근위축성측삭경화증 환자의 적응과정
The Adjustment Process of Patients with Amyotrophic Lateral Sclerosis
0
조회
0
다운로드
3
인용
0
참고문헌
키워드
초록
Purpose: The purpose of this study was to describe the adjustment process of patients with Amyotrophic Lateral Sclerosis(ALS). Method: The data were collected from May 2007 to February 2008 through individual in-depth interviews with 4 ALS patients. The data collection and analysis were performed according to grounded theory methodology, as suggested by Strauss and Corbin. Results: ‘Accepting the sick role’ was the central phenomenon, which was derived from ‘perceiving an intial symptom’. Therefore, the adjustment pattern was represented by using the different strategies, which were ‘raising hope’ and ‘hoping to dye comfortably’. For taking a view of the future, ALS patients adopted the strategies of ‘living positively’, ‘being treated hardly’, ‘joining in the experience’, ‘depending on the absolute being’, ‘recognizing the dying process’. Conclusion: This study provides guidance for the development of nursing interventions for patients with ALS.
Abstract
Purpose: The purpose of this study was to describe the adjustment process of patients with Amyotrophic Lateral Sclerosis(ALS). Method: The data were collected from May 2007 to February 2008 through individual in-depth interviews with 4 ALS patients. The data collection and analysis were performed according to grounded theory methodology, as suggested by Strauss and Corbin. Results: ‘Accepting the sick role’ was the central phenomenon, which was derived from ‘perceiving an intial symptom’. Therefore, the adjustment pattern was represented by using the different strategies, which were ‘raising hope’ and ‘hoping to dye comfortably’. For taking a view of the future, ALS patients adopted the strategies of ‘living positively’, ‘being treated hardly’, ‘joining in the experience’, ‘depending on the absolute being’, ‘recognizing the dying process’. Conclusion: This study provides guidance for the development of nursing interventions for patients with ALS.
참고문헌 (30)
- Bascom, P. B., "Responding to requests for physician-assisted suicide. These are uncharted water for both of us...", JAMA, 288(1), pp.91~98 (2002)
- Bolmsjö,I., "Existential issues in palliative care: Interviews of patients with amyotrophic lateral sclerosis", J Palliat Med, 4(4), pp.499~505 (2001)
- Bolmsjö, I., "Interviews with patients, family, and caregivers in amyotrophic lateral sclerosis: Comparing needs", J Palliat Care, 17(4), pp.236~240 (2001)
- Centers,L.C., "Beyond denial and despair: ALS and our heroic potential for hope", J Palliat Care, 17(4), pp.259~264 (2001)
- Chiò, A., "A cross sectional study on determinants of quality of life in ALS", J Neurol Neurosurg Psychiatry, 75, pp.1597~1601 (2004)
- Dal Bello-Haas, V., "Spiritual well-being of the individual with amyotrophic lateral sclerosis", Amyotroph Lateral Scler Other Motor Neuron Disord, 1, pp.337~341 (2000)
- del Aguila, M. A., "Prognosis in amyotrophic lateral sclerosis: A population-based study", Neurology, 60, pp.813~819 (2003)
- Haverkamp, L. J., "Natural history of amyotrophic lateral sclerosis in a database population.Validation of a scoring system and a model for survival prediction", Brain, 118, pp.707~719 (1995)
- Kim, H. Y., "Recombinant human erythropoietin therapy in amyotrophic lateral sclerosis patients" (2008), Manuscript submitted for publication
- Kim,S.H., "Diagnosis and therapeutic strategies of amyotrophic lateral sclerosis", Hanyang Med Rev, 26(1), pp.44~51 (2006)
- Kim,W.O., "The adjustment process of patients with hemophilia", 박사, pp.2001
- MND tell the diagnosis story: What happened before they knew. International Symposium on ALS, "People living with ALS", pp.Taylor & Francis, MND: vol. 7 (Suppl. 1). Amyotrophic Lateral Sclerosis
- Lee, K. W., "Textbook of neurology" (2005), Panmum Books
- Lee,Y.K., "Development and evaluation of self-care program for patients with amyotrophic lateral sclerosis", 박사, pp.2007
- Lee, Y. K., "Physical function of patients with amyotrophic lateral sclerosis", J Rheumatol Health, 13(2), pp.130~140 (2006)
- Louwerse, E. S., "Amyotrophic lateral sclerosis: Mortality risk during the course of the disease and prognostic factors. The Netherlands ALS Consortium", J Neurol Sci, 152(1), pp.S10~S17 (1997)
- Mitsumoto, H., "Improving the quality of life for people with ALS: The challenge ahead", Amyotroph Lateral Scler Other Motor Neuron Disord, 1, pp.329~336 (2000)
- MND: vol. 7(Suppl. 1). Amyotrophic Lateral Sclerosis, "Patients' experiences when diagnosed of ALS. International Symposium on ALS", pp.2006, Mori, T.
- MND from personal illness narratives posted on the internet?. International Symposium on ALS, "What can we learn about living with ALS", pp.Taylor & Francis, MND: vol. 7(Suppl. 1). Amyotrophic Lateral Sclerosis
- Oh,H.J., "A study on the functional status and depression in amyotrophic lateral sclerosis", 학사, pp.2003
- Paek,S.K., "A study on the burden of family caregivers of amyotrophic lateral sclerosis patients", 학사, pp.2005
- Park, K. H., "Preliminary study on clinical characteristics and caregivers' burden of Korean patients with amyotrophic lateral sclerosis; Survey based on database of Korea ALS Association", J Korean Neurol Assoc, 24(3), pp.252~259 (2006)
- Robbins, R. A., "Quality of life in ALS is maintained as physical function declines", Neurology, 56, pp.442~444 (2001)
- Rowland, L. P., "Amyotrophic lateral sclerosis", N Engl J Med, 344(22), pp.1688~1700 (2001)
- Simmons,Z., "Management strategies for patients with amyotrophic lateral sclerosis from diagnosis through death", Neurologist, 11(5), pp.257~270 (2005)
- Simmons, Z., "Quality of life in ALS depends on factors other than strength and physical function", Neurology, 55(3), pp.388~392 (2000)
- Strauss, A., "Basics of qualitative research: Grounded theory procedures and techniques" (1990), Sage Publications
- MND: vol. 7(Suppl. 1).Amyotrophic Lateral Sclerosis, "Factors determining euthanasia and physicianassisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands. International Symposium on ALS", pp.2006, Veldink, J. H.
- Walling,A.D., "Amyotrophic lateral sclerosis: Lou Gehrig's disease", Am Fam Physician, 59(6), pp.1489~149 (1999)
- "El Escorial World Federation of Neurology Criteria for the Diagnosis of ALS, revised criteria"[URL]