알츠하이머 치매 환자를 돌보는 남성, 여성 배우자의 돌봄 경험
Caring Experience of Spouse Caregivers of Persons with Alzheimer's Disease: A Qualitative Study
1
조회
0
다운로드
4
인용
0
참고문헌
키워드
초록
Purpose: The purpose of this study was to understand the meaning of caregiving experiences derived from male and female caregivers whose spouses were diagnosed with Alzheimer’s disease. Methods: The data were collected from October to December 2021 through one-on-one in-depth interviews with six male and six female spouse caregivers and analyzed based on the Colaizzi's phenomenological method. Results: In accordance with the results, three categories and six themes were respectively deduced for each group by gender. The results illustrate that the group of males tended to adapt themselves to a new role of caregiving by utilizing external resources and maintaining a positive attitude to continue their duties. The deeper the family members’ trust in them, the greater their motivation to sustain caregiving duties. Female caregivers tended to perceive caregiving as an additional duty to what they had been doing; therefore, they became mentally and physically exhausted. Nevertheless, they reduced stress through socializing with others and performing outdoor activities. Continuously interacting with their spouses also helped them continue caregiving. Conclusion: This study suggests a need for understanding a gender difference in caregiving roles and perceptions and the importance of developing a gender-specific program to support family caregivers. Future studies are warranted to develop an educational program for different roles and responsibilities that might be influenced by the caregiver’s gender and should verify the effect of the program.
Abstract
Purpose: The purpose of this study was to understand the meaning of caregiving experiences derived from male and female caregivers whose spouses were diagnosed with Alzheimer’s disease. Methods: The data were collected from October to December 2021 through one-on-one in-depth interviews with six male and six female spouse caregivers and analyzed based on the Colaizzi's phenomenological method. Results: In accordance with the results, three categories and six themes were respectively deduced for each group by gender. The results illustrate that the group of males tended to adapt themselves to a new role of caregiving by utilizing external resources and maintaining a positive attitude to continue their duties. The deeper the family members’ trust in them, the greater their motivation to sustain caregiving duties. Female caregivers tended to perceive caregiving as an additional duty to what they had been doing; therefore, they became mentally and physically exhausted. Nevertheless, they reduced stress through socializing with others and performing outdoor activities. Continuously interacting with their spouses also helped them continue caregiving. Conclusion: This study suggests a need for understanding a gender difference in caregiving roles and perceptions and the importance of developing a gender-specific program to support family caregivers. Future studies are warranted to develop an educational program for different roles and responsibilities that might be influenced by the caregiver’s gender and should verify the effect of the program.
참고문헌 (29)
- Korean dementia observatory 2020, "National Institute of Dementia", National Institute of Dementia, ~, pp.Report No. NIDR-2020-0031 (2020)
