만성질환아동 부모의 부모되기 경험
Parenting Experience of Parents with Chronically Ill Children
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참고문헌
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초록
Purpose: The purpose of the study was to describe the parenting experience of parents of children with chronic illness in Korea. Methods: A conventional contents analysis was used for the study. Twelve mothers of chronically ill children participated in the study. Qualitative data were analyzed using the Morse and Field method. Results: Four categories, 10 subcategories and 42 codes emerged from the data on the parenting experience of parents of children with chronic illness. The four categories were ‘Sacrifice and full-engagement within self-mortification’, ‘Renormalization of collapsed daily life’, ‘Paving a new way for independence’ and ‘Growing together of myself and the family’. Conclusion: Parents of children with chronic illness experienced not only negative aspects such as a confusion but also re-normalization and growing together. Based on the results, health professionals need to develop effective nursing interventions toward positive parenting for these parents and their children with chronic illnesses.
Abstract
Purpose: The purpose of the study was to describe the parenting experience of parents of children with chronic illness in Korea. Methods: A conventional contents analysis was used for the study. Twelve mothers of chronically ill children participated in the study. Qualitative data were analyzed using the Morse and Field method. Results: Four categories, 10 subcategories and 42 codes emerged from the data on the parenting experience of parents of children with chronic illness. The four categories were ‘Sacrifice and full-engagement within self-mortification’, ‘Renormalization of collapsed daily life’, ‘Paving a new way for independence’ and ‘Growing together of myself and the family’. Conclusion: Parents of children with chronic illness experienced not only negative aspects such as a confusion but also re-normalization and growing together. Based on the results, health professionals need to develop effective nursing interventions toward positive parenting for these parents and their children with chronic illnesses.
참고문헌 (28)
- "Children with special health care needs" (2013)[URL]
- Park ES, "Maternal uncertainty in childhood chronic illness", Journal of Korean Academy of Child Health Nursing, 4(2), pp.207~220 (1998)
- Coffey JS, "Parenting a child with chronic illness : A meta-synthesis", Pediatric Nursing, 32(1), pp.51~59 (2006)
- Whittemore R, "Psychological experience of parents of children with Type 1 Diabetes: A systematic mixed-study review", The Diabetes Educator, 38, pp.562~579 (2012)[DOI]
- Monaghan M, "Authoritative parenting, parenting stress, and self-care in pre-adolescents with type 1 diabetes", Journal of Clinical Psychology in Medical Settings, 19(3), pp.255~261 (2012)[DOI]
- Knafl K., "Parental perception of the outcome and meaning of normalization", Research in Nursing and Health, 33(2), pp.87~98 (2010)[DOI]
- Pinquart M., "Do the parent-child relationship and parenting behaviors differ between families with a child with and without chronic illness?", Journal of Pediatric Psychology, 38(7), pp.1~14 (2013)[DOI]
- 석민현, "만성질환 아동과 가족에 관한 국내 연구 동향", 한국모자보건학회지, 8(1), pp.121~134 (2004), 한국모자보건학회
- Kim JY, "Relationship between parenting burden and parenting attitude in mothers of children with chronic illness", master, pp.2009
- Kim MY, "Neonatal Nursing" (2011), Goonja Publishers
- Knafl K, "Primary Care of the child with a chronic condition", pp.74~89 (2010), Mosby
- Lauver LS, "Parenting foster children with chronic illness and complex medical needs", Journal of Family Nursing, 14(1), pp.74~96 (2008)[DOI]
- Cashin GH, "The lived experience of fathers who have children with asthma: A phenomenological study", Journal of Pediatric Nursing, 23(5), pp.372~385 (2008)[DOI]
- Morse JM, "Qualitative Research Methods for Health Professionals" (1995), Chapman & Hall
- Guba EG, "Effective evaluation" (1992), Jossey-Bass Publishers
- Hatton D, "Parents perceptions of caring for an infants or toddler with diabetes", Journal of Advanced Nursing, 22(3), pp.569~577 (1995)
- Jerrett M, "Parent’s experience of coming to know the care of a chronically ill child", Journal of Advanced Nursing, 19(6), pp.1050~1056 (1994)
- Johnson B, "Mothers perceptions of parenting children with disabilities", The American Journal of Maternal, 2000, pp.25(3), 127~132
- 박은숙, "From Their Own Response: Experiences of Korean Children with Chronic Illness and Their Families", Child Health Nursing Research, 15(4), pp.350~358 (2009), 한국아동간호학회
- Patterson JM, "Integrating Family Resilience and Family Stress Theory", Journal of Marriage and Family, 64(2), pp.340~360 (2002)[DOI]
- 박은숙, "만성질환 아동과 부모의 치료적 제한에 대한 인식과 건강행위", Child Health Nursing Research, 12(3), pp.405~416 (2006), 한국아동간호학회
- Emiliani F, "Process of normalization in families with children affected by hemophilia", Qualitative Health Research, 21(2), pp.1667~1678 (2011)[DOI]
- 김소형, "진행성근위축 아동 어머니의 자녀 양육 경험 분석", 지체.중복.건강장애연구, 56(1), pp.187~213 (2013), 한국지체.중복.건강장애교육학회
- Oh SE, "The lived experience of mothers of children with muscular dystrophy", Korean Journal of Child Health Nursing, 7(4), pp.421~433 (2001)
- 오원옥, "주의력결핍 과잉행동장애(ADHD) 아동 부모의 양육 경험: 정상에 다가가기", Journal of Korean Academy of Nursing, 37(1), pp.91~104 (2007), 한국간호과학회
- Kim EK., "Types of normalization process in families with disabled children", 박사, pp.2012
- Allen PJ, "Primary Care of the child with a chronic condition" (2010), Mosby
- Wright LM, "Nurses and families: A guide to family assessment and intervention" (2009), F. A. Davis company