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Comparative Study on Parenting Stress, Guilt, Parenting Attitude, and Parenting Satisfaction Between Mothers with a Hemophilic Child and a Healthy Child

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주제분류간호학

초록

Purpose: Although Hemophilia is a relatively rare hereditary disease, and is treatable with blood products, the parenting stress and guilt of hemophilic patients and their mothers are always high. This study was done to assess the extent of parenting stress, guilt, parenting attitude and parenting satisfaction of mothers with a hemophilic child. Method: The participants in this study were 119 mothers with a hemophilic child who were registered members of the Korea Hemophilia Foundation, and 287 mothers with a healthy child. In order to measure the dimensions related to parenting stress, guilt, parenting attitude and parenting satisfaction, the Questionnaire on Parenting Stress Index, Maternal Guilt Scale, Parenting Attitude Scale & Parenting Satisfaction Scale were administered. We analysed the differences between mothers with a hemophilic child and a healthy child in the question- naire scores using the SPSS program. Result: Parenting stress and guilt of mothers with a hemophilic child were higher than with a healthy child. Parenting attitude and parenting satisfaction of mothers with a hemophilic child were lower than with a healthy child. Conclusion: The results may help medical professionals understand mothers with a hemophilic child and give basic assistance to develop a nursing intervention by exploring possible ways to alleviate such parenting stress and guilt.

Abstract

Purpose: Although Hemophilia is a relatively rare hereditary disease, and is treatable with blood products, the parenting stress and guilt of hemophilic patients and their mothers are always high. This study was done to assess the extent of parenting stress, guilt, parenting attitude and parenting satisfaction of mothers with a hemophilic child. Method: The participants in this study were 119 mothers with a hemophilic child who were registered members of the Korea Hemophilia Foundation, and 287 mothers with a healthy child. In order to measure the dimensions related to parenting stress, guilt, parenting attitude and parenting satisfaction, the Questionnaire on Parenting Stress Index, Maternal Guilt Scale, Parenting Attitude Scale & Parenting Satisfaction Scale were administered. We analysed the differences between mothers with a hemophilic child and a healthy child in the question- naire scores using the SPSS program. Result: Parenting stress and guilt of mothers with a hemophilic child were higher than with a healthy child. Parenting attitude and parenting satisfaction of mothers with a hemophilic child were lower than with a healthy child. Conclusion: The results may help medical professionals understand mothers with a hemophilic child and give basic assistance to develop a nursing intervention by exploring possible ways to alleviate such parenting stress and guilt.

참고문헌 (25)

  1. Abidin,R.R., "Parenting stress index, short form : test manual" (1990), Pediatric Psychology Press
  2. Barlow, J. H., "Information and self-management needs of people living with bleeding disorders", Haemophilia, 13(3), pp.264~270 (2007)
  3. Beeton, K., "Parents of children with haemophilia-a transforming experience", Haemophilia, 13(5), pp.570~579 (2007)
  4. Bek,Y.S., "The effect stress and guilt of mothers in raising children have in their attitude of raising children", 석사, pp.2007
  5. Bottos, A. M., "Psychological aspects and coping styles of parents with hemophilic child undergoing a programme of counselling and psychological support", Haemophillia, 13(3), pp.305~310 (2007)
  6. Bullinger, M., "Quality of life in children and families with bleeding disorders", Pediatric Hematol Oncol, pp.S64~S67 (2003)
  7. Chang,I.S., "The influence of guilty for the child rearing, separation anxiety and parenting stress on parenting attitude", 석사, pp.2001
  8. 조결자, "혈우아동 어머니의 양육태도 영향요인", 대한아동간호학회지, 14(2), pp.195~202 (2008), 아동간호학회
  9. Dellve, L., "Stress and well-being among parents of children with rare diseases: a pospective intervention study", J Adv Nurs, 53(4), pp.392~402 (2006)
  10. Gagliardi,B.A., "The family's experience of living with a child with Duchenne muscular dystrophy", Applied Nurs Res, 4, pp.159~164 (1991)
  11. Gallo, A. M., "Parents' concerns about issues related to their children's genetic conditions", JSPN, 13(1), pp.4~14 (2008)
  12. Hyun, O. K., "Development of the scale parenting role satisfaction", J Korean Home Econ, 32(1), pp.103~117 (1994)
  13. James, C. A., "How does the mode of inheritance of a genetic condition influence families? A study of guilt, blame, stigma, and understanding of inheritance and reproductive risks in families with X-linked and autosomal recessive disease", Genetic Medicine, 8(4), pp.234~242 (2006)
  14. 김원옥, "혈우병 환자의 질병과정 적응유형", 대한간호학회지, 34(1), pp.5~14 (2004), 한국간호과학회
  15. "Current activities of Korea Hemophilia foundation(accessed on December 18,2006 from" (2006)[URL]
  16. Kwon,E.K., "Parenting stress and guilt feeling in mothers of children with rare genetic metabolic disease", 석사, pp.2006
  17. Oh, S. S., "The relationships between children's perception of parental discipline and affective characteristics of the children", Korean Institute for Research in the Behavioral Sciences Research Note, 11(1), pp.1~15 (1982)
  18. Park,H.M., "A study on parental stress bases on the parenting of young children", 석사, pp.1994
  19. Shin,S.J., "Effects of stress, social support and efficacy on mothers' parenting behaviors", 박사, pp.1997
  20. Skirton,H., "Parental experience of a pediatric genetic referral", MCN, 31(3), pp.178~184 (2006)
  21. Suk, M. H., "The Trends of Nursing Research on children with Chronic Illness and Their Families in Korea", J Korean Soc Matern Child Health, 8(1), pp.121~134 (2004)
  22. Woolfson, L., "Authoritative parenting and parental stress in parents of pre-school and older children with developmental disabilities", Child Care Health Dev, 32(2), pp.177~184 (2006)
  23. Yi, M. S., "Psychosocial Adjustment of Young Adult to Hemophilia: Living like a Normal Person", J Korean Acad Nurs, 33(7), pp.875~884 (2003)
  24. Yoo,E.H., "The development patterns of attachment and autonomy as related to young adults' marital satisfaction", 박사, pp.1990

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