본문 바로가기
KERD
논문KCI 등재

말기 암 남편을 가정에서 돌보는 아내의 경험: 현상학적 연구

Experience of Wives Caregiving Husbands with Terminal Cancer at Home: Phenomenological Study

1

조회

0

다운로드

0

인용

0

참고문헌

키워드

주제분류학제간연구

초록

Purpose: This was an integrated and in-depth study conducted to understand the experience of wives caring for terminally ill husbands at home. Methods: This was a qualitative study that applied Colaizzi's phenomenological research method to understand the experiences of wives caring for terminally ill husbands at home. For data collection, individual in-depth interviews were conducted from November 2017 to July 2018 with six wives caring for husbands with terminal cancer at home. Results: The data analysis found 31 semantic units, and they were grouped to form eight themes and three theme clusters (Table 2). The collection of themes derived from the results of this study was “the swamp of pain that I am gradually falling into”, “surviving with my husband in a house like my body”, and “embracing and moving forward”. Conclusion: The wives took care of their late-stage cancer husbands alone at home and continued to take care of them silently even if they suffered ill effects. The home was an appropriate space for the wives to take care of their husbands, and they accepted their situations as their destiny and fulfilled their responsibilities.

Abstract

Purpose: This was an integrated and in-depth study conducted to understand the experience of wives caring for terminally ill husbands at home. Methods: This was a qualitative study that applied Colaizzi's phenomenological research method to understand the experiences of wives caring for terminally ill husbands at home. For data collection, individual in-depth interviews were conducted from November 2017 to July 2018 with six wives caring for husbands with terminal cancer at home. Results: The data analysis found 31 semantic units, and they were grouped to form eight themes and three theme clusters (Table 2). The collection of themes derived from the results of this study was “the swamp of pain that I am gradually falling into”, “surviving with my husband in a house like my body”, and “embracing and moving forward”. Conclusion: The wives took care of their late-stage cancer husbands alone at home and continued to take care of them silently even if they suffered ill effects. The home was an appropriate space for the wives to take care of their husbands, and they accepted their situations as their destiny and fulfilled their responsibilities.

참고문헌 (32)

  1. (2017)[URL]
  2. (2018)[URL]
  3. (2017)[URL]
  4. Yun, Y. H., "I don't want to die in Korea" (2014), El Dorado
  5. Kim, H. S., "An ethnography of home-based hospice experience among patients and family in end-of-life", pp.2016
  6. Lee, J. S., "The development & evaluation of the caregiving stress management program for families of terminal cancer patients", pp.2006
  7. 김분한, "말기암환자에서 가정호스피스완화 돌봄 경험", Journal of Hospice and Palliative Care, 17(4), pp.223~231 (2014), 한국호스피스완화의료학회
  8. Lee, H. W., "Effect of informational support by hospice team on family caregivers of terminally III cancer patient", Journal of Korean Academy of Community Health Nursing, 12(1), pp.175~186 (2001)
  9. Kang, K. A., "Content analysis of difficulties in families with terminal cancer patients", Journal of Korean Academy of Community Health Nursing, 16(3), pp.270~281 (2005)
  10. 고수진, "가정 호스피스완화의료 서비스 현황 조사: 실무자 포커스그룹 인터뷰를 중심으로", 한국데이터정보과학회지, 25(1), pp.37~52 (2014), 한국데이터정보과학회[DOI]
  11. Lee, J. H., "The influence of hospice care period on burnout of family members of terminal cancer patients" (2014), The Catholic University of Korea
  12. Han, Y. R., "The relationship among family primary caregiver characteristics, burden with hospice care and quality of life", pp.2010
  13. Li, Q. P., "Spouses' experience of caregiving for cancer patients : a literature review", International Nursing Review, 60, pp.178~187 (2012)
  14. 최은숙, "말기 암환자 가족의 돌봄 경험", Journal of Korean Academy of Nursing, 42(2), pp.280~290 (2012), 한국간호과학회[DOI]
  15. Li, Q. P., "A couple-based complex intervention for Chinese spousal caregivers and their partners with advanced cancer : An intervention study", Psycho-Oncology, 24, pp.1423~1431 (2015)
  16. Lee, H. S., "A study on the wife in korean classical narrative literature", pp.2014
  17. Ahn, H. S., "On the figurative changes of family members in Korean animation", pp.2013
  18. Oh, K. L., "Elderly women's experience of caring terminally ill spouse: A qualitative content analysis", pp.2018
  19. Karla, T. W., "Gender differences in caregiving at end of life : Implications for hospice teams", Journal of Palliative Medicine, 18(12), pp.1048~1053 (2015)
  20. Institute of Medicine, "Women's health research" (2010), National Academies Press
  21. Park, S. S., "Caregiving burden and quality of life among family caregivers of terminal cancer patients", Journal of the Korean Society for Nursing Ethics, 1(1), pp.57~68 (2021)[DOI]
  22. 이지혜, "말기암환자 가족 간병인의 간병 부담과 관련된 요인", Journal of Hospice and Palliative Care, 19(1), pp.61~69 (2016), 한국호스피스완화의료학회[DOI]
  23. Washington, K. T., "Unique characteristics of informal hospice cancer caregiving", Support Care Cancer, 23, pp.2121~2128 (2015)
  24. DuBenske, L. L., "CHESS Improves Cancer Caregiver' Burden and Mood : Results of eHealth RCT", Health Psychology, 33(10), pp.1261~1272 (2014)
  25. 장혜영, "재가 치매노인 배우자의 돌봄 체험에 관한 해석학적 현상학 연구", Journal of Korean Academy of Nursing, 47(3), pp.367~379 (2017), 한국간호과학회
  26. Colaizzi, F. U., "Psychological research as the phenomenologist view it" (1978), Oxford University Press
  27. Lee, N. I., "Phenomenology and qualitative research" (2016), Hangilsa
  28. Guba, E. G., "Effective evaluation: Improving the usefulness of evaluation results through responsive and naturalistic approaches" (1981), Jossey-Bass
  29. Lee, N. I., "phenomenology and hermeneutics" (2016), Seoul National University Press
  30. 양은숙, "말기 암 환자 가족 보호자의 호스피스 돌봄 경험에 대한 연구 -Van-Manen의 해석학적 현상학에 근거하여-", 한국심리학회지: 상담 및 심리치료, 32(1), pp.1~32 (2020), 한국상담심리학회[DOI]
  31. Lee, K. C., "Effect of integrated caregiver support on caregiver burden for people taking care of people with cancer at the end of life : A cohort and quasiexperimental clinical trial", International Journal of Nursing Studies, 56, pp.17~26 (2016)
  32. 김계숙, "호스피스 병동 말기 암환자 가족의 돌봄 경험에 관한 현상학적 연구", 한국가족복지학, (52), pp.35~66 (2016), 한국가족사회복지학회[DOI]

관련 논문AI추천

이 간행물의 다른 논문 (4건)