참고문헌 (69)

  1. 강승원, "지적장애 어머니를 둔 자녀의 발달에 영향을 미치는 요인", 지적장애연구, 17(2), pp.255~274 (2015), 한국지적장애교육학회
  2. 김나영, "지체장애여성이 경험하는 임신․출산․자녀양육에 관한 연구", 한국시민윤리학회보, 22(2), pp.275~302 (2009), 한국시민윤리학회
  3. 김미옥, "여성장애인의 삶에 대한 현상학적 연구-청소년기와 장년기의 체험을 중심으로-", 한국가족복지학, (10), pp.9~36 (2002), 한국가족사회복지학회
  4. 여성장애인 정책개발을 위한 연구, "김미옥", 보건복지부, ~ (2012)
  5. 김미옥, "농촌지역 지적장애여성의 자녀양육에 관한 질적 사례연구", 사회복지연구, 44(4), pp.5~29 (2013), 한국사회복지연구회[DOI]
  6. 김미옥, "지적장애인 부부의 결혼생활에 관한 질적 사례연구", 한국가족복지학, (47), pp.167~191 (2015), 한국가족사회복지학회
  7. 김영천, "질적연구방법론 Ⅰ: Bricoleur" (2014), 아카데미프레스
  8. 김정희, "영유아 자녀를 둔 여성장애인의 자녀양육 어려움과 서비스 욕구 비교를 통한 가족지원전략", 유아특수교육연구, 12(1), pp.165~190 (2012), 한국유아특수교육학회
  9. 박지연, "장애인 가족지원을 위한 증거기반의 실제" (2012), 학지사
  10. 2011년 장애인실태조사, "보건사회연구원", ~ (2012)
  11. 2014년 장애인실태조사, "보건사회연구원", ~ (2015)
  12. 2016년 여성장애인 홈헬퍼사업 운영 계획, "서울특별시 복지본부 장애인자립지원과", ~ (2016)
  13. "서울특별시"[URL]
  14. 심은정, "장애청소년의 지적장애 어머니를 위한 전환중심 양육지원이 어머니의 양육행동에 미치는 영향", 교육문화연구, 23(1), pp.249~279 (2017), 교육연구소[DOI]
  15. 오혜경, "장애아동 부양가족의 양육부담 및 가족지원욕구", 한국가족복지학, 9(1), pp.79~100 (2004)
  16. 유명화, "여성장애인의 임신·출산·육아와 사회적 지원방안에 대한 연구", 재활복지, 11(2), pp.131~157 (2007), 한국장애인재활협회 부설 재활연구소
  17. 이미옥, "여성장애인의 자녀양육과 장애의 심리적 극복과의 관계", 한국가족복지학, 6, pp.101~127 (2000)
  18. 이소영, "장애를 지닌 어머니를 위한 양육 지원방안 고찰- 최근 10년간 연구를 중심으로 -", 특수교육, 7(2), pp.119~137 (2008), 특수교육연구소
  19. 임은자, "지체장애여성 자녀의 사회적 역량에 영향을 미치는 요인에 관한 연구 : 양육행동의 매개효과를 중심으로", 박사, 사회복지방법, pp.2011
  20. 임은자, "장애여성의 사회적지지가 양육행동에 미치는 영향-부모역할만족도를 중심으로-", 가족과 문화, 22(1), pp.1~33 (2010), 한국가족학회
  21. 전혜인, "부모결연프로그램이 발달장애아동 어머니의 양육스트레스와 가족능력강화에 미치는 영향", 특수교육학연구, 40(1), pp.267~280 (2005), 한국특수교육학회
  22. 최복천, "여성장애인이 겪는 임신·출산·양육 어려움에 대한 질적 연구", 지체.중복.건강장애연구, 54(4), pp.323~347 (2011), 한국지체.중복.건강장애교육학회
  23. 최형성, "어머니의 양육효능감 척도의 개발", 아동학회지, 22(3), pp.1~16 (2001)
  24. 여성장애인의 자녀양육지원방안 연구, "홍승아", 한국여성개발원, ~ (2007)
  25. 홍승아, "여성장애인의 자녀양육 실태 및 지원방안 - 아동기 자녀를 둔 여성장애인을 중심으로 -", 아시아여성연구, 48(1), pp.119~158 (2009), 아시아여성연구원
  26. Abidin, R. R., "Parenting Stress Index Short Form: Test Manual" (1990), Pediatric Psychology Press
  27. Aunos, M., "Mothering with intellectual disabilities: relationship between social support, health and well-being, parenting and child behavior outcomes", Journal of Applied Research in Intellectual Disabilities, 21, pp.320~330 (2008)
  28. Banks, P., "Seeing the invisible children and young people affected by disability", Disability & Society, 16(6), pp.797~814 (2001)
  29. Booth, T., "Parenting with learning difficulties: lessons for practitioners", British Journal of Social Work, 23(5), pp.459~480 (1993)
  30. Coren, E., "Parent Training Support for Intellectually Disabled Parents" (2010), The Campbell Collaboration
  31. Feldman, M. A., "Parent education project Ⅰ: development and nurturance of children of mentally retarded parents", American Journal of Mental Deficiency, 90, pp.253~258 (1985)
  32. Feldman, M. A., "Parenting education for parents with intellectual disabilities: a review of outcome studies", Research in Developmental Disabilities, 15, pp.299~332 (1994)
  33. Feldman, M. A., "Self-directed learning of child-care skills by parents with intellectual disabilities", Infants and Young Children, 17(1), pp.17~31 (2004)
  34. Feldman, M. A., "Parents with Intellectual Disabilities", pp.121~136 (2010), Wiley-Blackwell
