지체부자유 학생 근 위축 증후의 양상 및 대처 자원 연구

Abstract

The purpose of this study was to investigate the symptoms of muscular dystrophy and coping resources of students with physical and multiple disabilities. Muscular dystrophy is a group of primary muscle diseases characterized by progressive weakness and death of muscle fibers. There is no associated change in the central nervous system in the muscular dystrophies. The most common form of muscular dystrophy is Duchenne muscular dystrophy(DMD), which was named after the neurologist G. B. A Duchenne. DMD occurs as a result of the absence or alteration of a protein called dystrophin ; the gene for dystrophin production is located on one of the female's X chromosomes. As a result of its location, DMD is aSexlinkeddisease, and it affects one in every 3,300 live male births. Females transmit the condition to 50% of their male offspring but are not affected themselves. In the final stages of muscular dystrophy, there is an increased incidence of respiratory infections. Individuals with Duchenne muscular dystrophy often live until adolescence or young adulthood. The results of this study were as follows; First, an aspect of muscular symptoms in the student with physical and multiple disabilities were about 200 equivalent that was Duchenne muscular dystrophy, Backer muscular dystrophy, Facioscapulohumeral dystrophy etc. Second, the coping resources of muscular dystrophy symptoms in the student with physical and multiple disabilities were learning support service, daily living and career service, family support service. Finally, the therapeutic education method of muscular dystrophy symptoms in the student with physical and multiple disabilities was selected therapeutic education service by the play, exercise, and work centered.