호스피스 전문기관에 입원한 말기암환자 가족의 삶의 질 영향요인
Factors Affecting the Quality of Life of Family with Terminal Cancer Patients Hospitalized in Hospice Institutions
1
조회
0
다운로드
5
인용
0
참고문헌
키워드
초록
본 연구의 목적은 호스피스 전문기관에 입원한 말기암환자 가족의 영적안녕, 소진이 삶의 질에 미치는 영향요인을 규명하여 이들의 삶의 질을 증진하기 위한 간호중재의 기초자료를 제공하는데 있다. 본 연구결과 영적안녕이 높을수록, 소진이 낮을수록 삶의 질이 높았다. 말기암환자 가족의 삶의 질에 영향을 주는 요인으로는 소진, 지각한 건강상태, 영적안녕으로 나타났다. 이 요인들 중 소진이 삶의 질에 가장 큰 영향을 미치는 요인으로 나타나 소진은 감소시키고 나머지 변수들을 고려한 말기암환자 가족의 삶의 질을 증진시킬 수 있는 간호중재 프로그램의 개발이 필요하다고 사료된다. 또한 본 연구의 대상자 선정에 있어 일부 지역의 국한된 호스피스 전문기관에 입원한 말기암환자 가족을 대상으로 편의 추출하였으므로 연구결과를 일반화하거나 확대 해석 할 경우에는 신중을 기하여야 한다. 호스피스 전문기관에 입원한 말기암환자 가족을 대상으로 한 영적안녕, 소진, 삶의 질 정도에 대한 반복 연구가 요구된다. 또한 호스피스 전문기관의 완화의료도우미 제도에 따른 완화의료도우미 여부와 관련된 가족의 삶의 질 연구와 연명의료 결정법에 따라 호스피스 대상이 확대되었으므로 말기암환자 이외의 말기 대상 환자에 대한 연구가 필요함을 제언한다.
Abstract
Purpose: The purpose of this study is to identify factors affecting quality of life among family members of patients with terminal cancers hospitalized in hospice institutions. Method: This study used a descriptive design. The participants were 142 families of patients with terminal cancers from 7 hospice institutions from 6 cities in Korea. Data collection was conducted from January 21 through July 31 of 2017 using self-reported questionnaires. Data were anlayzed by descriptive statistics, t-test, analysis of variance, the Pearson correlation coefficient, and multiple regression analysis using the SPSS/WIN 18.0 program. Results: Quality of life was positively correlated with spiritual well-being (r=.49) and negatively correlated with burnout (r=-.59). Spiritual well-being was negatively correlated with burnout (r=-.49). Factors influencing the quality of life were burnout, perceived health status and spiritual well-being, which explained 44.1% of the variance. Conclusion: The findings of this study indicate that it is necessary to develop a nursing intervention program that can improve the quality of life of family members of terminal cancer patients considering burnout.
참고문헌 (30)
- "Cancer death rate" (2018)[URL]
- Korean Catholic University Hospice Education Institute, "Hospice and palliative care", pp.1~651 (2012), Koonja publisher
- Korean Hospice Palliative Nurses Association, "Hospice palliative nursing", pp.1~527 (2015), Hyunmoonsa
- "National cancer management business" (2016)[URL]
- "Hospice available rate" (2019)[URL]
- 김선영, "말기암 환자 가족보호자의 삶의 질에 영향을 미치는 요인", 생물치료정신의학, 20(3), pp.227~237 (2014), 대한생물치료정신의학회
- Geraldine V. Padilla, "Quality of life as a cancer nursing outcome variable", Advances in Nursing Science, 8(1), pp.45~60 (1985), Ovid Technologies (Wolters Kluwer Health)[DOI]
- Michael A Weitzner, "Family Caregiver Quality of Life", Journal of Pain and Symptom Management, 17(6), pp.418~428 (1999), Elsevier BV[DOI]
- Han YR, "Relationship among family primary caregiver characteristics, burden with hospice care and quality of life", master, pp.2010
- Park MY, "The relationship between burden, spiritual well-being, and quality of life in family of terminal cancer inpatients in Korea hospice palliative care institutions", master, pp.2015
- Pines A, "Burnout from tedium to personal growth", pp.1~229 (1981), The Free
- Bonnie Teschendorf, "Caregiver Role Stress: When Families Become Providers", Cancer Control, 14(2), pp.183~189 (2017), SAGE Publications[DOI]
- Susan C. McMillan, "A study of quality of life of hospice patients on admission and at week 3", Cancer Nursing, 17(1), pp.52~60 (1994), Ovid Technologies (Wolters Kluwer Health)[DOI]
- 안은정, "말기암환자 가족원의 부담감과 소진", Asian Oncology Nursing, 5(1), pp.40~51 (2005), 대한종양간호학회
- Fish S, "Spiritual care: The nurse’s role", pp.1~251 (1988), Intervarsity Press
- Kang YU, "Hospice introduction", pp.1~423 (2010), Korea Hospice Association
- Kim CG, "A comparison of quality of life between the families of cancer patients and those of hospice patients", Journal of Korean Academic Society of Adult Nursing, 9(3), pp.545~557 (1997)
- Lee EJ, "A study of the relation between quality of life and family burden of home-based hospice patient family", Journal of Korean Hospice Care, 6(2), pp.69~78 (2006)
- 양은영, "말기암환자 가족원의 부담감과 삶의 질: 전남지역을 중심으로", 한국산학기술학회논문지, 16(6), pp.3954~3962 (2015), 한국산학기술학회[DOI]
- Judith E. Thomson, "The Place of Spiritual Well-Being in Hospice Patients’ Overall Quality of Life", The Hospice Journal, 15(2), pp.13~27 (2017), Informa UK Limited[DOI]
- Woung-Ru Tang, "Hospice family caregivers’ quality of life", Journal of Clinical Nursing, 18(18), pp.2563~2572 (2009), Wiley[DOI]
- Marvin Omar Delgado-Guay, "Spirituality, Religiosity, and Spiritual Pain Among Caregivers of Patients With Advanced Cancer", American Journal of Hospice and Palliative Medicine®, 30(5), pp.455~461 (2012), SAGE Publications[DOI]
- Tanya Connell, "Quality of life of community-based palliative care clients and their caregivers", Palliative and Supportive Care, 11(4), pp.323~330 (2013), Cambridge University Press (CUP)[DOI]
- Heide Götze, "Erschöpfung und Überlastung pflegender Angehöriger von Krebspatienten in der palliativen Situation", PPmP - Psychotherapie · Psychosomatik · Medizinische Psychologie, 65(02), pp.66~72 (2015), Georg Thieme Verlag KG[DOI]
- Ro YJ, "Quality of life among renal transplantation recipients", Journal of Korean Academic Society of Adult Nursing, 5(2), pp.142~156 (1993)
- Paloutzian R, "Loneliness: A source book of current theory, research and therapy", pp.224~237 (1982), Wiley Interscience
- Kang JH, "A investigate study on spiritual wellbeing of cancer patients", master, pp.1996
- 신미혜, "암환자 간호사의 소진 영향요인 분석*", Asian Oncology Nursing, 3(1), pp.75~84 (2003), 대한종양간호학회
- 김경진, "암 병원 간호사의 영성, 죽음불안 및 소진", Journal of Hospice and Palliative Care, 16(4), pp.264~273 (2013), 한국호스피스완화의료학회
- 주경복, "A Study of Care Burden, Burnout, and Quality of Life among Family Caregivers for the Elderly", 여성건강간호학회지, 14(4), pp.278~289 (2008), 한국여성건강간호학회