복합만성질환을 가진 자녀를 둔 부모의 소아청소년 완화의료 요구도
Needs for Pediatric Palliative Care among Parents of Children with Complex Chronic Conditions
0
조회
0
다운로드
2
인용
0
참고문헌
키워드
초록
Purpose: The purpose of this study was to investigate the needs for pediatric palliative care (PPC) among parents of children with complex chronic conditions (CCCs) and to investigate differences in the needs for PPC according to their general characteristics. Methods: A cross-sectional survey was conducted between March 28 and May 18, 2018. Parents (N=96) who had a child under 18 years with a CCC were recruited. Data were analyzed using descriptive statistics, independent t-test, and one-way ANOVA. Results: The overall average need for PPC was 3.58±0.33 out of 4.00. In terms of care for the subjects' children, the highest need was physical care, followed by psychosocial and spiritual care. In the sub-dimensions, preservation of physical function received the highest score. Of the items, the highest need was for seizure control. In terms of care for the subjects themselves, the highest need was for psychosocial care, followed by bereavement and spiritual care. In the sub-dimensions, communication received the highest score. Of the items, the highest need was for smooth communication with medical staff. Differences in needs for PPC according to participants’ general characteristics were not statistically significant. Conclusion: Medical staff should provide PPC according to the priorities of parents’ perceived needs.
Abstract
Purpose: The purpose of this study was to investigate the needs for pediatric palliative care (PPC) among parents of children with complex chronic conditions (CCCs) and to investigate differences in the needs for PPC according to their general characteristics. Methods: A cross-sectional survey was conducted between March 28 and May 18, 2018. Parents (N=96) who had a child under 18 years with a CCC were recruited. Data were analyzed using descriptive statistics, independent t-test, and one-way ANOVA. Results: The overall average need for PPC was 3.58±0.33 out of 4.00. In terms of care for the subjects' children, the highest need was physical care, followed by psychosocial and spiritual care. In the sub-dimensions, preservation of physical function received the highest score. Of the items, the highest need was for seizure control. In terms of care for the subjects themselves, the highest need was for psychosocial care, followed by bereavement and spiritual care. In the sub-dimensions, communication received the highest score. Of the items, the highest need was for smooth communication with medical staff. Differences in needs for PPC according to participants’ general characteristics were not statistically significant. Conclusion: Medical staff should provide PPC according to the priorities of parents’ perceived needs.
참고문헌 (30)
- [URL]
- [URL]
- Committee on Bioethics, "Palliative care for children", Pediatrics, 106(2), pp.351~357 (2000)[DOI]
- Feudtner C, "Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington State, 1980-1997", Pediatrics, 106(1), pp.205~209 (2000)
- 김민선, "Pediatric Deaths Attributed to Complex Chronic Conditions over 10 Years in Korea: Evidence for the Need to Provide Pediatric Palliative Care", Journal of Korean Medical Science, 33(1), pp.1~13 (2018), 대한의학회
- [URL]
- Davies B, "Addressing spirituality in pediatric hospice and palliative care", Journal of Palliative Care, 18(1), pp.59~67 (2002)
- 강경아, "소아청소년 호스피스ㆍ완화의료", Journal of Hospice and Palliative Care, 15(3), pp.131~140 (2012), 한국호스피스완화의료학회
- Himelstein BP, "Pediatric palliative care", The New England Journal of Medicine, 350(17), pp.1752~1762 (2004)[DOI]
- 정극규, "소아의 호스피스 완화의료", Journal of Hospice and Palliative Care, 5(1), pp.10~16 (2002), 한국호스피스완화의료학회
- 강경아, "한국 아동 호스피스의 현황과 전망", Child Health Nursing Research, 9(2), pp.190~197 (2003), 한국아동간호학회
- Section on Hospice, "Pediatric palliative care and hospice care commitments, guidelines, and recommendations", Pediatrics, 132(5), pp.966~972 (2013)[DOI]
- [URL]
- Drake R, "The symptoms of dying children", Journal of Pain and Symptom Management, 26(1), pp.594~603 (2003)[DOI]
- 강경아, "암 환아 가족의 아동 호스피스 요구 측정도구 개발", Child Health Nursing Research, 11(1), pp.72~82 (2005), 한국아동간호학회
- Kang T, "Pediatric palliative, end-of-life, and bereavement care", Pediatric Clinics of North America, 52(4), pp.1029~1046 (2005)[DOI]
- [URL]
- Meert KL, "The spiritual needs of parents at the time of their child's death in the pediatric intensive care unit and during bereavement: A qualitative study", Pediatric Critical Care Medicine, 6(4), pp.420~427 (2005)[DOI]
- Lynn MR, "Determination and quantification of content validity", Nursing Research, 35(6), pp.382~386 (1986)
- Polit DF, "Focus on research methods: Is the CVI an acceptable indicator of content validity? Appraisal and recommendations", Research in Nursing & Health, 30(4), pp.459~467 (2007)[DOI]
- Polit DF, "The content validity index: Are you sure you know what's being reported? critique and recommendations", Research in Nursing and Health, 29(5), pp.489~497 (2006)[DOI]
- Korean Society for Hospice and Palliative Care, "Textbook of hospice and palliative care", pp.398~415 (2018), Koonja
- Siden H, "Pediatric palliative care for children with progressive nonmalignant diseases", Children, 5(2), pp.E28~ (2018)[DOI]
- Annual report of cancer statistics in Korea in 2015, "National Cancer Center", National Cancer Center, ~, pp.Report No.: 11-1352000-000145-10 (2015)
- 강경아, "암 환아 가족의 아동 호스피스 요구도", Journal of Hospice and Palliative Care, 7(2), pp.221~231 (2004), 한국호스피스완화의료학회
- 구현영, "암환아 부모의 호스피스 간호에 대한 인식과 요구", Child Health Nursing Research, 15(3), pp.325~333 (2009), 한국아동간호학회
- 정영순, "외래통원 암 환아 가족의 아동호스피스요구", 한국산학기술학회논문지, 13(4), pp.1706~1713 (2012), 한국산학기술학회[DOI]
- [URL]
- Verberne LM, "Barriers and facilitators to the implementation of a paediatric palliative care team", BMC Palliative Care, 17(1), pp.23~ (2018)[DOI]
- [URL]