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발달장애 성인자녀를 돌보는 어머니의 경험 과정

Mother's Experience of Caring for Adults with Developmental Disabilities

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주제분류학제간연구

초록

Purpose: This study was to investigate how mothers who were caring for adults with developmental disabilities experience changes. Methods: This study was qualitative research applying grounded theory methodology. The participants were 17 mothers who cared for adult children with developmental disabilities in C city. The data was analyzed by Strauss & Corbin(1998) in the grounded theory. Results: Data analysis resulted in 41 concepts, 16 subcategories, and 6 categories; The casual condition was ‘recognizing separation of life from their child’, Central phenomenon was to ‘recover self.’ Contextual condition was ‘recognizing the barriers to self-recovery’, Intervening condition was ‘forming and using a support base’. Action/interaction strategy was ‘seeking a way to expand the redeemed self’, The result of utilizing this action/interaction strategy was ‘reestablishing your own life’. Conclusion: The core categorization of mothers who care for children with developmental disabilities was the process of living in a meaningful existence together with child '. The process of living with a child in a meaningful being is the process of establishing a mother's identity and living a self-esteem life changes the center of life into oneself.

Abstract

Purpose: This study was to investigate how mothers who were caring for adults with developmental disabilities experience changes. Methods: This study was qualitative research applying grounded theory methodology. The participants were 17 mothers who cared for adult children with developmental disabilities in C city. The data was analyzed by Strauss & Corbin(1998) in the grounded theory. Results: Data analysis resulted in 41 concepts, 16 subcategories, and 6 categories; The casual condition was ‘recognizing separation of life from their child’, Central phenomenon was to ‘recover self.’ Contextual condition was ‘recognizing the barriers to self-recovery’, Intervening condition was ‘forming and using a support base’. Action/interaction strategy was ‘seeking a way to expand the redeemed self’, The result of utilizing this action/interaction strategy was ‘reestablishing your own life’. Conclusion: The core categorization of mothers who care for children with developmental disabilities was the process of living in a meaningful existence together with child '. The process of living with a child in a meaningful being is the process of establishing a mother's identity and living a self-esteem life changes the center of life into oneself.

참고문헌 (28)

  1. Billsted, E., "Austin after adolescence : population-based 13-to 22-year follow-up study of 120 individuals with austin diagnosed in childhood", Journal of Austin and Developmental Disorders, 35(3), pp.351~360 (2005)
  2. Blacher, J., "Family expectations and transition experiences for young adults with sever disabilities : Dose syndrome matter?", Advances in Mental Health and Intellectual Disabilities, 4(1), pp.3~16 (2010)
  3. 조은미, "지지적 집단상담이 발달장애아동 어머니의 사회적 지지, 자아존중감 및 심리적 안녕감에 미치는 효과", 재활심리연구, 18(1), pp.49~71 (2011), 한국재활심리학회
  4. Development of guidebook for parents with disabilities, "Cho, Y. K.", Korea Disabled People's Development Institute, ~ (2014)
  5. 최해경, "성인 발달장애인을 돌보는 부모의 보호부담과 사회적 지지가 우울에 미치는 영향", 사회과학연구, 21(2), pp.243~263 (2010), 사회과학연구소
  6. Choi, O. C., "Human behavior and social environment" (2015), Yangseowon
  7. Corbin, J., "Basics of qualitative research" (2008), SAGE
  8. 어용숙, "양육스트레스와 임파워먼트가 장애아동 주양육자의 삶의 질에 미치는 영향", Child Health Nursing Research, 15(4), pp.409~416 (2009), 한국아동간호학회
  9. 허정임, "지체장애 부모의 양육 실태 및 지원 요구 조사", 지체.중복.건강장애연구, 52(3), pp.231~249 (2009), 한국지체·중복·건강장애교육학회[DOI]
  10. 전찬영, "중증장애 자녀를 돌보는 어머니의 삶의 과정에 대한 근거이론적 접근", 한국콘텐츠학회 논문지, 13(4), pp.239~249 (2013), 한국콘텐츠학회[DOI]
  11. Jung, I. Y., "Research on the restructuring process of ‘mothering’through the experience of mother of children with disabilities", master's, pp.2012
  12. A Study on the emotional support for the parents with developmental disabilities, "Kang, S. K.", Ministry of Health and Welfare: Seoul National University Industry Collaboration Foundation, ~ (2013)
  13. 김미하, "수용전념 집단치료가 발달장애아동 어머니의 심리적 안녕감과 우울에 미치는 효과", Korean Journal of Clinical Psychology, 30(1), pp.207~223 (2011), 한국임상심리학회[DOI]
  14. 2014 Disability survey policy report, "Kim, S. H.", Korea Institute for Health and Social Affairs, ~, pp.Report No. 11-1352000-000568-12 (2014)
  15. Kim, Y. D., "Understanding Korean welfare for persons with disabilities" (2007), Human and Welfare
  16. 이애란, "자폐성장애 아동 어머니의 삶의 전환 과정", Journal of Korean Academy of Nursing, 40(6), pp.808~819 (2010), 한국간호과학회
  17. 이은미, "지적장애자녀의 생애주기에 따른 가족경험 및 지원 욕구에 관한 연구", 한국사회복지질적연구, 4(2), pp.63~90 (2010), 한국사회복지질적연구학회[DOI]
  18. 이경미, "직업적 성격유형을 적용한 진로집단상담 프로그램이 중학생의 자아개념과 진로의식성숙에 미치는 효과", 상담학연구, 7(1), pp.63~83 (2006), 한국상담학회
  19. Lloyd, R. J., "Upper Saddle River", pp.94~116 (2004), Person Prentice Hall
  20. OH SEUNG MIN, "취학 전 자폐적 성향을 보이는 발달지체 아동 어머니의 양육경험에 대한 연구", 미래유아교육학회지, 20(2), pp.375~402 (2013), 미래유아교육학회
  21. Research and support measures for the Busan development disability, "Park, J. H.", Busan Social Welfare Development Institute, ~ (2012)
  22. 박선원, "발달장애아동 어머니의 양육부담이 부부갈등에 미치는 영향 -사회적 지지체계와 사회활동의 조절효과를 중심으로-", 한국콘텐츠학회 논문지, 17(1), pp.594~610 (2017), 한국콘텐츠학회[DOI]
  23. 신경아, "산업화 이후 일-가족 문제의담론적 지형과 변화", 한국여성학, 23(2), pp.5~45 (2007), 한국여성학회
  24. Shin, K. L., "Qualitative Research Methodology" (2004), Women's College Press
  25. Shogren, K. A., "Transition planning for students with intellectual disability, Autism, or other disabilities : Data from the national longitudinal transition study-2", Intellectual and Developmental Disabilities, 50(1), pp.16~30 (2012)
  26. Strauss, A., "Basics of qualitative research : Techniques and procedures for developing grounded Theory" (1998), Sage Publication
  27. William, J., "The principles of psychology" (2005), Acanet
  28. Yoon, M. S., "Service status and policy promotion measures for the adult development and disability of Seoul", Policy Report, 154, pp.1~17 (2010)

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