장루보유자의 불편함
Distress of the Patients with Ostomy
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초록
본 연구는 장루보유자의 불편함을 이해하고 설명하기 위하여 질적 연구방법을 적용한 서술적 조사연구이다. 연구 참여자는 D시 2개 종합병원에서 대장암 수술 후 장루를 보유하고 있는 18세 이상 환자로 의사소통과 면담이 가능한 자, 연구의 목적을 이해하고 연구 참여에 동의한 총 6명으로 자료 수집은 2009년 7월 31일부터 2010년 1월 10일까지 이루어졌다. 본 연구의 자료 분석은 Krippendorff15)의 질적 연구 내용 분석에 따라 분석하였다. 장루보유자의 불편함은 ‘마음대로 먹지 못함’, ‘조절할 수 없는 대변’, ‘어렵고 힘든 삶’, ‘조마조마한 마음’, ‘싫고 불편한 장루’, ‘편하게 살지 못함’, ‘비관스러움’, ‘눈치 보는 삶’ 등 8개의 범주로 나누어졌다. 이처럼 장루보유자의 불편함은 신체적, 심리적, 사회적, 영적 영역의 모든 부분에 있어 관련이 되고 있으므로, 병원 현장에서 장루보유자 간호 시 간호 요구도에 따른 맞춤형 교육과 함께 정기적이고 지속적인 교육을 위한 체계가 마련되어야 할 것으로 사료된다.
Abstract
Purpose: The purpose of this study was to explore and describe the distress of the patients with ostomy. Methods: A descriptive research design was adopted for data collection and analysis. Six patients with ostomy participated in the study. The consent from the participants was obtained for ethical protection. Data were collected from July 31, 2009 to January 10, 2010 using in-depth interview technique. Krippendorff’s content analysis method was utilized for data analysis. Results: Eight categories and 26 themes were extracted from the data which illustrated the lived distress of the patients with ostomy. The categories were “do not have any freedom to eat whatever I wish to eat”, “uncontrolled defecation”, “have to live through tough situation”, “keep stoma in suspense”, “disgusting ostomy”, “can not live with comfort”, “easily take a pessimistic view”, and “see how the wind blows in daily family life”. Conclusion: Ostomates were affected by the distress of having an ostomy in their physical, psychological, social and spiritual life. Individualized and continued nursing education program has to be developed in hospital and community settings in order to improve the quality of life of the ostomates
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