- Alzheimer's Association, "2016 Alzheimer's disease facts and figures", Alzheimer's & Dementia, 12(4), pp.459~509 (2016)[DOI]
- Covinsky KE, "Patient and caregiver characteristics associated with depression in caregivers of patients with dementia", Journal of General Internal Medicine, 18(12), pp.1006~1014 (2003)[DOI]
- Brodaty H, "Family caregivers of people with dementia", Dialogues in Clinical Neuroscience, 11(2), pp.217~228 (2009)[DOI]
- Kales HC, "Assessment and management of behavioral and psychological symptoms of dementia", BMJ, 350, pp.h369~ (2015)[DOI]
- 장혜영, "재가 치매노인 배우자의 돌봄 체험에 관한 해석학적 현상학 연구", Journal of Korean Academy of Nursing, 47(3), pp.367~379 (2017), 한국간호과학회
- 장혜영, "재가 치매노인 배우자의 건강 관련 삶의 질 예측요인", 지역사회간호학회지, 30(4), pp.518~527 (2019), 한국지역사회간호학회
- 이소원, "남성 노인의 아내 돌봄 경험에 관한 질적 연구", GRI연구논총, 22(4), pp.313~342 (2020), 재단법인 경기연구원
- 최희경, "배우자를 돌보는 남성노인에 관한 근거이론 연구: 돌봄의 구조와 유형을 중심으로", 가족과 문화, 24(4), pp.45~81 (2012), 한국가족학회[DOI]
- 박명화, "복합적 심리교육 프로그램이 치매 환자 가족의 부양부담, 우울, 문제대처행위에 미치는 효과", 노인간호학회지, 17(1), pp.10~19 (2015), 한국노인간호학회[DOI]
- 이혜경, "지역사회 내 치매환자가족의 돌봄부담감에 미치는 영향요인", 한국응용과학기술학회지, 36(4), pp.1373~1384 (2019), 한국응용과학기술학회
- 천숙희, "치매노인을 돌보는 여성가족수발자의 지각된 속박감과 우울 및 주관적 안녕감의 관계", 여성건강간호학회지, 17(3), pp.285~293 (2011), 한국여성건강간호학회
- Macdonald M, "Experiences and perceptions of spousal", partner caregivers providing care for community-dwelling adults with dementia : a qualitative systematic review, 2019, pp.18(4), 647~703
- 조혜영, "치매시부모 돌봄을 통해 나타난 며느리의 경험에 관한 사례연구", Crisisonomy, 11(9), pp.135~164 (2015), (사)위기관리이론과실천
- Jeong HJ, "The experiences of spouses taking care of their early demented husband: a phenomenological research", master, pp.2010
- 이현주, "치매를 앓는 부인을 돌보는 남편의 수발경험과 적응과정*- 노인부부가구를 중심으로 -", 한국노년학, 26(1), pp.45~62 (2006), 한국노년학회
- 홍미연, "치매 노인 돌봄 제공 남성 배우자의 경험에 대한 현상학적 연구", 인문사회 21, 11(3), pp.813~828 (2020), 인문사회 21
- 손정아, "치매노인 배우자의 적응경험에 관한 근거이론적 접근", 가정간호학회지, 25(2), pp.184~196 (2018), 한국가정간호학회[DOI]
- Corcoran MA, "Gender differences in dementia management plans of spousal caregivers : implications for occupational therapy", The American Journal of Occupational Therapy, 46(11), pp.1006~1012 (1992)[DOI]
- 유영미, "중심성의 이동: 치매 환자 가족의 돌봄 경험에 대한 질적 합성 접근", Journal of Korean Academy of Nursing, 48(5), pp.601~621 (2018), 한국간호과학회
- Winter L, "Desire to institutionalize a relative with dementia : quality of premorbid relationship and caregiver gender", Family Relations, 60(2), pp.221~230 (2011)[DOI]
- Colaizzi PF, "Existential-phenomenologial alternatives for psychology", pp.48~71 (1978), Oxford University Press
- Guba EG, "Effective evaluation: improving the usefulness of evaluation results through responsive and naturalistic approaches", pp.114~ (1981), Jossey-Bass
- Kim YH, "Adaptation process of spouses caring for patients with behavioral and psychological symptoms of dementia (BPSD): focusing on grounded theory", pp.2021
- Macfarland PL, "Male caregivers : preparing men for nurturing roles", American Journal of Alzheimer's Disease, 14(5), pp.278~352 (1999)
- 이현주, "치매노인 가족부양자의 부양부담 연구: 사회적 지지의 조절효과", 사회과학연구, 26(1), pp.345~367 (2015), 사회과학연구소[DOI]
- 이홍직, "노인의 정신건강에 영향을 미치는 요인에 관한 연구: 사회자본 특성을 중심으로", 사회과학연구, 25(3), pp.25~42 (2009), 사회과학연구소
- Netto NR, "Growing and gaining through caring for a loved one with dementia", Dementia, 8(2), pp.245~261 (2009)[DOI]
- Gallagher D, "Self-efficacy for managing dementia may protect against burden and depression in alzheimer's caregivers", Aging & Mental Health, 15(6), pp.663~670 (2011)[DOI]