가정형 인공호흡기를 적용하고 있는 희귀, 난치성 질환자의 자가관리 교육 경험과 수행정도, 가정간호 요구도
Self-care Education Experience, Self-care Performance, and Home Care Service Needs of Patients With Rare and Incurable Diseases Who Use a Home Ventilator
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Purpose: This study aimed to investigate the self-care education experience, self-care performance, and home care service needs of patients with rare and incurable diseases who use a home ventilator. Methods: From2 ventilator rental companies and 5 hospitals, records of 162 subjects were collected to obtain data regarding self-care education experience (23 items) and home care service needs (25 items). Results: Of the subjects, 65.4% were male and 55.6% had a myotrophic lateral sclerosis. The items with the highest and lowest levels of self-care education experience were “using the ventilator”(94.0%)and “community-available resource information”(27.0%), respectively. Meanwhile, self-care was performed well in terms of “personal hygiene”(59.6%) but not performed well in “community-available resource information”(23.7%). “Health status assessment” had the highest need(88.2%) of home care services. Generally, the need of home care services was higher for the patients using invasive ventilators than that for those using non-invasive ventilators. Conclusion: Home care nurses need to not only provide physical care for the patients but also strengthen their roles of enhancing patient access to and utilization of various community resources to provide systematic and individualized training and care.
Abstract
Purpose: This study aimed to investigate the self-care education experience, self-care performance, and home care service needs of patients with rare and incurable diseases who use a home ventilator. Methods: From2 ventilator rental companies and 5 hospitals, records of 162 subjects were collected to obtain data regarding self-care education experience (23 items) and home care service needs (25 items). Results: Of the subjects, 65.4% were male and 55.6% had a myotrophic lateral sclerosis. The items with the highest and lowest levels of self-care education experience were “using the ventilator”(94.0%)and “community-available resource information”(27.0%), respectively. Meanwhile, self-care was performed well in terms of “personal hygiene”(59.6%) but not performed well in “community-available resource information”(23.7%). “Health status assessment” had the highest need(88.2%) of home care services. Generally, the need of home care services was higher for the patients using invasive ventilators than that for those using non-invasive ventilators. Conclusion: Home care nurses need to not only provide physical care for the patients but also strengthen their roles of enhancing patient access to and utilization of various community resources to provide systematic and individualized training and care.
참고문헌 (23)
- Ahn, J. J., "Survey of current status of the patients with home ventilator in Seoul and Kyunggi province", Tuberculosis and Respiratory Disease, 49(5), pp.624~632 (2000)
- Fex, A., "Self-care among persons using advanced medical technology at home", Journal of Clinical Nursing, 18, pp.2809~2817 (2009)
- Imaiso, J., "Caregiver suctioning education for Japanese patients with an invasive home ventilator", Nursing and Health Sciences, 11, pp.422~429 (2009)
- Kang, S. W., "Breathing retraining: chest physical therapy and noninvasive ventilator management", Pediatric Allergy & Respiratory, 13(1), pp.1~7 (2003)
- 강성웅, "신경근육계 질환에서 공기누적운동의 임상적 의의", Annals of Rehabilitation Medicine, 31(3), pp.346~350 (2007), 대한재활의학회
- 김동현, "신경근육질환 환자에서 비침습적 호흡기 사용 경과 고찰", Annals of Rehabilitation Medicine, 31(4), pp.427~433 (2007), 대한재활의학회
- 김정윤, "호흡보조기를 사용하는 근위축성 측삭경화증 환자에서의 호흡 관리 실태", Annals of Rehabilitation Medicine, 34(1), pp.49~53 (2010), 대한재활의학회
- 김미화, "가정용 인공호흡기 장착 아동의 재입원 영향 요인", Child Health Nursing Research, 18(1), pp.9~18 (2012), 아동간호학회
- King, A., "Long-term home mechanical ventilation in the United States", Respiratory care, 57(6), pp.921~932 (2012)
- Kun, S., "How much do primary care givers know about tracheostomy and home ventilator emergency care?", Pediatric Pulmonology, 45, pp.270~274 (2010)
- Lee, M. Y., "A study of rare, incurable welfare support system-focusing ankylosing spondylitis disease", 석사, pp.2006
- Lee, Y. G., "Physical function of patients with amyotrophic lateral sclerosis", 13(2), pp.130~139 (2006)
- McGoldrick, M., "Preventing infectious in patients using respiratory therapy equipment in the home", Home Healthcare Nurse, 28(4), pp.212~220 (2010)
- McKim, D., "Home mechanical ventilation: A Canadian thoracic society clinical practice guideline", Canadian Respiratory Journal, 18(4), pp.197~215 (2011)
- "Extension and strenthening of home care services" (2010)[URL]
- Rice, R., "Home care nursing practice: Historical perspectives and philosophy of care" (2006), Mosby, Inc
- Servick, M., "Economic value of caregiver effort in maintaining long-term ventilator-assisted individual at home", Heart Lung, 26(2), pp.148~157 (1997)
- Servick, M., "Economic cost of home based care for ventilator-assisted individuals", Chest, 109, pp.1597~1606 (1996)
- "2008 Survey of ventilatory support in patients with rare and incurable disease" (2011)[URL]
- Simmons, F., "Discharging the ventilator-dependent patient to home-part 2", Professional Case Management, 15(6), pp.335~339 (2010)
- Song, K. A., "Fundamentals of nursing" (2013), Soomoonsa
- Song, Y. E., "Nursing needs of the patient on home ventilator", 석사, pp.2003
- Tearl, D., "Home discharge of technology -dependent children: evaluation of a respiratory-therapist driven family education program", Respiratory Care, 52, pp.171~176 (2007)