자폐스펙트럼장애 어머니의 양육 스트레스와 삶의 질
Parenting Stress and Quality of Life in Mother of Autism Spectrum Disorder Patients
0
조회
0
다운로드
11
인용
0
참고문헌
키워드
초록
Objectives：This study was performed to analyze behavior problems of autism spectrum disorder patients contributing to parenting stress and quality of life of Autism spectrum disorder(ASD) mothers. Methods：Participants consisted of 32 autism spectrum disorder patients and their mothers who visited the outpatient department from April 2016 to July 2016 in OO University Hospital. Childhood Autism Rating Scales(CARS), Social Maturity Scales(SMS) and the Korean version of Behavior Problem Inventory(K-BPI) were used to test patients’ behavior problems. Beck Depression Inventory(BDI), Beck Anxiety Inventory(BAI), the Korean version of Parenting Stress Index Short Form(K-PSI) and the Korean version of World Health Organization Quality of Life Assessment Instrument(K-QOL) were used to test ASD mothers’ level of depression, anxiety, life stress and quality of life. Results：General and social relation domains of QOL were most declined in mothers of the early adolescents with the ASD. The frequency of self-injurious behavior showed significant correlations with the parent-child dysfunctional interaction and difficult child domains of the K-PSI as well as the psychological domain of the K-QOL. The frequency of stereotyped behavior demonstrated significant correlations with the psychological and physical domains of the K-QOL. Conclusion：This study demonstrates that the assessment of the mothers’ emotional status is necessary in treating patients with the ASD. It also shows that aggressive interventions are needed to reduce the frequencies of the stereotyped behavior and self-injurious behavior of the ASD patients, as well as the social support to lower the stress of the parents of adult ASD patients.
Abstract
Objectives：This study was performed to analyze behavior problems of autism spectrum disorder patients contributing to parenting stress and quality of life of Autism spectrum disorder(ASD) mothers. Methods：Participants consisted of 32 autism spectrum disorder patients and their mothers who visited the outpatient department from April 2016 to July 2016 in OO University Hospital. Childhood Autism Rating Scales(CARS), Social Maturity Scales(SMS) and the Korean version of Behavior Problem Inventory(K-BPI) were used to test patients’ behavior problems. Beck Depression Inventory(BDI), Beck Anxiety Inventory(BAI), the Korean version of Parenting Stress Index Short Form(K-PSI) and the Korean version of World Health Organization Quality of Life Assessment Instrument(K-QOL) were used to test ASD mothers’ level of depression, anxiety, life stress and quality of life. Results：General and social relation domains of QOL were most declined in mothers of the early adolescents with the ASD. The frequency of self-injurious behavior showed significant correlations with the parent-child dysfunctional interaction and difficult child domains of the K-PSI as well as the psychological domain of the K-QOL. The frequency of stereotyped behavior demonstrated significant correlations with the psychological and physical domains of the K-QOL. Conclusion：This study demonstrates that the assessment of the mothers’ emotional status is necessary in treating patients with the ASD. It also shows that aggressive interventions are needed to reduce the frequencies of the stereotyped behavior and self-injurious behavior of the ASD patients, as well as the social support to lower the stress of the parents of adult ASD patients.
참고문헌 (42)
- American Psychiatric Association, "Diagnostic and statistical manual of mental disorders: DSM-5", pp.947~ (2013), American Psychiatric Association
- Fombonne E, "Epidemiology of pervasive developmental disorders", Pediatr Res, 65, pp.591~598 (2009)[DOI]
- Elsabbagh M, "Global prevalence of autism and other pervasive developmental disorders", Autism Res, 5, pp.160~179 (2012)[DOI]
- Christensen DL, "Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years--Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012", MMWR Surveill Summ, 65, pp.1~23 (2016)
- Kim YS, "Prevalence of autism spectrum disorders in a total population sample", Am J Psychiatry, 168, pp.904~912 (2011)[DOI]
- Herbert MR, "Autism and environmental genomics", Neurotoxicology, 27, pp.671~684 (2006)[DOI]
- Simonoff E, "Psychiatric disorders in children with autism spectrum disorders: prevalence, comorbidity, and associated factors in a population-derived sample", J Am Acad Child Adolesc Psychiatry, 47, pp.921~929 (2008)[DOI]
- Mattila ML, "Comorbid psychiatric disorders associated with Asperger syndrome", high-functioning autism: a community- and clinic-based study, 2010, pp.40, 1080~1093
- Lugnegard T, "Psychiatric comorbidity in young adults with a clinical diagnosis of Asperger syndrome", Res Dev Disabil, 32, pp.1910~1917 (2011)[DOI]