  35. Feldman, M. A., "Effectiveness of self-instructional audiovisual materials in teaching child-care skills to parents with intellectual disabilities", Journal of Behavioral Education, 7(2), pp.235~257 (1997)
  36. Feldman, M. A., "Teaching child-care and safety skills to parents with intellectual disabilities via self-learning", Journal of Intellectual and Developmental Disability, 24, pp.27~44 (1999)
  37. Feldman, M. A., "Effectiveness of a child-care training-program for parents at-risk for child neglect", Canadian Journal of Behavioral Science, 24(1), pp.14~28 (1992)
  38. Feldman, M. A., "Using self-instructional pictorial manuals to teach child-care skills to mothers with intellectual disabilities", Journal of Behavioral Education, 23(3), pp.480~497 (1999)
  39. Feldman, M. A., "Parental cognitive impairment, mental health, and child outcomes in a child protection population", Journal of Mental Health Research in Intellectual Disabilities, 5(1), pp.66~90 (2012)
  40. Feldman, M. A., "Stress in mothers with intellectual disabilities", Journal of Child and Family Studies, 6(4), pp.471~485 (1997)
  41. Feldman, M., "Effects of maternal mental retardation and poverty on intellectual, academic, and behavioral status of school-age children", American Journal of Mental Retardation, 101, pp.352~364 (1997)
  42. Gillberg, C., "Children born to mentally retarded women: a 1-21 year follow-up study of 41 cases", Psychological Medicine, 13, pp.891~894 (1983)
  43. Glaun, D. E., "Mothers with intellectual disability and child protection: Characteristics of a court sample", Journal of Intellectual and Development Disability, 24(1), pp.95~105 (1999)
  44. Glazemakers, I., "Modifying the ‘positive parenting program’ for parents with intellectual disabilities", Journal of Intellectual Disability Research, 57(7), pp.616~626 (2013)
  45. Kaatz, J., "Enhancing the parental skills of development mentally disabled parents: a nursing perspective", Journal of Community Health Nursing, 9, pp.209~219 (1992)
  46. Keltner, B., "Home environments of mothers with mental retardation", Mental Retardation, 32, pp.123~127 (1994)
  47. Keltner, B., "Mothers with intellectual limitations and their 2-year-old children’s developmental outcomes", Journal of Intellectual and Developmental Disability, 24, pp.45~57 (1999)
  48. Llewellyn, G., "Editorial: towards acceptance and inclusion of people with intellectual disability as parents", Journal of Applied Research in Intellectual Disabilities, 21, pp.293~295 (2008)
  49. Llewellyn, G., "Perception of service needs by parents with intellectual disability, their significant others and their service workers", Research in Developmental disabilities, 19(3), pp.245~260 (1998)
  50. Llewellyn, G., "Promoting health and home safety for children of parents with intellectual disability: A randomized controlled trial", Research in Developmental Disabilities, 24(6), pp.405~431 (2003)
  51. Llewellyn, G., "Home based programmes for parents with intellectual disabilities: lessons from practice", Journal of Applied Research in Intellectual Disabilities, 15(4), pp.342~353 (2002)
