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A Family-Engaged Educational Program for Atopic Dermatitis: A Seven-Year, Multicenter Experience in Daegu-Gyeongbuk, South Korea

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주제분류피부과학

초록

Background: It is important to educate families of pediatric patients with atopic dermatitis (AD) so that they have a correct understanding of AD. Objective: The purpose of this study is to introduce, evaluate, and improve our family- engaged educational program. Methods: Children suffering from AD and their families have participated in a half-day educational program called “AD school” with catchy slogans such as “Enjoy with AD Families!” every year since 2005. Educational lectures were conducted for parents. For children with AD, various entertaining programs were provided. A feedback survey about AD school was administered for the purpose of evaluation. Results: A total of 827 people (376 patients and 451 family members) participated in this program over 7 years. On-site surveys showed a positive response (i.e., “excellent” or “good”) for the prick test (95.1%), emollient education (78.4%), educational lecture (97.0%), drawing contest and games (90.2%), and recreation (magic show; 99.0%) respectively. Telephone surveys one year later also elicited a positive response. Conclusion: We herein introduce the experience of a half-day, family-engaged educational program for AD. Family-engaged education programs for AD such as this AD school encourage and validate family participation in the treatment of their children’s AD.

Abstract

Background: It is important to educate families of pediatric patients with atopic dermatitis (AD) so that they have a correct understanding of AD. Objective: The purpose of this study is to introduce, evaluate, and improve our family- engaged educational program. Methods: Children suffering from AD and their families have participated in a half-day educational program called “AD school” with catchy slogans such as “Enjoy with AD Families!” every year since 2005. Educational lectures were conducted for parents. For children with AD, various entertaining programs were provided. A feedback survey about AD school was administered for the purpose of evaluation. Results: A total of 827 people (376 patients and 451 family members) participated in this program over 7 years. On-site surveys showed a positive response (i.e., “excellent” or “good”) for the prick test (95.1%), emollient education (78.4%), educational lecture (97.0%), drawing contest and games (90.2%), and recreation (magic show; 99.0%) respectively. Telephone surveys one year later also elicited a positive response. Conclusion: We herein introduce the experience of a half-day, family-engaged educational program for AD. Family-engaged education programs for AD such as this AD school encourage and validate family participation in the treatment of their children’s AD.

참고문헌 (8)

  1. James WD, "Andrews’ disease of the skin: clinical dermatology", pp.62~70 (2011), Saunders Elsevier
  2. Boguniewicz M, "A multiple-domain framework of clinical, economic, and patient-reported outcomes for evaluating benefits of intervention in atopic dermatitis", J Drugs Dermatol, 6, pp.416~423 (2007)
  3. Lambert J, "A novel multidisciplinary educational programme for patients with chronic skin diseases: Ghent pilot project and first results", Arch Dermatol Res, 303, pp.57~63 (2011)
  4. Wenninger K, "Structured parent education in the management of childhood atopic dermatitis: the Berlin model", Patient Educ Couns, 40, pp.253~261 (2000)
  5. Ricci G, "Three years of Italian experience of an educational program for parents of young children affected by atopic dermatitis:improving knowledge produces lower anxiety levels in parents of children with atopic dermatitis", Pediatr Dermatol, 26, pp.1~5 (2009)
  6. Grillo M, "Pediatric atopic eczema: the impact of an educational intervention", Pediatr Dermatol, 23, pp.428~436 (2006)
  7. 신지연, "An Educational Program That Contributes to Improved Patient and Parental Understanding of Atopic Dermatitis", Annals of Dermatology, 26(1), pp.66~72 (2014), 대한피부과학회
  8. Kim NK, "Hwangryunhaedoktang in adult patients with atopic dermatitis:a randomised, double-blind, placebo-controlled, twocentre trial--study protocol", BMC Complement Altern Med, 11, pp.68~ (2011)

관련 논문AI추천

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