국내 장애아 조부모 역할 증진에 대한 고찰
Consideration for the increase of Korean grandparents' roles that have a grandchild with a disability
2
조회
0
다운로드
8
인용
0
참고문헌
키워드
초록
본 연구는 국내의 장애아 조부모 참여와 지원을 증진시키기 위한 방안을 모색할 목적으로, 일반 조부모 및 장애아 조부모와 관련된 선행연구들을 토대로 장애아 조부모의 역할에 대해 고찰하였다. 본 연구는 가족 내에서 조부모가 차지하는 지위와 역할에 대한 검토 이후, 국내 조부모 세대가 장애아동에 대하여 어떻게 인식하고 있는지를 살펴보았다. 이러한 조부모의 지위, 역할, 인식을 배경으로 국내 및 외국 문헌들이 장애아 조부모에 대해 어떻게 보고하고 있는지를 조사하였다. 구체적으로, 손자녀의 장애가 조부모에게 미치는 영향, 장애아 조부모의 역할, 조부모의 참여가 부모 적응에 미치는 영향에 대해 살펴보았다. 이러한 검토를 바탕으로, 국내의 장애아 조부모들의 역할을 증대시키기 위하여 교사 및 관련 전문가들의 역할과 가족 구성원들의 역할에 대하여 제안하였다. 본 연구는 국내 장애아 조부모 연구의 양적인 부족이라는 한계를 지적하면서, 향후 장애아 조부모 연구의 활발한 연구 진행을 위해 몇 가지의 연구 방향들을 제시하였다.
Abstract
This study reviewed literature on the roles of grandparents who have a child with a disability to identify ways to increase grandparents' involvement and support in families of children with disabilities. The focal points of the study focused on grandparents's roles in a family, Korean grandparents' cultural views on disability, the impact of grandchildren's disabilities on grandparents, the roles of grandparents in families of children with disabilities, and the relationship between grandparents' support and parents' adaptation. The study revealed that grandparents are the most valuable support base to families of children with disabilities among the sources of social support for the family. Based on the review, the study also revealed and suggested the roles of family members as well as of educators and relevant professionals to increase grandparents' involvement and support. Although there are some literatures regarding grandparents of children with disabilities, most existing studies dealt with grandparents who have different cultures. That is, little is known about Korean grandparents of grandchildren with disabilities. Therefore, this study recommended pressing research issues related to Korean grandparents of children with disabilities for researchers, teachers, and other professionals to be able to create appropriate support programs for the grandparents.
참고문헌 (57)
- 김종숙, "현대사회의 가족변화와 조부모역할", 원대학교 논문집, 통권 : 20, pp.1~11 (2002)
- 중도 장애 아동 양육 조부모 지원 요구, "노선옥", 중복ㆍ지체부자유아교육, 159~177 (2003)
- 심영숙, "조부모의 영유아기 손자녀 돌보기 실태", 노인간호학회지, 1(2), pp.203~212 (1999)
- 이영숙, "청년기 손자녀와 조부모의 공유활동에 관한 연구", 한국노년학, 20(3), pp.1~16 (2000)
- 이영숙, "유아기 손자녀가 기대하는 조부모의 역할에 관한 연구", 유아교육연구, 20(3), pp.211~232 (2000)
- 최혜지, "조부모의 손자녀 양육형태가 조부모와 성인자녀 사이의 세대간 관계에 미치는 영향", 한국사회복지학회 춘계학술대회, pp.797~816 (2004)
- 한혜자, "조부모가 제공하는 도움과 이에 따른 만족도", 노인복지연구, 11(1), pp.195~211 (2001)
- 황혜정, "가족구조에 따른 아동의 문제행동과 조부모의 역할에 대한 인식 비교", 대한가정학회지, 41(12), pp.27~38 (2003)
- Alper, S. K, "Families of students with disabilities: Consultation and advocacy" (1994), Allyn and Bacon
- Bak,S, "The influence of American cultural values on the education of individuals with visual impairments in South Korea", Journal of Visual Impairment & Blindness, 93(5), pp.312~315 (1999)
- Baranowski, M. D, "Grandparents in the lives of grandchildren with disabilities: Mothers' perceptions", Education and Treatment of Children, 22(4), pp.427~446 (1999)
- Barnett, D, "Building new dreams: Supporting parents' adaptation to their child with special needs", Infants & Young Children, 16(3), pp.184~200 (2003)
- Bell, M. L, "Grandparents as primary caregivers", Teaching Exceptional Children, 28(2), pp.18~19 (1996)
- Berg, M, "Different and same: Family therapy with Asian-American families", Journal of Marital and Family Therapy, 19(1), pp.31~38 (1993)
- Brennan,E.L, "Grandparenting and very young children with significant special needs: An ecological study", 박사, pp.1997
- Byon,K.H, "A psychometric validation of direct and indirect attitude measurements toward people with mental retardation in Korea", 박사, pp.2000
- Chan,S, "Parents of exceptional Asian children, Exceptional Asian children and youth" (1986), Council for Exceptional Children
- Cho,S.J, "A comparison of Korean and Korean-American parents regarding Their adaptation to Their young children with disabilities", 박사, pp.1998
- Cho, S, "Adaptation and accommodation to young children with disabilities: A comparison of Korean and Korean American parents", Topics in Early Childhood Special Education, 20(4), pp.236~249 (2000)
- Findler,L, "Grandparents-the overlooked potential partners: perceptions and practice of teachers in special and regular education", European Journal of Special Needs Education, 22(2), pp.199~216 (2007)
- Gardner,C.A, "A grandparent's perspective: A special relationship, Quality of Life: Conceptualization and measurement", pp.37~45 (1996), American Association on Mental Retardation
- Gardner, J. E, "Panamanian grandmothers' family relationship and adjustment to having a grandchild with a disability", International Journal of Aging and Human Development, 59(4), pp.305~320 (2004)
- Gardner, J. E, "Grandparents' beliefs regarding their role and relationship with special needs grandchildren", Education & Treatment of Children, 17(2), pp.185~197 (1994)
- Glass, J. C, "Grandparents raising grandchildren: The courts, custody, and educational implications", Educational Gerontology, 28, pp.237~251 (2002)
- Glidden, L. M., "Disaggregating parental depression and family stress in assessing families of children with developmental disabilities: A multisample analysis", American Journal on Mental Retardation, 102(3), pp.250~266 (1997)