  52. Mayer, R., "Active negotiation: Mothers with intellectual disabilities creating their social support networks", Journal of Applied Research in Intellectual Disabilities, 21, pp.341~350 (2008)
  53. McConnell, D., "Strengthening the social relationships of mothers with learning disabilities", British Journal of Learning Disabilities, 37, pp.66~75 (2009)
  54. McConnell, D., "Developmental profiles of children born to mothers with intellectual disability", Journal of Intellectual and Developmental Disability, 28, pp.122~134 (2003)
  55. McConnell, D., "Women with intellectual disability at risk of adverse pregnancy and birth outcomes", Journal of Intellectual Disability Research, 52(6), pp.529~535 (2008)
  56. McGaw, S., "What works for parents with intellectual disabilities?" (2000), Barnardo’s Publications
  57. McGaw, S., "The effect of a group intervention on the relationships of parents with intellectual disabilities", Journal of Applied Research in Intellectual Disabilities, 15, pp.354~366 (2002)
  58. Meppelder, M., "Parenting stress and child behavior problems among parents with intellectual disabilities: The buffering role of resources", Journal of Intellectual Disability Research, 59(7), pp.664~677 (2015)
  59. Munford, R., "Looking inside the bag of tools: creating research encounters with parents with an intellectual disability", Disability & Society, 23(4), pp.337~347 (2008)
  60. Newman, T., "Young carers’ and disabled parents: time for change of direction?", Disability & Society, 17(6), pp.613~625 (2002)
  61. Rao, T., "Implementation of an intensive, home-based program for parents with intellectual disabilities", Journal of Public Child Welfare, 7, pp.691~796 (2013)
  62. Sheerin, F., "Parents with learning disabilities: a review of the literature", Journal of Advanced Nursing, 28, pp.126~133 (1998)
  63. Starke, M., "Supporting families with parents with intellectual disability: views and experiences of professionals in the field", Journal of Policy and Practice in Intellectual Disabilities, 8(3), pp.163~171 (2011)
  64. Traustradóttir, R., "The ‘mother’ behind the mother: three generations of mothers with intellectual disabilities and their family support networks", Journal of Applied Research in Intellectual Disabilities, 21(4), pp.331~340 (2008)
  65. Tymchuk, A, J., "Do mothers with or without mental retardation know what to report when they think their child in ill?", Children’s Health Care, 21, pp.53~57 (1992)
  66. Wade, C., "Review of parent training interventions for parents with intellectual disability", Journal of Applied Research in Intellectual Disabilities, 21, pp.351~366 (2008)
  67. Weiber, I., "The characteristics local support systems, and the roles of professionals, in supporting families where a mothers has an intellectual disability", Journal of Applied Research in Intellectual Disability, 29, pp.197~210 (2016)
  68. Willems, D. L., "Parenting by persons with intellectual disability: an exploratory study in the Netherlands", Journal of Intellectual Disability Research, 51(7), pp.537~544 (2007)
  69. Wilson, S., "A systematic review of interventions to promote social support and parenting skills in parents with an intellectual disability", Child: care, health and development, 40(1), pp.7~19 (2013)

관련 논문AI추천

이 간행물의 다른 논문 (10건)