Experiences of Cleft Palate Treatment: A Qualitative Study Based on Caregiver and Expert Interviews
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Purpose: This study aimed to explore the experiences and perceptions of caregivers and professionals regarding the treatment process of children with cleft palate focusing on the psychological, social, and economic challenges, using a qualitative research approach based on in-depth interviews. Methods: A qualitative study was conducted through semi-structured, in-depth interviews with caregivers and professionals involved in cleft palate treatment. Thematic analysis was used to identify recurring themes and patterns within the data. Results: Thematic analysis identified four key themes: treatment complexity, psychological and social challenges, and financial burden. Caregivers reported significant stress due to the prolonged and continuous nature of treatment, limited access to information, and logistical challenges related to frequent hospital visits. In particular, they expressed considerable difficulty with long-term speech therapy both caregivers and children experienced emotional strain, including anxiety, uncertainty, and social isolation. Financial difficulties were also common. Participants emphasized the need for institutional support, improved information systems, and greater public awareness. Conclusion: The study underscores the necessity of comprehensive and multidisciplinary support systems to alleviate the multifaceted burdens faced by families of children with cleft palate.
Abstract
Purpose: This study aimed to explore the experiences and perceptions of caregivers and professionals regarding the treatment process of children with cleft palate focusing on the psychological, social, and economic challenges, using a qualitative research approach based on in-depth interviews. Methods: A qualitative study was conducted through semi-structured, in-depth interviews with caregivers and professionals involved in cleft palate treatment. Thematic analysis was used to identify recurring themes and patterns within the data. Results: Thematic analysis identified four key themes: treatment complexity, psychological and social challenges, and financial burden. Caregivers reported significant stress due to the prolonged and continuous nature of treatment, limited access to information, and logistical challenges related to frequent hospital visits. In particular, they expressed considerable difficulty with long-term speech therapy both caregivers and children experienced emotional strain, including anxiety, uncertainty, and social isolation. Financial difficulties were also common. Participants emphasized the need for institutional support, improved information systems, and greater public awareness. Conclusion: The study underscores the necessity of comprehensive and multidisciplinary support systems to alleviate the multifaceted burdens faced by families of children with cleft palate.