- Green,S.E., "Grandma's hands: Parental perceptions of the importance of grandparents as secondary caregivers in families of children with disabilities", International Journal of Aging and Human Development, 53(1), pp.11~33 (2001)
- Hanson, M. J., "Understanding families: Approaches to diversity, disability, and risk" (2004), Paul H. Brookes Publishing Co
- Harrison, K. A., "Parental stress in grandparents versus parents raising children with behavior p", Journal of Family Issues, 21(2), pp.262~270 (2000)
- Hastings,R.P, "Grandparents of children with disabilities: a review", International Journal of Disability Development and Education, 44(4), pp.329~340 (1997)
- Hastings,R.P., "Grandparents support for families of children with Down's Syndrome", Journal of Applied Research in Intellectual Disabilities, 15, pp.97~104 (2002)
- Hillman,J, "Grandparents of children with autism: A review with recommendations for education, practice, and policy", Educational Gerontology, 33(6), pp.513~527 (2007)
- Hornby, G., "Grandparents' support for families who have children with disabilities", Journal of Child and Family Studies, 3(4), pp.403~412 (1994)
- Katz, S, "Grandparents of children with developmental disabilities: Perception, beliefs, and involvement in their care", Issues in Comprehensive Pediatric nursing, 25, pp.113~128 (2002)
- Kim,U., "Individualism, collectivism, and child development: A Korean perspective, Cross-cultural roots of minority child development" (1994), Lawrence Erlbaum
- An introduction to Korean culture for rehabilitation service providers, "Kim-Rupnow,W.S", The Center for International Rehabilitation Research Information and Exchange, ~ (2001)
- Lamorey,S, "The effects of culture on special education services: Evil eyes, prayer meetings, and IEPs", Teaching Exceptional Children, 34(5), pp.67~71 (2002)
- Mardinros,M, "Conception of childhood disability among Mexican-American parents", pp.55~68 (1989), Medical Anthropology
- McCluskey, K., "Gray matters: The power of grandparent involvement", Reclamining Children and Youth, 9(2), pp.111~115 (2000)
- Mirfin-Veitch, B., ""We're just that sort of family" Intergenerational relationships in families including children with disabilities", Family Relations, 46, pp.305~311 (1997)
- Research review: The role of grandparents in intergenerational support for families with disabled children: a review of the literature, "Mitchell,W", Child and Family Social Work, 94~101 (2007)
- Murphy, L, "Focus on grandparents", Special Parent, 1990, pp.6(2), 2~9
- Nichols, L. A, "Indian family adjustment to children with disabilities", American Indian and Alaska Native Mental Health Research: The Journal of The National Center, 12(1), pp.22~48 (2005)
- Nybo, W. L., "Grandparents'role in family systems with a deaf child", American Annals of The Deaf, 143(3), pp.260~267 (1998)
- Olson, D. H., "Circumplex model of marital and family systems II: Empirical studies and clinical intervention, Advances in family intervention assessment and Theory", pp.129~179 (1980), JAI Press
- Pit-ten Cate, I. M, "Grandparents support for mothers of children with and without physical disabilities", Families in Society, 88(1), pp.141~146 (2007)
- Riesz,E.D, "Loss and transitions: A 30-year perspective on life with a child who has down syndrome", Journal of Loss and Trauma, 9, pp.371~382 (2004)
- Romeis,J.C, "The role of grandparents in adjustment to epilepsy", Social Work in Health Care, 6(1), pp.37~43 (1980)
- Sandler,A.G, "Grandparents of children with disabilities: A closer look", Education and Training in Mental Retardation and Developmental Disabilities, 33(4), pp.350~356 (1998)
- Sandler, A. G, "Positive adaptation in parents of adults with disabilities", Education and Training in Mental Retardation and Developmental Disabilities, 33(2), pp.123~130 (1998)
- Sandler, A. G, "Grandparents as a source of support for parents of children with disabilities: A brief report", Mental Retardation, 33(4), pp.248~250 (1995)
- Scherman,A., "The role of panamanian grandmothers in family systems that include grandchildren with disabilities", Educational Gerontology, 24, pp.233~246 (1998)
- Scherman, A, "Grandparents' adjustment to grandchildren with disabilities", Educational Gerontology, 21(3), pp.261~273 (1995)
- Schwartz, C, "Contribution of demographic, medical, and social support variables in predicting the mental health dimension of quality of life among people with multiple scierosis", Health & Social Work, 30(3), pp.203~212 (2005)
- Stainton, T, "The positive impact of children with an intellectual disability on the family", Journal of Intellectual and Developmental Disability, 23(1), pp.57~70 (1998)
- Todis, B, "Stress and stress management in families with adopted children who have severe disabilities", The Journal of The Association for Persons with Severe Handicaps, 16(1), pp.3~13 (1991)
- Turnbull, A. P, "Families, professionals, and exceptionality: A special partnership" (1990), Macmillan Publishing Company
- Vadasy, P. F, "Grandparents of children with special needs: Insights into their experiences and concerns", Journal of the Division for Early Childhood, 10(1), pp.36~44 (1986)