- Lugnegard T, "Personality disorders and autism spectrum disorders: what are the connections", Compr Psychiatry, 53, pp.333~340 (2012)[DOI]
- Hofvander B, "Psychiatric and psychosocial problems in adults with normal-intelligence autism spectrum disorders", BMC Psychiatry, 9 (2009)
- Kanne SM, "Aggression in children and adolescents with ASD: prevalence and risk factors", J Autism Dev Disord, 41, pp.926~937 (2011)[DOI]
- Baghdadli A, "Risk factors for self-injurious behaviours among 222 young children with autistic disorders", J Intellect Disabil Res, 47, pp.622~627 (2003)[DOI]
- Howlin P, "Adult outcome for children with autism", J Child Psychol Psychiatry, 45, pp.212~229 (2004)[DOI]
- Billstedt E, "Autism after Adolescence: Population-based 13- to 22-year Follow-up Study of 120 Individuals with Autism Diagnosed in Childhood", J Autism Dev Disord, 35, pp.351~360 (2005)[DOI]
- Howlin P, "Social Outcomes in Mid- to Later Adulthood Among Individuals Diagnosed With Autism and Average Nonverbal IQ as Children", J Am Acad Child Adolesc Psychiatry, 52, pp.572~581 (2013)[DOI]
- Deater-Deckard K, "Child care quality and children's behavioral adjustment: a four-year longitudinal study", J Child Psychol Psychiatry, 37, pp.937~948 (1996)[DOI]
- Hare DJ, "The health and social care needs of family carers supporting adults with autistic spectrum disorders", Autism, 8, pp.425~444 (2004)[DOI]
- Mary J., "Stress Levels and Adaptability in Parents of Toddlers with and without Autism Spectrum Disorders", Res Pract Persons Severe Disabl, 30, pp.194~204 (2005)[DOI]
- Eisenhower AS, "Preschool children with intellectual disability: syndrome specificity, behaviour problems, and maternal well-being", J Intellect Disabil Res, 49, pp.657~671 (2005)[DOI]
- Pisula E, "Sense of coherence and coping with stress among mothers and fathers of children with autism", J Autism Dev Disord, 40, pp.1485~1494 (2010)[DOI]
- Bromley J, "Mothers supporting children with autistic spectrum disorders: social support, mental health status and satisfaction with services", Autism, 8, pp.409~423 (2004)[DOI]
- Benson PR, "The impact of child symptom severity on depressed mood among parents of children with ASD: the mediating role of stress proliferation", J Autism Dev Disord, 36, pp.685~695 (2006)[DOI]
- Davis NO, "Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: associations with child characteristics", J Autism Dev Disord, 38, pp.1278~1291 (2008)[DOI]
- Peters-Scheffer N, "Maternal stress predicted by characteristics of children with autism spectrum disorder and intellectual disability", Res Autism Spectr Disord, 6, pp.696~706 (2012)[DOI]
- Plant KM, "Predictors of care-giver stress in families of preschool-aged children with developmental disabilities", J Intellect Disabil Res, 51, pp.109~124 (2007)[DOI]
- Chung KM, "Parenting stress and child behavior problems among clinic-referred youth: cross-cultural differences across the US and Korea", Child Psychiatry Hum Dev, 44, pp.460~468 (2013)[DOI]
- 김태련, "아동기자폐증평정척도" (1996), 도서출판특수교육
- 신민섭, "임상: 한국형아동기자폐증평정척도의 표준화연구: 신뢰도, 타당도및진단분할점산출", 한국심리학회지: 임상, 17, pp.1~15 (1998)
- 김승국, "사회성숙도검사" (1995), 中央適性出版社
- Doll EA, "Vineland social maturity scale: Condensed manual of directions" (1965), American Guidance Service
- 정병록, "Validity and reliability of the Korean version of the behavior problems inventory(BPI-01)", pp.2010
- 정영조, "원저: 한국판 Beck 우울척도의 표준화연구 1: 신뢰도 및 요인분석", 정신병리학, 4, pp.77~95 (1995)
- 이경숙, "게시발표: 한국형부모양육스트레스척도축약형(Korean-Parenting Stress Index-Short Form: K-PSI-SF)의 표준화 연구", 한국심리학회 연차학술발표논문집, pp.584~585 (2008)
- 민성길, "한국판세계보건기구삶의질간편형척도(WHOQOL-BREF)의개발= Development of Korean Version of WHO Quality of Life Scale Abbreviated Version(WHOQOL-BREF)", 신경정신의학, 39, pp.571~579 (2000)
- Gatzoyia D, "The association of illness perceptions with depressive symptoms and general psychological distress in parents of an offspring with autism spectrum disorder", Disabil Health J, 7, pp.173~180 (2014)[DOI]
- Cohrs AC, "Depression in Parents of Children Diagnosed with Autism Spectrum Disorder: A Claims-Based Analysis", J Autism Dev Disord, 47, pp.1416~1422 (2017)[DOI]
- Padden C, "Stress among Parents of Children with and without Autism Spectrum Disorder: A Comparison Involving Physiological Indicators and Parent Self-Reports", J Dev Phys Disabil, 29, pp.567~586 (2017)[DOI]
- Pilling S, "Recognition, referral, diagnosis, and management of adults with autism: summary of NICE guidance", BMJ, 344, pp.e4082~ (2012)[DOI]
- Gray DE, "Ten years on: a longitudinal study of families of children with autism", J Intellect Dev Disabil, 27, pp.215~222 (2009)
- Gabriels RL, "Repetitive behaviors in autism: relationships with associated clinical features", Res Dev Disabil, 26, pp.169~181 (2005)[DOI]
- Tint A, "Family wellbeing of individuals with autism spectrum disorder: A scoping review", Autism, 20, pp.262~275 (2016)[DOI]