Experiences of Mothers of Premature Infants Receiving Rehabilitation Therapy
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Purpose: The purpose of this study was to explore and develop a deeper understanding of the experiences of mothers of premature children receiving rehabilitation therapy. Methods: The participants were 12 mothers with premature children who had received rehabilitation therapy for over 1 year. Individual in-depth interviews were conducted from July to August 2017. The data were analyzed through the phenomenological research method. Results: The participants’ experience was structured into five thematic clusters: ‘Regret and guilt that premature birth led to rehabilitation therapy’, ‘Burden of life in an endless tunnel’, ‘Changes in personal relationships surrounding me and my child’, ‘Meaning of new life through my child’, and ‘Desire to expand the rehabilitation of premature infants’. Conclusion: The results of this study will be helpful for developing family-centered care programs for premature infants at high risk of developmental disorders.
Abstract
Purpose: The purpose of this study was to explore and develop a deeper understanding of the experiences of mothers of premature children receiving rehabilitation therapy. Methods: The participants were 12 mothers with premature children who had received rehabilitation therapy for over 1 year. Individual in-depth interviews were conducted from July to August 2017. The data were analyzed through the phenomenological research method. Results: The participants’ experience was structured into five thematic clusters: ‘Regret and guilt that premature birth led to rehabilitation therapy’, ‘Burden of life in an endless tunnel’, ‘Changes in personal relationships surrounding me and my child’, ‘Meaning of new life through my child’, and ‘Desire to expand the rehabilitation of premature infants’. Conclusion: The results of this study will be helpful for developing family-centered care programs for premature infants at high risk of developmental disorders.
참고문헌 (28)
- [URL]
- 김영돈, "신생아 집중치료 지역센터 지정이 제주 지역 신생아 사망률 및 유병률에 미치는 영향", Neonatal medicine, 21(1), pp.10~17 (2014), 대한신생아학회
- 한원호, "Recent Trends in Neonatal Mortality in Very Low Birth Weight Korean Infants: In Comparison with Japan and the USA", Journal of Korean Medical Science, 26(4), pp.467~473 (2011), 대한의학회
- Bos AF, "Neurodevelopmental outcome in preterm infants", Developmental Medicine & Child Neurology, 53(s4), pp.35~39 (2011)[DOI]
- Terrien Church P, "The perfect storm: The high prevalence low severity outcomes of the preterm survivors", Current Pediatric Reviews, 8(2), pp.142~151 (2012)[DOI]
- 천미경, "극소 저체중 출생아에서 뇌실 내 출혈의 중증도 관련 위험 요인과 신경발달학적 예후", Perinatology, 25(4), pp.266~275 (2014), 대한주산의학회
- Vohr BR, "Neurodevelopmental outcomes of extremely low birth weight infants <32 weeks' gestation between 1993 and 1998", Pediatrics, 116(3), pp.635~643 (2005)[DOI]
- Ahn YM, "Rehabilitation of premature infants", Korean Journal of Nursing Query, 7(2), pp.33~49 (1998)
- 김민희, "극소저출생체중아 어머니를 위한 병원중심의 추후관리 프로그램의 효과", Journal of Korean Academy of Nursing, 46(1), pp.79~89 (2016), 한국간호과학회
- 방경숙, "미숙아와 어머니의 인구사회학적, 임상적 특성과 산후우울과의 관련성", Child Health Nursing Research, 21(1), pp.1~10 (2015), 한국아동간호학회[DOI]
- 황현숙, "미숙아를 출산한 어머니의 양육스트레스", Child Health Nursing Research, 19(1), pp.39~48 (2013), 한국아동간호학회[DOI]
- Treyvaud K, "Family functioning, burden and parenting stress 2 years after very preterm birth", Early Human Development, 87(6), pp.427~431 (2011)[DOI]
- 이채원, "미숙아 자녀의 장애유무가 어머니의 우울에 미치는 영향−양육스트레스의 매개효과 분석-", 사회과학연구, 29(2), pp.51~75 (2013), 사회과학연구소
- An YH, "Health status, factors impacting health of mothers of children with and without disabilities", pp.2017
- Lemos RA, "Functional development of preterm infants: An integrative literature review", Fisioterapia em Movimento, 29(3), pp.623~633 (2016)[DOI]
- 전미영, "미숙아 어머니의 양육경험: Q 방법론적 접근", Journal of Korean Academy of Nursing, 43(6), pp.704~713 (2013), 한국간호과학회
- 박현선, "미숙아 출산 가정의 퇴원 후 적응 과정에관한 질적 연구:주양육자의 경험을 중심으로", 한국아동복지학, (24), pp.151~175 (2007), 한국아동복지학회
- 김진숙, "발달장애자녀 어머니의 양육경험: 질적 메타종합연구", 한국심리학회지: 상담 및 심리치료, 27(2), pp.463~490 (2015), 한국상담심리학회
- Colaizzi PF, "Psychological research as the phenomenologist views it", pp.48~71 (1978), Oxford University Press
- Sandelowski M, "The problem of rigor in qualitative research", Advances in Nursing Science, 8(3), pp.27~37 (1986)[DOI]
- 김은숙, "지지간호가 미숙아 어머니의 산후 우울에 미치는 효과", 임상간호연구, 15(3), pp.157~170 (2009), 병원간호사회
- 이유리, "미숙아 지원정책 개선 방안 모색을 위한 국제비교 연구", 보건사회연구, 36(4), pp.63~96 (2016), 한국보건사회연구원[DOI]
- 박정언, "고위험 미숙아 자녀의 아버지 되어감 경험", Journal of Korean Academy of Nursing, 47(2), pp.277~288 (2017), 한국간호과학회
- Hartling L, "A systematic review of interventions to support siblings of children with chronic illness or disability", Journal of Paediatrics and Child Health, 50(10), pp.E26~E38 (2014)[DOI]
- Huang YP, "Cerebral palsy: Experiences of mothers after learning their child's diagnosis", Journal of Advanced Nursing, 66(6), pp.1213~1221 (2010)[DOI]
- Lee SNC, "Taiwanese women's experiences of becoming a mother to a very-low-birth-weight preterm infant: A grounded theory study", International Journal of Nursing Studies, 46(3), pp.326~336 (2009)[DOI]
- Taubman-Ben-Ari O, "Personal growth in the wake of stress: The case of mothers of preterm twins", The Journal of Psychology, 144(2), pp.185~204 (2010)[DOI]
- 장윤실, "한국 신생아학의 미래: 앞으로 나아갈 방향장", 대한의사협회지, 59(7), pp.506~513 (2016), 대한의사협회[DOI]