혈액암환자 배우자의 돌봄 경험: 끝이 없는 터널에서 나오는 길 찾기
Experiences of Spouses of Patients with Hematologic Malignancies: Finding a Way to Get Out of the Endless Tunnel
1
조회
0
다운로드
8
인용
0
참고문헌
키워드
초록
Purpose: This study was to explore experiences of spouses with hematologic malignancy patients. The main question was “What are experiences of spouses whose husband or wife was diagnosed with hematologic malignancy?”. Methods: Participants for this study were 12 spouses. Data were collected through individual in-depth unstructured interviews with participants from Feb, 2014 to June, 2015 and analyzed using Strauss and Corbin’s grounded theory methodology. Results: A core category was ‘Finding a way to get out of the endless tunnel’. The process is 1) Shock, 2) Confusion, 3) Struggle, 4) Living with the disease, 5) Maturation within the disease. The contextual conditions were ‘Responsibility for patient’, ‘Fear of spouseless future’. The intervening conditions were ‘Having support’, ‘Having closer marital relationship’, Keeping patient’s disease repressed. Finally, Participants reached ‘Circling around the disease’, ‘Finding personal growth’. Conclusion: The results of this study could help understand the experiences of spouses of hematologic malignancy patients. The emerged process of their experiences gives a framework to develop strategies to help spouses to overcome disease.
Abstract
Purpose: This study was to explore experiences of spouses with hematologic malignancy patients. The main question was “What are experiences of spouses whose husband or wife was diagnosed with hematologic malignancy?”. Methods: Participants for this study were 12 spouses. Data were collected through individual in-depth unstructured interviews with participants from Feb, 2014 to June, 2015 and analyzed using Strauss and Corbin’s grounded theory methodology. Results: A core category was ‘Finding a way to get out of the endless tunnel’. The process is 1) Shock, 2) Confusion, 3) Struggle, 4) Living with the disease, 5) Maturation within the disease. The contextual conditions were ‘Responsibility for patient’, ‘Fear of spouseless future’. The intervening conditions were ‘Having support’, ‘Having closer marital relationship’, Keeping patient’s disease repressed. Finally, Participants reached ‘Circling around the disease’, ‘Finding personal growth’. Conclusion: The results of this study could help understand the experiences of spouses of hematologic malignancy patients. The emerged process of their experiences gives a framework to develop strategies to help spouses to overcome disease.
참고문헌 (27)
- Hall A, "Supportive care needs of hematological cancer survivors : a critical review of the literature", Crit Rev Oncol Hematol, 88, pp.102~116 (2013)
- The Korean Society of Hematology, "Hematology" (2011), Bubmoon education
- Oechsle K, "Multimodal exercise training during myeloablative chemotherapy : a prospective randomized pilot trial", Support Care Cancer, 22(1), pp.63~69 (2014)
- "Annual report of cancer statistics in Korea in 2012"[URL]
- 정규원, "Cancer Statistics in Korea: Incidence, Mortality, Survival, and Prevalence in 2012", Cancer Research and Treatment, 47(2), pp.127~141 (2015), 대한암학회[DOI]
- Manne S, "Cancer in the Marital Context : a review of the literature", Cancer Invest, 16(3), pp.188~202 (1998)
- Clark PG, "Screening for psychological and physical distress in a cancer inpatient treatment setting : a pilot study", Psychooncology, 20(6), pp.664~668 (2011)
- Kim Y, "Quality of life of family caregivers of cancer survivors:across the trajectory of the illness", Cancer, 112(11), pp.2556~2568 (2008)
- Li Q, "The positive aspects of caregiving for cancer patients : a critical review of the literature and directions for future research", Psychooncology, 22(11), pp.2399~2407 (2013)
- 최은숙, "말기 암환자 가족의 돌봄 경험", Journal of Korean Academy of Nursing, 42(2), pp.280~290 (2012), 한국간호과학회[DOI]
- 권은진, "유방암 환자 배우자의 돌봄 경험", Asian Oncology Nursing, 13(1), pp.18~27 (2013), 대한종양간호학회
- Papastavrou E, "The burdensome and depressive experience of caring : what cancer, schizophrenia, and alzheimer’s disease caregivers have in common", Cancer Nurs, 35(3), pp.187~194 (2012)
- Williams AL, "Cancer family caregivers : a new direction for interventions", J Palliat Med, 15(7), pp.775~783 (2012)
- Romito F, "Informal caregiving for cancer patients", Cancer, 119(11), pp.2160~2169 (2013)
- Northouse LL, "Interventions with family caregivers of cancer patients : meta-analysis of randomized trials", CA Cancer J Clin, 60(5), pp.317~339 (2010)
- Fletcher BS, "The cancer family caregiving experience : an updated and expanded conceptual model", Eur J Oncol Nurs, 16(4), pp.387~398 (2012)
- Strauss A, "Grounded theory and techniques" (1998), Sage
- Holtslander LF, "The hope experience of older bereaved women who cared for a spouse with terminal cancer", Qual Health Res, 19(3), pp.388~400 (2009)
- Li QP, "Spouses’ experience of caregiving for cancer patients : a literature review", Int Nurs Rev, 60(2), pp.178~187 (2013)
- Houldin AD, "A qualitative study of caregivers’ experiences with newly diagnosed advanced colorectal cancer", Oncol Nurs Forum, 34(2), pp.323~330 (2007)
- Sercekus P, "Experiences of family caregivers of cancer patients receiving chemotherapy", Asian Pac J Cancer Prev, 15(12), pp.5063~5069 (2014)
- Lopez V, "Male caregivers of patients with breast and gynecologic cancer : experiences from caring for their spouses and partners", Cancer Nurs, 35(6), pp.402~410 (2012)
- Janze A, "Preparing for palliative caregiving as a transition in the awareness of death : family carer experiences", Int J Palliat Nurs, 20(10), pp.494~501 (2014)
- Bastawrous M, "Caregiver burden-a critical discussion", Int J Nurs Stud, 50(3), pp.431~441 (2013)
- Kim Y, "Benefit-finding in the cancer caregiving experience", Psycho-som Med, 69(3), pp.283~291 (2007)
- Zwahlen D, "Posttraumatic growth in cancer patients and partners-effects of role, gender and the dyad on couples’ posttraumatic growth experience", Psychooncology, 19(1), pp.12~20 (2010)
- Dunkin JJ, "Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention", Neurology, 51(1 Suppl 1), pp.S53~S60 (1998)