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자녀의 장애가 가족에게 끼친 긍정적 및 부정적 영향: 어머니의 인식과 관련 요인

Family Impact of Childhood Disability: Mothers’ Perception and Related Factors

정소연
한국가족학회 (The Korean Family Studies Association)|2013.06|가족과 문화 (Family and Culture)|제25권 제2호|pp. 199-233|DOI 10.21478/family.25.2.201306.007

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참고문헌

키워드

장애아동children with disabilities장애 영향장애영향에 대한 어머니의 인식family impact of childhood disabilitymothers’ perception of disability impact
주제분류사회과학일반

초록

본 연구는 장애인부모연대 경기지부 회원을 대상으로 2011년 수집된 데이터를 활용하여장애자녀를 둔 어머니들이 인식하는 장애의 영향에 대해 검토하고 관련 요인을 파악하고자하였다. 이와 같은 연구목적을 위해 기술분석, 상관관계분석 및 중다회귀분석을 실행하였다. 장애자녀를 둔 어머니들의 인지적 평가에 따르면 가족에 대한 장애의 부정적 영향은 경제적인 측면과 사회적 측면에서 두드러졌으며 긍정적 영향은 주로 철학적이고 정신적인 측면에 집중되어 있었다. 즉, 자녀의 장애로 인해 어머니들은 경제적인 부담을 느끼고, 많은 시간을 장애아동을 돌보는데 사용함으로써 사교적인 활동 참여가 줄어들게 되었다고 보고하였다. 한편 이러한 어려움 속에서도 많은 수의 어머니들이 자녀의 장애로 인해 삶에서 가치 있는 것을 깨닫게 되었고 정신적으로 성숙해졌다는 것에 동의를 표하였다. 상관관계 분석 결과, 어머니들이 인식하는 자녀장애의 부정적 영향과 긍정적 영향은 서로 유의미한 관련이 없는 독립적인 요소인 것으로 확인되었다. 중다회귀분석결과에서 어머니들이 인식하는 자녀장애의 부정적 영향과 관련성이 확인된 요인은 장애자녀의 일상생활 의존도, 사회적 능력, 어머니가 주로 담당하는 가사업무 수, 부부만족도, 서비스체계 관련 가족 역량 및 장애로 인한차별경험이었으며 어머니들이 인식하는 자녀장애의 긍정적 영향과 관련성이 검증된 요인은장애자녀의 연령과 사회적 능력, 아버지의 장애자녀 돌봄 시간, 부부만족도, 서비스체계 관련 가족역량이었다. 논의에서는 연구결과의 함의와 함께 장애인가족의 적응을 원조하기 위한 실천적 제언이 제시되었다.

Abstract

This study aimed to examine the impact of childhood disability on families and to identify the factors related to the impacts perceived by mothers. For this study, descriptive statistics,correlation, and multiple regression analyses were performed using data collected from 337members of Parents’ Solidarity of Children with Disabilities in Korea. According to the mothers’ cognitive appraisal, negative impacts of childhood disability were salient in the economic and social aspects whereas positive impacts were prominent in philosophical and mental aspects. That is, most mothers reported that disabilities of their childern caused economic burden and reduced the mothers’ social activities. At the same time, however,many respondents agreed that they could realize what was more important in life and could mature from the experience with their disabled children. Pearson’s correlation coefficient for negative and positive impacts of childhood disability was nonsignificant, indicating that they are independent constructs to each other. Multiple regression results showed that negative impact of childhood disability perceived by mothers were associated with care demands and social competence of a disabled child, the number of housework tasks that mothers took the main responsibility for, marital satisfaction, family empowerment in social service system, and discrimination experience. On the other hand, positive impact of childhood disability perceived by mothers were related to age and social competence of a disabled child, fathers' time spent on child care, marital satisfaction and family empowerment in social service system. In discussion, the implications of this study and practical suggestions for families with disabled children were presented.

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