파킨슨병을 앓고 있는 여성노인의 체험
The Lived Experiences of Older Women with Parkinson's Disease
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Purpose: This study was done to explore the lived experiences in older Korean women with early stage of Parkinson’s disease. The research question was "What is the meaning and nature of the older women’s experiences who were diagnosed with Parkinson's disease?" Methods: In this study, we adopted van Manen’s hermeneutic phenomenological approach to find the lived experiences of older women diagnosed with Parkinson's disease. Six older women diagnosed with Parkinson’s disease within five years participated, and data were collected through in-depth interviews. Results: Five fundamental lifeworld themes and seven subthemes emerged from the data. The first theme of corporeality had three subthemes: ‘being shocked by an unexpected diagnosis’, ‘fewer things can be done due to the illness’ and ‘lost my prettiness’. The second theme representing relationality was ‘hiding the illness because of others’ whispering’. The temporality theme was ‘fear of symptom aggravation’. The spatiality theme was ‘being placed in a blind spot of information’. The last existential theme of material had ‘obsession with drugs’. Conclusion: The results of this study provide an in-depth understanding of older womens experiences of living with Parkinson's disease. The findings can help develop interventions specific to these group of women to provide sufficient emotional support and accurate information.
Abstract
Purpose: This study was done to explore the lived experiences in older Korean women with early stage of Parkinson’s disease. The research question was "What is the meaning and nature of the older women’s experiences who were diagnosed with Parkinson's disease?" Methods: In this study, we adopted van Manen’s hermeneutic phenomenological approach to find the lived experiences of older women diagnosed with Parkinson's disease. Six older women diagnosed with Parkinson’s disease within five years participated, and data were collected through in-depth interviews. Results: Five fundamental lifeworld themes and seven subthemes emerged from the data. The first theme of corporeality had three subthemes: ‘being shocked by an unexpected diagnosis’, ‘fewer things can be done due to the illness’ and ‘lost my prettiness’. The second theme representing relationality was ‘hiding the illness because of others’ whispering’. The temporality theme was ‘fear of symptom aggravation’. The spatiality theme was ‘being placed in a blind spot of information’. The last existential theme of material had ‘obsession with drugs’. Conclusion: The results of this study provide an in-depth understanding of older womens experiences of living with Parkinson's disease. The findings can help develop interventions specific to these group of women to provide sufficient emotional support and accurate information.
참고문헌 (30)
- Kristen Anzaldi, "Optimism, Pessimism, Coping, and Depression: A Study on Individuals With Parkinson’s Disease", The International Journal of Aging and Human Development, 88(3), pp.231~249 (2018), SAGE Publications[DOI]
- 배은숙, "파킨슨병 환자에 대한 집단 음악요법의 심리적 중재 효과", 지역사회간호학회지, 27(2), pp.153~162 (2016), 한국지역사회간호학회[DOI]
- C. Becker, "Risk of incident depression in patients with Parkinson disease in the UK", European Journal of Neurology, 18(3), pp.448~453 (2011), Wiley[DOI]
- 변지용, "파킨슨병 환자의 그룹 운동프로그램 참여 경험에 대한 현상학적 연구", 한국체육학회지, 54(4), pp.665~678 (2015), 한국체육학회
- Charlton, G. S., "Coping and self help group membership in parkinson's disease : An exploratory qualitative study", Health & Social Care in the Community, 10(6), pp.472~478 (2002)
- De La Fuente-Fernandez, R., "The placebo effect in parkinson's disease", Trends in Neurosciences, 25(6), pp.302~306 (2002)
- Donnelly, L. R., "The impact of oral health on body image and social interactions among elders in long term care", Gerodontology, 33(4), pp.480~489 (2016)
- Edward Zwick., "Love and other drugs" (2010), Fox 2000 pictures
- Kim, H. N., "The reason I having fun today" (2015), Galleon
- Kim, H. N., "To live today" (2017), Ghana
- 김정선, "재가 여성노인의 약물 얽매임 경험", Journal of Korean Academy of Nursing, 36(8), pp.1215~1223 (2006), 한국간호과학회
- 김남희, "여성 노인의 신체적․사회적 특성이 자아존중감 및 삶의 만족도에 미치는 영향", 한국콘텐츠학회 논문지, 11(11), pp.241~252 (2011), 한국콘텐츠학회
- 김성렬, "경증 파킨슨병 환자의 비 운동성 증상과 삶의 질", 한국노년학, 35(4), pp.913~928 (2015), 한국노년학회
- 김성렬, "젊은 나이에 발병한 파킨슨병 환자의 건강-질병 전환 경험 과정", Journal of Korean Academy of Nursing, 43(5), pp.636~648 (2013), 한국간호과학회
- 김수영, "파킨슨병을 앓고 있는 노인의 질병경험에 관한 현상학적 연구", 노인복지연구, (68), pp.217~250 (2015), 한국노인복지학회[DOI]
- 김양신, "파킨슨병 독거노인의 질병체험", 성인간호학회지, 30(4), pp.394~403 (2018), 한국성인간호학회[DOI]
- Liao, Y. C., "The experiences of Taiwanese older individuals at different stages of Parkinson disease", Journal of Neuroscience Nursing, 45(6), pp.370~377 (2013)
- Lim, J. H., "Treatment of parkinson's disease", Journal of Korean Neurological Association, 19(4), pp.315~336 (2001)
- Michael Kinsley, "For those who grow old for the first time" (2017), Wednesday to read books
- 민경훈, "여성노인의 신체활동참여와 운동정서, 신체상, 고독감의 관계", 한국체육과학회지, 17(4), pp.157~171 (2008), 한국체육과학회
- Janice M. Morse, "The Significance of Saturation", Qualitative Health Research, 5(2), pp.147~149 (2016), SAGE Publications[DOI]
- "National Health Insurance Statistical Yearbook" (2017)[URL]
- 박영례, "파킨슨병 환자의 적극적 삶의 추구과정", Journal of Korean Academy of Nursing, 36(5), pp.710~720 (2006), 한국간호과학회
- Tamara Pringsheim, "The prevalence of Parkinson's disease: A systematic review and meta-analysis", Movement Disorders, 29(13), pp.1583~1590 (2014), Wiley[DOI]
- Atami Sagna, "Systematic review of factors associated with depression and anxiety disorders among older adults with Parkinson's disease", Parkinsonism & Related Disorders, 20(7), pp.708~715 (2014), Elsevier BV[DOI]
- Sandelowski, M., "The problem of rigor in qualitative research", Advances in Nursing Science, 8(3), pp.27~37 (1986)
- 선순희, "지역사회에 거주하는 파킨슨병환자의 낙상공포 영향 요인", 한국콘텐츠학회 논문지, 16(1), pp.676~687 (2016), 한국콘텐츠학회[DOI]
- Sze-Ee Soh, "Determinants of health-related quality of life in Parkinson’s disease: A systematic review", Parkinsonism & Related Disorders, 17(1), pp.1~9 (2011), Elsevier BV[DOI]
- van Manen, M., "Phenomenology of practice" (2014), Left Coast Press
- Yaron Zilberman, "A late quartet" (2012), Westend Films